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Read conversations, start a discussion, and connect with others about myasthenia gravis.

Suggestions for ocular mg

I was diagnosed with ocular mg 5 years ago. Everything was under contro untill 6 months ago and I had a flare up, its still going on and my doctor...

How does Myasthenia Gravis affect eye health, and why are regular eye exams important for people with this condition?

Myasthenia Gravis often affects the muscles that control eye movement and eyelids, leading to symptoms like drooping eyelids (ptosis) and double vision (diplopia). These eye-related symptoms can fluctuate throughout the...

LLLT

Does low level laser therapy help to supplement medication in MG. It was suggest I go for a course. I have ocular bulbar MG...

Ocular myasthenia gravis

I was diagnosed with OMG today. My right eye is pretty much closed be the end of the day. I had an EMG on my face to diagnose it and...

Experiencing drooling

Has anyone experienced drooling after being diagnosed with MG. Over the past three weeks I've noticed that I will drool off and on through out the day. It's very frustrating...

Confidence in your treatment regimen?

How easily or difficult is it for you to have faith and confidence in your treatment regimen? Has this changed over time? Do you doubt faith in doctor decisions or...

What is your Win of the Day?

Living with MG can be challenging. Let's celebrate all the wins, big or small. What is your WIN of the DAY?...

My neck gets so tired and tight.

I have mg. Dr will say that there isn't any pain with mg. Than why does my neck and shoulders hurt so bad? It's like I've been trying to hold...

Diet

I'm interested if anyone with mg has tried a hyper nutrition program for autoimmune.? Just nutrition from food. Mainly raw dark greens and stuff in the cabbage family, like cauliflower...

Vyvgart vs Ultomeris

I have to switch from my current IVIG to either Vyvart or Ultomeris. Has anyone tried both? Had success or concerns with either of them? Any feedback would be appreciated!...

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