Side effects of mestinon I’d have a mild case of mestinon for mg symptoms for about 10 years It’s not working as well as I would like.I take 1 or 2 tablets a day...Reactions0reactionsComments2 replies
How old were you when you were diagnosed with MG?Add any other details you'd like to share!...Reactions0reactionsComments120 repliesDiagnosis
Managing Stress & AnxietyFully eliminating life's stressors is nearly impossible, but trying to keep it at bay is helpful when managing MG symptoms. How do you practice self-care, mindfulness, and keeping stress/anxiety at...Reactions0reactionsComments14 repliesTips & AdviceCoping
Diagnosed in 6/24. Myasthenia Gravis Neurologist started me on pyridostigmine bromide 60mg. Twice a day. They r helping me but on 30%. I can only chew food properly for 3-4 bites and then I have...Reactions0reactionsComments5 replies
Had You Heard of Myasthenia Gravis Before Your Diagnosis?When you were diagnosed, or a doctor proposed you could have Myasthenia gravis, had you heard of it before? If yes, from where? I was utterly clueless about what it...Reactions0reactionsComments50 repliesDiagnosisNewly DiagnosedAwareness
Season Changes & MG SymptomsWith the weather starting to take a turn into Fall over the next few weeks —— do season changes affect MG symptoms? Do you find that a certain season causes...Reactions0reactionsComments1 repliesTriggersSymptoms
ProblemsI am nearly eighty and have a secondary illness I have to take medication for this 2nd illness which causes constipation etc. Since i cannot do much physical exercise, I...Reactions0reactionsComments4 replies
MG without ExcerbationsI believe I’ve had this since 2017 but it didn’t bloom until September 2023. It took me to September 3, 2024 to see a Neurologist. Dr ordered tests and the...Reactions0reactionsComments0 repliesMuscle WeaknessNewly Diagnosed
Myasthenia crisis???After an extremely busy weekend visiting family, I woke feeling slightly unwell. Usually if I overdo things I get flares of my symptoms: off-balance, tired, pain through most of my...Reactions0reactionsComments2 repliesSymptoms
Extreme heaviness and throbbing pain in lower legsI am about 12 days from receiving my semi-annual infusion of retuximab. I am experiencing heaviness and a throbbing pain in my lower legs. This is not a cramping. Has...Reactions0reactionsComments1 replies