Treatment Question
I have had double vision for around 6 months.
I have been tested for MG twice with blood work that came back negative both times. My nuero Opthalmologist is very intelligent and told me today that I have Ocular MG. He wants to start me on Mestinon. Any thoughts?
prednisone seems to be the go to med for MG, but it tore me up. Was on 6omg, and had nightmares, crazy dreams that werent so scary, panic attacks, caused me to get angry easy, and dry eye. read where prednisone causes all these things. I could not wait to get off it, but they take forever to wean you off it, still have a few weeks of 5mg, and they are giving me steroids as I am alergic to vyvgart truluvio.
I was Rxed Mestinon and after taking for 3 months , it didn't do much to help my double vision and my neurologist from Mass General Hospital, Boston,MA diagnosed me with Ocular MG. He didn't think it would do much, so I've since discontinued it. He wanted to start me on prednisone, which I balked at. I also have intermittent exotropia in both eyes.
That's a good idea, steroids also will help, they put your immune system back on track. My MG started with double vision 18 years ago. Find a good Nero muscular doctor that specializes in MG
Thanks, the only Dr. I know in our area is the Neuro Opthalmologist that my optometrist referred me to. Can Mestinon help put the immune system back in place, or are you speaking about Prednisone?
I had same issue. 4.8.Achr value 6 months back . Yesterday my value was 0.19. One medicine. Do sarangasana for 9 minutes a day . Start with.1 minute . Gradually increase . Throw all medicines. Better take instruction from a yoga master if possible
While your doctor expressed concerns about yoga, which could be due to your unique health, many people with MG have found positives in practicing it, especially when done in moderation and under a doctor's guidance. It can benefit stress levels, and gentle stretching can help improve muscle strength and flexibility. Breath-focused exercises can promote better lung function and oxygen uptake. Overdoing it can definitely lead to muscle fatigue, which could worsen symptoms in individuals with MG. Certain yoga poses may cause strain on already weak muscles, so it is important to consider your limits and not do anything that feels uncomfortable.
MG affects individuals differently. What works for one person may not work for another. It might be worth discussing further with your doctor to find a safe way to incorporate it, or other movement, into your day! Here are some articles you may be interested in: https://myasthenia-gravis.com/living/adaptive-yoga, https://myasthenia-gravis.com/living/trying-yoga, and https://myasthenia-gravis.com/living/exercising-again.
Jodi, Team MemberSuggest you can make baby steps with Yoga. Certainly harmless.
