Forums

Read conversations, start a discussion, and connect with others about myasthenia gravis.

How is mestinon supposed to help?

Hi all, recently been diagnosed with mg through achr positive blood tests. I've been put on 60mg mestinon 3x a day and...

In remission

Hi there just to give the community an update on my condition. I was diagnosed with mg in 2020 and had a...

Has anybody heard of MG just dissapearing and no medications being taken or required not even Mestinon

MG just miraculously dissaperaing like remission...

Medication side effects

Are you currently taking any medication to manage your MG symptoms? If so, which are you taking? How long have you been...

Featured

Do You Have Seronegative Myasthenia Gravis? What Treatment Has Improved Your Symptoms Best?

Are you diagnosed with seronegative MG? Which treatments have you been approved for? Which have you tried? Which form of treatment offered...

New treatment (experimental?) Rystiggo

rozanolixizumab (brand name RYSTIGGO) Has anyone had any experience with this? I’m not questioning the validity of the trial, simply any after...

Headaches or migraines as a primary or persistent/main symptom

Hi, just wanted to know if there were many of you with headaches or migraines as a main symptom. As myasthenia is...

Remission

Has anybody ever heard of a complete remission with all medication being stopped (even Mestinon) and neuroligist confirming that no trace of...

Do You Have a Caregiver?

Do you have a caregiver? Is your caregiver someone you hired or a loved one? What has been your experience? Any advice...

Getting a handle on MG (or trying)

I have been having fairly frequent flairs, due to stress, summer heat, and just too much exertion. And I have to admit...

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