Does Anything Help Your Double Vision And/or Droopy Eyes?
Do you have Myasthenia gravis symptoms of diplopia (double vision) or ptosis (drooping eye)?
Has anything helped you? Medication, surgery, tape, glasses, contacts, eye drops, etc.?
- Jodi, Team Member
My left eye is the one that moved out of line, and dry eye affects it very badly, so I just hold it closed most of the time. Would like to get glasses, but don't know if it is worth the bother as don't know if I can stand to keep the eye open. drops do no good at all, and the vaseline ointments cloud my vision so much it is hardly worth using it. Takes a lot to make my eye not hurt to move. You are advised to not use it a lot, I would need to use it constantly. Meds cause dry eye, search google.
No
I found patches and glasses to be a waste of money and time. Eye lids droop and eyes won't focus because the muscles are too weak. You have to attack the antibody that is attacking the muscles. If you have garden variety MG (ACHR positive), Mestinon (Pyridostigmine) should fix the droop and the focus. A steroid burst might speed the healing process. You need a Neurologist, not an eye doctor. If your neurologist is booked six months out, which is common, any physician can do an ACHR blood test and can prescribe Mestinon and a steroid burst. But keep your neurologist appointment. The Mestinon is a short-term fix, It is treating only the symptoms, not the root cause.
Thank you for sharing your perspective! You bring up some great points
Jodi, Team Member
It was my optometrist who first suspected MG & ordered tests. At that time I was driving my wife crazy with one eye closed all the time (diplopia & droop). Over the last year plus, prisms & meds have helped, but when the MG is bad, they aren’t enough & im
Back to being a one-eyed Jack. Except often I’m too tired to hop out anyway. I’ll try the Sudafed, thanks,
