Skip to Accessibility Menu Skip to Login Skip to Content Skip to Footer

Tell us about your symptom and treatment experience. Take our survey here.

Forums

Read conversations, start a discussion, and connect with others about myasthenia gravis.

Myasthenia Gravis and Cardiovascular Medication

Myasthenia gravis may pose a risk to patients using cardiovascular medications to treat heart conditions (coronary artery disease, hypertension, high cholesterol, and heart arrhythmias). Beta-blockers, calcium channel blockers, and statins...

Surgery Yesterday

Hello, Just thought I'd share I had my thymectomy yesterday. Up walking pretty quick should be discharged tomorrow all things been well. Feel pretty drugged up. I am going to...

Myasthenia Gravis post COVID Vaccination

Hello All, I want to share my story and wants to check if you have similar experience. And, wants to understand what's coming-up in the future. I have taken first...

Apherisis Poem:Wash, Rinse, Repeat

By Laurie-May, 2024 Some days I go in with a smile Can even saunter in with style! However, primarily I’m there because I’m near the end. Previous treatment fading-now only...

Accountant with OMG

Just diagnosed this year with Occular MG. As an accountant my eyes are very important to me. I already find myself working considerably slower. It is taking along time to...

MG Story

Hey everyone hope everything going well I stumbled across this site awhile ago and noticed I'm not alone with this rare thing almost nobody understands at my age of 30...

traveling with MG

I was diagnosed in July 2024 with ocular mg. I had double vision symptoms. Since I started on mestinon it has controlled the double vision. Now my only symptoms are...

sleeping positions and finding good books on MG

Diagnosed with MG 10 months ago. Started with Ocular and moved to Ocular with General MG symptoms. Question: Has anyone with MG and breathing issues found a good position to...

Tremors, muscle twitches

Hello dear forum friends. I’m a newbie here and learning a lot from you all. I am AChR positive, bulbar presentation with lost voice and swallowing issues. Did 5 plasmapheresis...

Confidence in your treatment regimen?

How easily or difficult is it for you to have faith and confidence in your treatment regimen? Has this changed over time? Do you doubt faith in doctor decisions or...

Categories

Select a category to find topics that interest you.