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Forums

Read conversations, start a discussion, and connect with others about myasthenia gravis.

Leg cramps

I started having leg cramps when I began taking pyrid. Since they occur mostly at night, I get up and walk around the living room until the cramps are gone...

Problems

I am nearly eighty and have a secondary illness I have to take medication for this 2nd illness which causes constipation etc. Since i cannot do much physical exercise, I...

IVIG Infusion

Hi, I am new to MG and this Forum. First forum I ever joined. I have read many on-line of various subjects when I am looking for info. I am...

IVIG Infusion for 5 days straight

That was a long week. Anyone have symptoms of yellow/brown colored urine after the 5 days of IVIG Infusion ? How to stay hydrated when MG seems to cause frequent...

red blotchy skin color after 5 days of ivig infusion

Did not have this symptom during the week of infusion, but today I am seeing this on my legs and arms. Any comments?...

Acute MG Attacks

I have recently had my first MG acute attack. It started with weakness in my hands, which don't feel attached to my arms, and I am dropping everything. Next, there...

ivig infusion and back surgery

I start IVIG Infusion on Monday 14, 2025. Five straight days then followed by "maintenance days" of IVIG. During the "maintenance days" , has anyone had back surgery ? How...

Deep frustration and sadness after finding the love of my life

Hi all, my name is Lucienne, i,m a 57 year old woman from The Netherlands. I,m so depressed and sad that i decided to search for a forum where i...

Ocular MG? Which Treatment Has Worked Best for You?

Do you have ocular Myasthenia gravis or at one point did before it turned generalized? What treatment, if any, has helped you see any improvement? If you had ocular MG...

Do You Have a Caregiver?

Do you have a caregiver? Is your caregiver someone you hired or a loved one? What has been your experience? Any advice for someone looking for or considering the assistance...

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