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Read conversations, start a discussion, and connect with others about myasthenia gravis.

Ear Pain

Has anyone experienced ear pain. The pain is not like an ear ache. It’s more like the outer part of your ear. My ENT Has treated it with drops and...

Ocular MG

I was just diagnosed with MG my symptoms are double vision and my eyeballs going to the left. My eyeball literally goes halfway inside my head. Hard to explain. It...

How do caregivers know the treatment provided by physicians is the best and most correct?

My husband of 53 years passed away from MG after doctors fumbled around attempting to find ways to treat this disease, putting him through months of in-and-out of the hospital...

Toll Prednisone Took on Your Body

What impact did Prednisone have on your body? What symptoms did you experience while on the steroid? How was your experience weaning off the medication? Have you struggled to do...

Drinking alcohol

Experience in drinking alcohol on pyridiostigmine ER. Doctor said it was fine, however internet says do NOT. I had a glass of wine and my lips and tounge swelled and...

My self healing journey

I was diagnosed as ocular MG in 2006, double vision was the only symptom. I got treatment of prednisone , starting from 60 mg, taping down to low doze after...

transistion from oral tabs to extended release -

just transitioned to ER tabs instead of oral but still 180mg a day. My lower lip is numb and difficulty ennunciating words. Could it be this is too much medicine?...

Weight loss

Is losing weight caused by MG? I'm not doing as much exercise due to muscle weakness but I am losing weight...

Travel Considerations

My best friend is 87 y.o. He wants me to do a cruise with him on a 160 passenger ship to Antartica. I have been diagnosed with MG since last...

Excessive sweating (Hyperhidrosis)

I've been having a somewhat embarrassing problem. I've always sweated rather heavily when exercising, but since developing MG it's gone to ridiculous extremes. For example, if I'm wearing a cap...

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