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Read conversations, start a discussion, and connect with others about myasthenia gravis.

Myasthenia what?

I have been dealing with chronic Lyme disease for several years and have had different types of pain so I thought the weakness in the left side of my mouth...

How did you feel after IVIG

Hello, I just finished my first dose of IVIG. I’m curious how others felt after their first treatments and subsequent doses? I couldn’t swallow yesterday and started having excruciating pain...

How do you prepare for travel?

Now that it's summer time, it's also vacation time for a lot of people. I myself just cam back from a mini trip. So I was just wondering for everyone...

Immunizations and MG

Has anyone noticed that Immunizations make their MG symptoms worse. My OMG has seemed worse after a Shingles, Flu and Covid shot. Covid the worst....

New Mg symptoms or something else.

I have some new symptoms not sure if it’s Mg related. My middle, ring and pinky finger will curl in towards the palm of my hand. The other problem is...

Burning pain/muscle weakness

Hello. Been suffering from a weakness that progressed over years from mild to disabling. The weakness is like the muscles just don't get enough nutrients/fuel to keep working like normal...

What is the most effective treatment for MG!

Got diagnosed 5 months ago and was started on 1 tablet of Pyridostigmine a day & now taking 4 tablets daily with 20mg of steroids which has given me severe...

What was the first treatment your doctor prescribed for MG?

Tell us how it worked for you. Did treatment help reduce symptoms? Did it bring any unexpected side effects? Your insight can provide valuable perspectives for other navigating similar journeys....

Myasthenia Gravis

Hello Can somebody tell me if this is myasthenia? N-AChR (IIF) neg N-AChR 0.54 MuSK neg (Done by ELISA method, asking for RIA now) Thank you...

Ophthalmic Migraine

I was diagnosed with Ophthalmic Migraine (Ocular Migraine). So, my sight fades in my left eye and after maybe 10-20 minutes I regain my sight. It's only the lower part...

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