Skip to Accessibility Menu Skip to Login Skip to Content Skip to Footer

Forums

Read conversations, start a discussion, and connect with others about myasthenia gravis.

Myasthenia gravis while in a relationship vs. single

Have you had Myasthenia gravis while in a relationship and single? What are the most significant regular daily changes you noticed? Are certain aspects of MG easier alone? Such as...

Plasmapheresis and IVIG

I was 91 years when I was diagnosed with MG. Since then I have been treated with the usual oral meds including prednisone, mestinon, mycophenolate mofetil and infusions of Soliris...

Grocery Shopping Difficulties with MG

Grocery shopping with Myasthenia gravis (MG) necessitates the energy to get up and drive to the store. Even if you plan to use a store mobility scooter, it can still...

MG Flare

What are some ways you get through a Myasthenia flare? It's so disappointing after things have been doing better for a while. I'm reading a lot and thankful that I...

Three crisis in 5 months

My Mg manifests itself in my ability to be able to walk along with vision neck muscle and not to much in facial events. It also steals my ability to...

Confidence in your treatment regimen?

How easily or difficult is it for you to have faith and confidence in your treatment regimen? Has this changed over time? Do you doubt faith in doctor decisions or...

My story

I am 65 years old. I was diagnosed with Myasthenia Gravis almost 3 years ago. It started 3 years ago with double vision. I didn’t know until 4 months later...

3 Tips You Wish You Had When You Were First Diagnosed With Myasthenia Gravis?

Think back to when you were first diagnosed with Myasthenia gravis. What are 3 tips you wish you could go back in time and have given yourself? Mine would be:...

Muscle Spasms

I was diagnosed in 1995 I had no mobility at all I take mestinon and Prednisone to stay stable. I notice I have very bad muscle spasms and stay tired...

Stress

Some one was asking what I'm on. for treatment. I'm on Restiggo. Once a week for 6 weeks, then 4 weeks off. I had 2 round of that. I was...

Categories

Select a category to find topics that interest you.