A little denial

Hi, I was diagnosed in January 2025. I have been on Mestinon 60 mg 3 X a day. At the end of November, I started having increased blurred vision and couldn't keep my eyes open. By mid December, I was crazy exhausted all the time and could barely get through a day of work. End of December, the weakness increased and moved to my neck, legs, and mouth. I have slurred speech when I am tired or overdo it. That is when I had bloodwork and found out I am AChR positive.

January and February were horrible - I was in a constant flared state. The mestinon was wreaking havoc on my stomach and bowls. I was miserable every day! The exhaustion was unbearable.

The past week I am still tired but everything else has gone away. I am wondering if Could have just had a wierd virus and the Antibodies were coincidental. I hate the idea of being on meds the rest of my life. I'm wondering what would happen if I just tapered off the mestinon. Or does mg come in spurts of flare ups then you are fine for a bit??? I am so confused. I am seeing a neurologist who seems to know less than I do about MG - I have a new neurologist appointment with a specialist on March 28. Has anyone had anything similar?