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Read conversations, start a discussion, and connect with others about myasthenia gravis.

Summer

Hi everyone, I got diagnosed last fall and this is my first summer in Northern Nevada with MG. Heat Intolerance and trouble breathing is one of the problems you all...

Drug comparison help

I have had 3 Octagam IVIG treatments and response is positive. Yet my neurologist wants me to change to Imaavy. I am wondering why, he doesn't seem to have a...

Personal MG Manager

I got an email stating that individual managers are available to guide me with MG. I can't find that email. Does anyone have any info to help me? Thanks...

VISION

I have have had 20 over 25 business in my left eye. Suddenly, I could not read even the 1st line. Dr. Checked all the computer scans from last 4...

Private Platform for Sharing & Support – your thoughts?

Dear Community, My twin sister was recently diagnosed with Myasthenia Gravis, and it’s been an emotional and eye-opening time for our family. While supporting her, I realized how hard it...

Myasthenia Gravis Update 2 years Later.

Hi there, lovely reader! My name is Fleur — I posted here almost two years ago now (can you believe it’s been that long?). Back then, I was just a...

How I Found Out

I turned 61 in May of 2025. I am a maile. I am obese and was diagnosed with Type 2 Diabetes in 2016. And just about the time I was...

Initial Treatent Experiences

As I said in my first post yesterday, I am so thankful for my family doctor. He did not know what was wrong with me, but he did not let...

Ocular MG? Which Treatment Has Worked Best for You?

Do you have ocular Myasthenia gravis or at one point did before it turned generalized? What treatment, if any, has helped you see any improvement? If you had ocular MG...

Vyvgart Hytrulo journey

I want to start a thread to post my experience with Vyvgart Hytrulo as a treatment for gMG. It is not easy to get an understanding of what is required...

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