Myasthenia-Gravis.com

The Normal Anomalies-Living with MG

When I was diagnosed with MG back in May 2024, I thought that was the end. I was lucky to have a very supportive family, especially my husband, who really understands what I am going through.

The everyday MG struggle

Now I know I am not lazy. I am just... tired. Most days I negotiate with my MG as if it's a person: please be nice to me today... Please don't make me feel so wasted. It's even harder because it's an illness that cannot be seen; hence, people will only see you as the person who is happy and healthy all the time, not knowing that every morning when I wake up, it feels like I have been hit by a monster truck.

Treatment

I am not on medication because it gives me terrible side effects. Since mine is the ptosis type, I told my neurologist I don't mind the droopy eyelid as long as I can still breathe.

Pushing forward

I continue yoga and just started Pilates to build my strength, and I will not let MG rule my life. I am happy; I want to be healthy, and I want the world to know that my MG stands for Make Good!

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The Myasthenia-Gravis.com team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

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