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Read conversations, start a discussion, and connect with others about myasthenia gravis.

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Things that happened to me during and after Covid: (BTW, I got Covid twice) I developed sores that smelled like rotten meat that oozed constantly under my breast and on...

Statins and Beta Blockers

I have read in various articles that taking Statins or Beta Blockers facilitates OMG. Discussed with Cardiologist and he became defensive that it was proven fact through research that they...

Is hip pain bothering you?

Hip pain can be a concerning symptom for those of us living with Myasthenia gravis. This pain can be attributed to muscle weakness, inactivity, or other underlying conditions that may...

Plasmapheresis and IVIG

I was 91 years when I was diagnosed with MG. Since then I have been treated with the usual oral meds including prednisone, mestinon, mycophenolate mofetil and infusions of Soliris...

IVIG Side Effects

IVIG delivers healthy antibodies to improve an MG flare or crisis but can cause side effects. Headaches, chills, dizziness, and fluid retention are commonly reported (https://myasthenia-gravis.com/plasma-exchange-ivig). What rate of flow...

What’s something you wish your doctor knew about living with MG?

It’s often difficult to express our challenges in the short appointments that we have to meet with a medical professionals. What are the top three things that you wish your...

How Do You Use Mindfulness to Navigate Myasthenia Gravis?

Mindfulness has helped me approach life with MG with more patience, self-compassion, and resilience. From practicing acceptance to finding gratitude in the small moments, these principles have truly changed how...

Mestenon treatment for OMG

My first Neuro doctor put me on 60 mg three times a day 8 hrs apart. Did not work . Prednisone treatment worked at 40mg but when stepped down to...

Myasthenia Gravis and Cardiovascular Medication

Myasthenia gravis may pose a risk to patients using cardiovascular medications to treat heart conditions (coronary artery disease, hypertension, high cholesterol, and heart arrhythmias). Beta-blockers, calcium channel blockers, and statins...

Surgery Yesterday

Hello, Just thought I'd share I had my thymectomy yesterday. Up walking pretty quick should be discharged tomorrow all things been well. Feel pretty drugged up. I am going to...

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