INSOMNIA
What is safe and effective for insomnia. I have generalized M.G.,double vision and breathing issues. On bi-pap recently after study. Sleep neurologist refuses to prescribe anything. Feel it compromises breathing further. I also have fibromyalgia. I hardly sleep at all and feel totally dysfunctional and depressed. Currently do not have a doctor. Appt. on Dec. 23rd with a neuro-muscular specialist over 200 mi. from my small town in Northern WI. I only take Pyrodostigmine and it isn't working well for M.G. symptoms.
I'm really sorry to hear about the struggles you're facing with insomnia. Since you have an appointment with a neuro-muscular specialist soon, please express your concerns and experiences during that visit. They might have insights or alternative approaches to address your sleep issues and manage your MG symptoms. Although many sleep medications, including melatonin, are suggested against using with MG, here are two articles with some suggestions that you might want to check out before your appointment: https://pmc.ncbi.nlm.nih.gov/articles/PMC10557457/ & https://psychiatryonline.org/doi/10.1176/appi.neuropsych.18120383.
Jodi, Team MemberThank you Jodi. Most helpful information. Tried Trazadone and Ramelteon. Need to look at dosage amounts. Did not help. Tried Zolpidem and Zopiclone. Get minimal amount of sleep. Now with bi-pap more concerns with breathing. Had sleep issues with the Fibromyalgia before MG diagnosis. Only got worse. Only on Pyridostigmine now. Do not want to add steroids due to osteoporosis diagnosis and the insomnia. Hope to get some much needed help in a couple of weeks when I see the Neuro-Muscular specialist. Only 1 hour appt. initially and traveling almost 200 mi. Thinking of moving to larger city closer to medical doctors and family. Depression hit hard now.
Hi
, sorry to hear you battling all these symptoms. Many in our community mention dealing with sleep issues. I shared an article on the topic here - https://myasthenia-gravis.com/clinical/sleep-disorders. I also included an article written by one of our amazing patient advocates, and her experience with insomnia - https://myasthenia-gravis.com/living/insomnia-experience. I hope your upcoming appointment proves helpful at creating a plan that will help you get some more quality rest. Please feel free to check back in and let us know how the appointment goes. Kindly, Jessica (Team Member)
