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Read conversations, start a discussion, and connect with others about myasthenia gravis.

VYVGART?

I started Vivgart infusions on May 5, 2025 and I’m still taking 10 mg Prednisone & 2,000 mg mycophenolate per day. Pyridostigmine is as needed and take about 1 x...

Occular MG

My eye lid started drooping one week ago and my other eye double vision. My blood pressure went very high so the ER first assumption was a stroke did ct...

What are the early signs of glaucoma, and can a regular optician spot them?

Glaucoma is often called the "silent thief of sight" because it typically develops slowly and without noticeable symptoms in the early stages. Some early signs, when they do appear, may...

Exercizing

What can you do to help with legs being heavy, weak and exhausted....

The bladder and myasthenia connection

Can you please repost the talk about myasthenia and the bladder. It was deleted too quickly. Thank you...

"Wrong" Diagnosis for Years?

I was Dx for MG last year. Yet, twice since 2008, I had extreme fatigue and was sent to 2 different Rheumatologists, who thought I had something called PMR. Bloodwork...

What household tasks are difficult for you?

What household tasks are difficult for you because of your MG?...

Featured

Which doctor is your primary doctor for your MG?

Who do you see for your care around your myasthenia gravis diagnosis?...

I V ports

I had a port put in yesterday as I am a hard stick. I was wondering what kind of experience people have had with ports?...

CAR T Cell therapy or UCAR T cell therapy

My family member has been diagnosed with MG. It's been refractory to the first 4 infusions. He has the opportunity to enter a CAR T cell study , but really...

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