Does Anything Help Your Double Vision And/or Droopy Eyes?
Do you have Myasthenia gravis symptoms of diplopia (double vision) or ptosis (drooping eye)?
Has anything helped you? Medication, surgery, tape, glasses, contacts, eye drops, etc.?
- Jodi, Team Member
I found patches and glasses to be a waste of money and time. Eye lids droop and eyes won't focus because the muscles are too weak. You have to attack the antibody that is attacking the muscles. If you have garden variety MG (ACHR positive), Mestinon (Pyridostigmine) should fix the droop and the focus. A steroid burst might speed the healing process. You need a Neurologist, not an eye doctor. If your neurologist is booked six months out, which is common, any physician can do an ACHR blood test and can prescribe Mestinon and a steroid burst. But keep your neurologist appointment. The Mestinon is a short-term fix, It is treating only the symptoms, not the root cause.
Thank you for sharing your perspective! You bring up some great points
Jodi, Team Member
It was my optometrist who first suspected MG & ordered tests. At that time I was driving my wife crazy with one eye closed all the time (diplopia & droop). Over the last year plus, prisms & meds have helped, but when the MG is bad, they aren’t enough & im
Back to being a one-eyed Jack. Except often I’m too tired to hop out anyway. I’ll try the Sudafed, thanks,Mestinon helps some. Prism glasses, eye patches, and rest can make a difference.
If it’s bad, IVIG or steroids might be worth looking into. Definitely talk to your neuro
Believe it or not, Sudafed helps.
That's interesting! I didn't know Sudafed could help with MG eye symptoms, but I see that there have been multiple studies on its effectiveness for those with MG! It’s always great to learn about new ways to find relief. I think the only concern would be the long-term use effects of Sudafed (Pseudoephedrine), specifically increasing the risk of cardiovascular or heart problems.
Jodi, Team Member
