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Read conversations, start a discussion, and connect with others about myasthenia gravis.

freezing this winter

Any one else freezing this winter? Read where folks have problems with the heat, but I am having problems with cold. Wife keeps the house about 70, and only time...

How do you handle unsolicited advice about MG?

Have you ever received unsolicited advice about your MG? If so, what was the advice and how did you respond?...

Vyvgart vs Ultomeris

I have to switch from my current IVIG to either Vyvart or Ultomeris. Has anyone tried both? Had success or concerns with either of them? Any feedback would be appreciated!...

How do caregivers know the treatment provided by physicians is the best and most correct?

My husband of 53 years passed away from MG after doctors fumbled around attempting to find ways to treat this disease, putting him through months of in-and-out of the hospital...

Help! I have seronegative Myasthenia Gravis and Rheumatoid Arthritis! I am getting worse! My Neurologist doesn't listen to me!

I am desperate to find a doctor who cares.. Getting weaker and very dizzy and fall a lot and am in pain. Have seronegative MG with breathing, talking, swallowing and...

Is a wheelchair in my future?

I am 75 with a moderately controlled case of gMG. I can still walk around the house. I can go outside and go to small stores on a rolling walker...

My neck gets so tired and tight.

I have mg. Dr will say that there isn't any pain with mg. Than why does my neck and shoulders hurt so bad? It's like I've been trying to hold...

Have you heard about these latest FDA-approved MG treatments?

Have you heard of these latest FDA-approved MG treatments: "Rituximab (Rituxan®) can treat refractory MG with anti-muscle-specific kinase (MuSK) antibodies. Efgartigimod alfa and hyaluronidase-qvfc (Vyvgart® Hytrulo) can treat people with generalized...

Ocular myasthenia gravis

I was diagnosed with OMG today. My right eye is pretty much closed be the end of the day. I had an EMG on my face to diagnose it and...

3 Tips You Wish You Had When You Were First Diagnosed With Myasthenia Gravis?

Think back to when you were first diagnosed with Myasthenia gravis. What are 3 tips you wish you could go back in time and have given yourself? Mine would be:...

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