Good News!
I was called by a neurology department at st. Claire hospital. They had a cancellation that needed to be filled! I was so relieved to get an appointment a month earlier and to see the doctor himself. It was a lengthy visit with assistants interviewing, nurses taking vitals and the doctor doing many tests and holding an interview as well. The outcome is, Mestinon 5 times a day, Vyvgart infusions beginning next week, and a c-scan for a thymoma. The doctor was very attentive and he was well attuned to GMG. He was cautious about meds due to several other issues including pre-diabetes. I feel like there is hope!
Yeah it took me 2 months to see a neurologist when I was first diagnosed and that was 2 months earlier than my initial first scheduled appointment. Lucky for me MG came on slowly at first so by my first appointment it was still just an annoyance, 2 months later it became extremely debilitating at which point I started IVIG, now I would say I’m fairly normal most of the time other than the fatigue when doing anything strenuous.
so glad to hear you received some news that has provided you with some hope! Also so glad to hear the doctor was so attentive. Please feel free to check in and let us know how you are doing. We care and are here for you. Kindly, Jessica, MG Team Member
