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Read conversations, start a discussion, and connect with others about myasthenia gravis.

symtoms

Does anyone get numbness any where on there body? Also does just one side of your body become effected? In June of this year I had a face droop on...

INSOMNIA

What is safe and effective for insomnia. I have generalized M.G.,double vision and breathing issues. On bi-pap recently after study. Sleep neurologist refuses to prescribe anything. Feel it compromises breathing...

Micro cap mushrooms for better face control on MG

I have had MG for 18 months. I am a 70 year old male. On cellcept, Mestinon and recently stopped taking a 5mg steroid. Get IVIG treatment (4+ hours) monthly...

How can friends and family best support someone with MG?

How can loved ones support and comfort you? What strategies and tips do you have for communicating your needs with family and friends? For any caregivers, what are some ways...

Sipping water in between bites of food

Sipping water with a slice if lemon or lime in between bites helps swallowing the food...

Drug pyridostigmine 180MG

Hard to fine pyridostigmine 180mg at pharmacies. When will it be available?...

Are you a routine person? Coping with the unpredictability of MG

Are you a routine person? How difficult has it been for you to learn how to cope with the unpredictability of Myasthenia gravis?...

anyone tried injectable Vyvgart Hytrulo?

my doctor has prescribed this as a next step in treating my MG. I started with ocular MG and progressed to general body MG with still lingering effects from ocular...

LRP4 Question

I have the LRP4 type so unfortunately the treatment options are very limited. Most treatments are geared towards the ACHR type and MUSK type. Has anyone with LRP4 found any...

Knee Pain

Do you experience knee pain or discomfort? Knee pain, while not one of the most commonly reported symptoms of myasthenia gravis (MG), can occur due to the condition's impact on...

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