caret icon Back to all discussions

Anyone taking Ultomiris?

I’ve had (2) IVIg treatments and will have one more next week. I will be starting Ultomiris in May and going forward.

Can anyone share experiences with this treatment? Whether you took it or are currently taking it? Thanks!

  1. Hello Michelle!

    I found this forum where people have shared their experiences with Ultomiris. There is a comment with a link to the MG Facebook page with even more responses.

    https://myasthenia-gravis.com/forums/treatment-with-ultomiris

    While it is a couple of years old, you may find the answers helpful.

    Chelley (Team Member)

    1. I would also like to know the cost.

      Please read our rules before posting.