Alternative medicationI’m a little curious I was read an article about ivermectin and was wondering if anybody has been using it or use it to control their MG. I am considering...reactionsreplies
Unexplained Symptoms that are Not Characteristic MG Symptoms?What unexplained symptoms do you have that are not characteristic MG symptoms?...reactions4repliesSymptomsNewly DiagnosedAwareness
Treatment QuestionI have had double vision for around 6 months. I have been tested for MG twice with blood work that came back negative both times. My nuero Opthalmologist is very...reactions23replies
A little denial Hi, I was diagnosed in January 2025. I have been on Mestinon 60 mg 3 X a day. At the end of November, I started having increased blurred vision and...reactionsrepliesNewly Diagnosed
freezing this winterAny one else freezing this winter? Read where folks have problems with the heat, but I am having problems with cold. Wife keeps the house about 70, and only time...reactions1reply
How do you handle unsolicited advice about MG?Have you ever received unsolicited advice about your MG? If so, what was the advice and how did you respond?...reactions39repliesCoping
How do caregivers know the treatment provided by physicians is the best and most correct? My husband of 53 years passed away from MG after doctors fumbled around attempting to find ways to treat this disease, putting him through months of in-and-out of the hospital...reactions3repliesTreatmentTriggersCaregiving
Help! I have seronegative Myasthenia Gravis and Rheumatoid Arthritis! I am getting worse! My Neurologist doesn't listen to me!I am desperate to find a doctor who cares.. Getting weaker and very dizzy and fall a lot and am in pain. Have seronegative MG with breathing, talking, swallowing and...reactions6repliesAutoimmune DiseasesDepressionSeronegative
Have you heard about these latest FDA-approved MG treatments?Have you heard of these latest FDA-approved MG treatments: "Rituximab (Rituxan®) can treat refractory MG with anti-muscle-specific kinase (MuSK) antibodies. Efgartigimod alfa and hyaluronidase-qvfc (Vyvgart® Hytrulo) can treat people with generalized...reactions4repliesNewly DiagnosedTreatmentAwareness
I’ve been recently been diagnosed with MG and I am overwhelmed. I never think I would taking the medicine prescribed. I feel I am having Chemotherapy and the side effects scare me....reactions5repliesAwareness