Myasthenia Gravis
I have had double vision for around 6 months.
I have been tested for MG twice with blood work that came back negative both times. My nuero Opthalmologist is very intelligent and told me today that I have Ocular MG. He wants to start me on Mestinon. Any thoughts?
Welcome to the group! It's awesome that you have a knowledgeable ophthalmologist looking into Ocular MG. Starting Mestinon could be a good move. If your bloodwork is negative, that’s often the first sign of seronegative MG, which means you don’t have the usual MG antibodies but still have the condition. Giving Mestinon a try can help confirm a diagnosis if you notice an improvement in your symptoms. If Mestinon doesn’t work for you, which is the case for some, the next step would be nerve conduction studies and electromyography (EMG) to help determine if you have seronegative MG. They’ll likely do a test called repetitive nerve stimulation (RNS), too, and sometimes they might need to use single-fiber electromyography (SFEMG) for a more detailed look, especially with seronegative cases.
Jodi, Team Member
