How was your MG diagnosed?
I have been struggling with debilitating fatique, muscle weakness and pain for many months. I can't even bring in my own groceries at this point. I've had bloodwork, x-ray, echocardiogram, CT scan with no diagnosis. I had a neighbor who was stricken with MG in her 50s and I remember what she went through and my symptoms seem the same. If anyone is willing to share how your diagnosis was confirmed it might save me from having multiple unnecessary tests. Thanks so much!
Among all autoimmune diseases, MG is usually the easiest to diagnose. There is a simple blood test. One vial of blood is sent to the Mayo Clinic. It takes a couple days. Any neurologist will do this test, but most other doctors don't even know about it.
If the blood test comes back positive for AChR or MuSK antibodies, you have myasthenia gravis. No other test is needed. Some of the electrical tests discussed in the article are quite unpleasant.
I’m sorry to hear of the symptoms you’ve been experiencing lately. Our community understands how challenging they can be to manage, and the difficulties faced while trying to find a diagnosis. I wanted to share this article with you in hopes it will be of some help while you wait for others to share their own experiences https://myasthenia-gravis.com/diagnosis. Thinking of you, Julie (team member)
