Forums

Read conversations, start a discussion, and connect with others about myasthenia gravis.

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Toll Prednisone Took on Your Body

What impact did Prednisone have on your body? What symptoms did you experience while on the steroid? How was your experience weaning...

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looking for a new Boston MG Doctor.

I am looking for a new Neurologist for MG, in Boston. Experienced, good bed side manner, who has appointments in the reasonable...

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Confidence in your treatment regimen?

How easily or difficult is it for you to have faith and confidence in your treatment regimen? Has this changed over time?...

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Anyone familiar with autonomic nervous system dysfunction in MG?

I've had myasthenia gravis since '97 mainly affecting eye muscles but in the past swallowing and speech has been affected occasionally especially...

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Myasthenia gravis problem

Self at 69, In October 2023, noticed that my right eye lid has closed half and does not open After diagnosis my...

FeaturedActive 2 days ago

Do You Have Seronegative Myasthenia Gravis? What Treatment Has Improved Your Symptoms Best?

Are you diagnosed with seronegative MG? Which treatments have you been approved for? Which have you tried? Which form of treatment offered...

Active 2 days ago

How Do You Cope With Hot Temperatures?

Summer is almost here. Does the heat worsen your Myasthenia gravis symptoms? Which ones? https://myasthenia-gravis.com/living/heat How often are you outdoors in the...

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What was the first treatment your doctor prescribed for MG?

Tell us how it worked for you. Did treatment help reduce symptoms? Did it bring any unexpected side effects? Your insight can...

Active 2 days ago

Has anyone used imaavy infusion

I am 78. I have had MG since 1998. I presently take prednisone and IVIG infusion. I have taken prednisone since 2000...

Active 3 days ago

Does anyone else have bowel/bladder issues with MG?

Ever since I've been diagnosed with MG, I have developed horrible bowel and bladder issues where nothing seems to want to come...

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