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Read conversations, start a discussion, and connect with others about myasthenia gravis.

Does anyone have an issue with floaters

I recently went the opticians because I suddenly had flashing lights and floaters in both my eyes,I was told it was a vitreous detachment due to age(I'm 72) and no...

Were you in remission to then have your MG symptoms return?

Have you been treated for Myasthenia gravis and entered a period of remission, but unfortunately, months or years later, your symptoms returned? How is it impacting your life if you...

What changes have helped you feel more fulfilled as you navigate MG?

Have you made changes to your life since your MG diagnosis? What changes have helped you feel more fulfilled as you navigate MG?...

Ocular MG

I have been living with ocular MG for almost 8 years now and my symptoms are getting worse. I am now going for eye therapy as a last resort. I...

Are you a routine person? Coping with the unpredictability of MG

Are you a routine person? How difficult has it been for you to learn how to cope with the unpredictability of Myasthenia gravis?...

Blood results - is it MG?

Hi everyone I’m going through tests for MG at the moment as I have a thymoma. I’ve been ill for nearly 18 months now. My AChR level is at 0.51...

General Myathenia Gravis

When I am ready to retire for the evening and I take off my shoes my right foot will curl to the left like it is paralyzed in that position...

Vivgart

I got diagnosed aug23 with a crisis. Had another severe crisis april2024. 10 days in iCU. Started vivgart in May. It's been only 6 weeks and I'm going backwards already...

Medication side effects

Are you currently taking any medication to manage your MG symptoms? If so, which are you taking? How long have you been taking them? What is something you wish someone...

Difference with ibuprofen

Has anyone noticed any symptom improvements with just ibuprofen or Advil/motrin. My ptosis noticeably improved with ibuprofen and some of my general weakness although subtle. I don't take it now...

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