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Read conversations, start a discussion, and connect with others about myasthenia gravis.

Unusual symptom?

I was finally diagnosed with a muscle disease/disorder, non-specific, about 5 years ago after going to the neurologist for over 10 years. I have the muscle weakness, pain, double vision...

Anyone taking Ultomiris?

I’ve had (2) IVIg treatments and will have one more next week. I will be starting Ultomiris in May and going forward. Can anyone share experiences with this treatment? Whether...

Methotrexate

Is anyone currently taking Methotrexate please? This has now been prescribed for me as I was experiencing bad side effects from taking Mycophenolate. Mainly numbness of hands and feet, but...

Vyvgart Side-Effects and Adverse Reactions

We understand that using Vyvgart (Efgartigimod alfa) can sometimes come with side effects. Could you share any experiences you've had with it? Did it lead to your doctor ordering you...

Medication & Treatment Side Effects

Have you ever stopped a medication or treatment because of side effects? If so, did you switch to a different medication or treatment? How did you approach the conversation with...

What is Leg systoms

I was diagnosed with my Myasinthla Gravis about a month ago. My symptoms were trouble, swallowing problems breathing slurred talk. droopy eyelid and crooked smile. My daughter thought I was...

Do you have problems swallowing?

Myasthenia gravis causes weakness of the swallowing muscles of many individuals, leading to problems involving choking, a terrifying experience, https://myasthenia-gravis.com/living/swallowing-speaking-symptoms, https://myasthenia-gravis.com/diet, and https://myasthenia-gravis.com/living/barium-swallow-experience...

How did you feel after IVIG

Hello, I just finished my first dose of IVIG. I’m curious how others felt after their first treatments and subsequent doses? I couldn’t swallow yesterday and started having excruciating pain...

Good News!

I was called by a neurology department at st. Claire hospital. They had a cancellation that needed to be filled! I was so relieved to get an appointment a month...

How long before you were diagnosed?

Hello, I am newly diagnosed and new to this forum. I started having double vision & a droopy eyelid in mid February and was diagnosed with MG 2-3 weeks later...

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