Does Anything Help Your Double Vision And/or Droopy Eyes?
Do you have Myasthenia gravis symptoms of diplopia (double vision) or ptosis (drooping eye)?
Has anything helped you? Medication, surgery, tape, glasses, contacts, eye drops, etc.?
- Jodi, Team Member
Eye patch for double vision. It helps some, if you can get use to wearing it.
I have ocular myasthenia gravis which causes diplopia ptosis and I experienced double vision. For sometime I have been doing constant research trying to understand what can cure or treat this ailment outside of traditional drugs, Kritikos steroids and like. As of eight minutes ago, I recently came across an advertisement regarding the product called up Nick, which is good for people with ptosis, but it says that it doesn’t work or it’s not designed specifically for people with underlying causes of cuing myasthenia gravis. The correct spelling of the word is.Upneeq. As well, I have an appointment coming up in December for what is called a Perry Bobert injection, which goes directly to the eye muscle, which is specifically affected by ocular myasthenia gravis via needle under anesthesia. Or local pain diminishment. I may even end up getting my thyroid removed, but that’s to wait and see. We’re hoping to get the results that we’re looking for after this peri bulbar injection. I’ve become a member of this page and hope to gain information to share with my newly found friends in the adventure of general and ocular myasthenia gravis. I pray for you all do well and be blessed. Have a wonderful day.
dear family I still can’t express I have. I am to have found this group of people that experience and stuff that I do. I never get to talk to anyone that has experienced ocular myasthenia gravis or just myasthenia gravis in general in general MG. Anyway, I was just reaching out to see if anyone has received what is called a Perry Bulbar injection and have received positive results with vision correction of diplopia ptosis. I’ve heard that people who do receive the injection normally see incredible results within five weeks just checking to see if anyone in this form has experience good results from this new application of medication for ocular myasthenia gravis.
I bought some eye patches from Amazon when I first had double vision. I was prescribed Prednisone and I'm still on 20mg a day and it has never returned. I also take Mestinon but that is hard on my stomach. I've had MG for 3 years now (gMG for 2).
Rest, prism eyeglasses
