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Read conversations, start a discussion, and connect with others about myasthenia gravis.

Methotrexate

Is anyone currently taking Methotrexate please? This has now been prescribed for me as I was experiencing bad side effects from taking Mycophenolate. Mainly numbness of hands and feet, but...

Stress

Some one was asking what I'm on. for treatment. I'm on Restiggo. Once a week for 6 weeks, then 4 weeks off. I had 2 round of that. I was...

Are You Religious or Spiritual?

Do you identify with or employ religion or spirituality in your life? Were you this way before your Myasthenia gravis diagnosis? How have these practices, thoughts, and connections to something/someone/higher...

Diet

Hi everyone, I wanted to check in with folks after reading some recent research on the positive impact of both a vegan and Keto diets on our immune systems. Has...

Here is when my symptoms started even thought I had no idea what was happening

Things that happened to me during and after Covid: (BTW, I got Covid twice) I developed sores that smelled like rotten meat that oozed constantly under my breast and on...

Here is where

Things that happened to me during and after Covid: (BTW, I got Covid twice) I developed sores that smelled like rotten meat that oozed constantly under my breast and on...

Statins and Beta Blockers

I have read in various articles that taking Statins or Beta Blockers facilitates OMG. Discussed with Cardiologist and he became defensive that it was proven fact through research that they...

Is hip pain bothering you?

Hip pain can be a concerning symptom for those of us living with Myasthenia gravis. This pain can be attributed to muscle weakness, inactivity, or other underlying conditions that may...

Plasmapheresis and IVIG

I was 91 years when I was diagnosed with MG. Since then I have been treated with the usual oral meds including prednisone, mestinon, mycophenolate mofetil and infusions of Soliris...

IVIG Side Effects

IVIG delivers healthy antibodies to improve an MG flare or crisis but can cause side effects. Headaches, chills, dizziness, and fluid retention are commonly reported (https://myasthenia-gravis.com/plasma-exchange-ivig). What rate of flow...

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