Myasthenia what?
I have been dealing with chronic Lyme disease for several years and have had different types of pain so I thought the weakness in the left side of my mouth and tongue was either another symptom or I was having a stroke. While in the ER thorough testing and blood work showed possible MG. That all happened in April this year 2022 and since then I have had symptoms when eating and especially at a get together when I am speaking to someone. I have been prescribed Mestinon by a neurologist and taking 30 mg twice a day. I have also changed my diet and eating more fruit and vegetables and have eliminated eggs, dairy, gluten and sugar but I’m not sure how long this will last.
Jodi, the Lyme is for sure, several tests over the years have been positive . I thought maybe the Lyme was mimicking MG. After reading your message I am hopeful thank you
How did your follow-up go today? - Jodi, Team Member follow up went well thanks for checking. No change in the amount of medication as long as symptoms stay the same. Stay well!
Chuck, how confident is your Lyme diagnosis? I was falsely diagnosed with Lyme disease and lupus before a medication triggered my MG symptoms. I always had a high ANA count. But I possibly have another undiagnosed autoimmune disease or lupus that contributed to symptoms before MG. You are one of those like me whose MG first presented as a scary stroke-like crisis. Are you on medication other than Mestinon? I had speech symptoms for about a year, used Mestinon, and then it just stopped happening! I only experience slight weakness now with repeated movement. I'm two years post-diagnosis. Have hope 😀
- Jodi, Team Member
