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Forums

Read conversations, start a discussion, and connect with others about myasthenia gravis.

Syncope

Hi, Everyone! I'm so glad I found this group! I was diagnosed with MG in October 2024. My symptoms have progressed SO quickly. Most recently, I fainted following a feeling...

Cold weather

Does cold weather impact your myasthenia gravis symptoms? Do things like fatigue, muscle cramping/weakness get worse when the weather is colder? If so, what do you do to manage these...

Any side effects of long term IVIG treatment?

I am now 53 years old. I got diagnosed with Thymoma in Dec 2020. Had surgery in February 2021. After surgery, in April 2021 I started slurry speech and difficulty...

My self healing journey

I was diagnosed as ocular MG in 2006, double vision was the only symptom. I got treatment of prednisone , starting from 60 mg, taping down to low doze after...

Knee Pain

Do you experience knee pain or discomfort? Knee pain, while not one of the most commonly reported symptoms of myasthenia gravis (MG), can occur due to the condition's impact on...

Eating with MG

I eat in smaller bites than I used to do. Cut up food in smaller pieces and take smaller bites. It helps when I have trouble swallowing, It does not...

Thymectomy via partial sternotomy

Hi there, I’m 20 and I’ve been diagnosed with MG for almost two years now and recently had a thymectomy via a partial sternotomy. I am day 6 post-op and...

One sided symptoms?

Is it possible to just experiment MG symptoms just on one side of your body?...

Intervenes or subcutaneous therapy

Has anyone been on Rystiggo?...

Seronegative

My legs have become very weak like noodles at times. I can no longer step up curbs or steps, my legs won't hold me. I have fallen a to least...

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