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Read conversations, start a discussion, and connect with others about myasthenia gravis.

Active 7 days ago

Ocular MG? Which Treatment Has Worked Best for You?

Do you have ocular Myasthenia gravis or at one point did before it turned generalized? What treatment, if any, has helped you see any improvement? If you had ocular MG...

Occular MG

My eye lid started drooping one week ago and my other eye double vision. My blood pressure went very high so the ER first assumption was a stroke did ct...

Summer

Hi everyone, I got diagnosed last fall and this is my first summer in Northern Nevada with MG. Heat Intolerance and trouble breathing is one of the problems you all...

Are You Religious or Spiritual?

Do you identify with or employ religion or spirituality in your life? Were you this way before your Myasthenia gravis diagnosis? How have these practices, thoughts, and connections to something/someone/higher...

How can friends and family best support someone with MG?

How can loved ones support and comfort you? What strategies and tips do you have for communicating your needs with family and friends? For any caregivers, what are some ways...

Sipping water in between bites of food

Sipping water with a slice if lemon or lime in between bites helps swallowing the food...

Drug pyridostigmine 180MG

Hard to fine pyridostigmine 180mg at pharmacies. When will it be available?...

Are you a routine person? Coping with the unpredictability of MG

Are you a routine person? How difficult has it been for you to learn how to cope with the unpredictability of Myasthenia gravis?...

anyone tried injectable Vyvgart Hytrulo?

my doctor has prescribed this as a next step in treating my MG. I started with ocular MG and progressed to general body MG with still lingering effects from ocular...

LRP4 Question

I have the LRP4 type so unfortunately the treatment options are very limited. Most treatments are geared towards the ACHR type and MUSK type. Has anyone with LRP4 found any...

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