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Read conversations, start a discussion, and connect with others about myasthenia gravis.

necessary medication

I’m taking 1000 mg of cellcept a day down from 2000 mg. My symptoms are gone. I was on 5 mg of prednisone for several months but went down to...

Test results

I’ve read that even low-level ACHR test results which labs record as a negative result should equate to an MG diagnosis (I assume especially if there are symptoms), since normal...

Has an MG Treatment Caused You Increased Heart Rate?

Has a Myasthenia gravis treatment you have tried caused you an increased heart rate? If so, which one(s)?...

Ocular MG and yoga

I was detected ocular MG .auto closing of left eye,could not drive . Started with.Distinon. 7hrs effective . Dr suggested.steroid .Googled... and scared of side effects. Started doing Sarvangasan for...

New diagnosis with double vision

Tried mestinon twice for 3-4 weeks with no improvement. I will see a neuro muscular specialist soon and wondering what others have tried when mestinon did not help...

Plasmapheresis

I had the full gambit, the eight day program. I know it is supposed to make you feel like a new person, but, in my case I went down the...

My Breakfast used to include Oatmeal with Blueberries but NOW I make Oatmeal Chocolate Chip Cookies Instead

I decided to change my Oatmeal with Blueberries breakfast with Oatmeal Chocolate Chip Cookies instead... Blueberry Cocktail for my Blueberry consumption and I will have 2 Cookies with Apple Sauce...

I can’t talk for myself but I will tell you a true fact

As you may or may not know but I’m from Sydney Australia & this is my story or should I say a fellow MGer, I met this friend in Hospital...

What’s Worse: Drooping Eyelid or Having Eyes Open Thus Blurred/Double Vision More Noticeable?

Common Myasthenia gravis symptoms are the drooping of the eyelids and blurred or double vision, https://myasthenia-gravis.com/symptoms. Have you had treatment improve your eyelid droop, but not your double vision? What...

Fatigue/exhaustion in arms and legs

I was diagnosed in December 2022 with MG. It seems that some of the most common and bothersome symptoms I have experienced are exhaustion/fatigue in my arms and legs at...

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