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Read conversations, start a discussion, and connect with others about myasthenia gravis.

Ocular myasthenia gravis

I was diagnosed with OMG today. My right eye is pretty much closed be the end of the day. I had an EMG on my face to diagnose it and...

3 Tips You Wish You Had When You Were First Diagnosed With Myasthenia Gravis?

Think back to when you were first diagnosed with Myasthenia gravis. What are 3 tips you wish you could go back in time and have given yourself? Mine would be:...

I’ve been recently been diagnosed with MG and I am overwhelmed.

I never think I would taking the medicine prescribed. I feel I am having Chemotherapy and the side effects scare me....

Colitis-possibly from Prednisone or IVIG

I just finished my second round of IVIG and spent the day in the hospital the next day. I was diagnosed with Colitis. ER doctor said it could be from...

Hearing Aids

I have vision problems with MG, now I find out it is the reason I need Hearing Aids....

Swallowing-Lungs-kidneys with Myasthenia Gravis

I have lung failure with my Myasthenia Gravis. I use to be incubated due to the failure. When nonvolatile acids that are usually moved by the lungs, and must be...

Myasthenia

My 81 year old mom was recently diagnosed after being sick for almost 4 years. She has now been on medicine (mestinon) for 2 weeks. Has anyone taking this medicine...

Occular MG moving into generalized

Hi, Diagnosed with MG after double vision and thymoma discovered in 2018. Thymoma was removed and I went on Mestinon. Eyelid improved but in 2020 i stopped taking the Mestinon...

MG Conference

Is anyone going to the MG Conference at the end of March? Has anyone ever attended one before?...

How was your MG diagnosed?

I have been struggling with debilitating fatique, muscle weakness and pain for many months. I can't even bring in my own groceries at this point. I've had bloodwork, x-ray, echocardiogram...

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