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Forums

Read conversations, start a discussion, and connect with others about myasthenia gravis.

Treatment Question

I have had double vision for around 6 months. I have been tested for MG twice with blood work that came back negative both times. My nuero Opthalmologist is very...

INSOMNIA

What is safe and effective for insomnia. I have generalized M.G.,double vision and breathing issues. On bi-pap recently after study. Sleep neurologist refuses to prescribe anything. Feel it compromises breathing...

A little denial

Hi, I was diagnosed in January 2025. I have been on Mestinon 60 mg 3 X a day. At the end of November, I started having increased blurred vision and...

freezing this winter

Any one else freezing this winter? Read where folks have problems with the heat, but I am having problems with cold. Wife keeps the house about 70, and only time...

How do you handle unsolicited advice about MG?

Have you ever received unsolicited advice about your MG? If so, what was the advice and how did you respond?...

How do caregivers know the treatment provided by physicians is the best and most correct?

My husband of 53 years passed away from MG after doctors fumbled around attempting to find ways to treat this disease, putting him through months of in-and-out of the hospital...

Help! I have seronegative Myasthenia Gravis and Rheumatoid Arthritis! I am getting worse! My Neurologist doesn't listen to me!

I am desperate to find a doctor who cares.. Getting weaker and very dizzy and fall a lot and am in pain. Have seronegative MG with breathing, talking, swallowing and...

Have you heard about these latest FDA-approved MG treatments?

Have you heard of these latest FDA-approved MG treatments: "Rituximab (Rituxan®) can treat refractory MG with anti-muscle-specific kinase (MuSK) antibodies. Efgartigimod alfa and hyaluronidase-qvfc (Vyvgart® Hytrulo) can treat people with generalized...

I’ve been recently been diagnosed with MG and I am overwhelmed.

I never think I would taking the medicine prescribed. I feel I am having Chemotherapy and the side effects scare me....

Colitis-possibly from Prednisone or IVIG

I just finished my second round of IVIG and spent the day in the hospital the next day. I was diagnosed with Colitis. ER doctor said it could be from...

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