Headaches or migraines as a primary or persistent/main symptomHi, just wanted to know if there were many of you with headaches or migraines as a main symptom. As myasthenia is under researched like a lot of conditions and...Reactions 0 reactions Comments3 repliesResearch & Clinical TrialsAwarenessSymptoms
Is your job/ boss accommodating when your Myasthenia gravis symptoms impact your performance?Is your job/ boss accommodating when your Myasthenia gravis symptoms start impacting your capability to perform? Are they aware you have MG or just the symptoms you have? Or do...Reactions 0 reactions Comments1 repliesWork & EmploymentSymptomsNewly Diagnosed
Does Anything Specific Provoke Breathing Difficulty for You?Do you experience problems with your breathing? Does anything specific trigger it? How often does it occur on average?...Reactions 0 reactions Comments1 repliesTriggersSymptomsCrisis
Has an MG Treatment Caused You Increased Heart Rate?Has a Myasthenia gravis treatment you have tried caused you an increased heart rate? If so, which one(s)?...Reactions 0 reactions Comments1 repliesTreatmentSide EffectsAwareness
MG in the UKJust reaching out to those in the UK as the MG support in the UK is pretty limited I find and this seems like the best place for support, which...Reactions 0 reactions Comments2 repliesFriends & FamilyAwarenessCaregiving
T cell treatment for ocular myasthenia gravisAre there any new treatments available.?...Reactions 0 reactions Comments0 replies
Helpful MG questionsHi all! I am organising a webinar for people with MG with a leading MG specialist and want to make sure we cover the most important questions and topics. I’d...Reactions 0 reactions Comments0 replies
Do You Have a Caregiver?Do you have a caregiver? Is your caregiver someone you hired or a loved one? What has been your experience? Any advice for someone looking for or considering the assistance...Reactions 0 reactions Comments20 repliesCaregivingNewly DiagnosedHealthcare Team
Have You Attended an In-Person Myasthenia Gravis Event or Conference?Have you attended an in-person Myasthenia gravis event or conference? If not, do you have an interest in it?...Reactions 0 reactions Comments0 repliesNewly DiagnosedAwarenessCoping
Ocular MG- BotoxMy neuro opthamologist suggested botox shots for ptosis and maybe double vision, as well. Has anyone tried this? What was your result?...Reactions 0 reactions Comments2 replies