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Read conversations, start a discussion, and connect with others about myasthenia gravis.

How did you feel after IVIG

Hello, I just finished my first dose of IVIG. I’m curious how others felt after their first treatments and subsequent doses? I couldn’t swallow yesterday and started having excruciating pain...

Good News!

I was called by a neurology department at st. Claire hospital. They had a cancellation that needed to be filled! I was so relieved to get an appointment a month...

How long before you were diagnosed?

Hello, I am newly diagnosed and new to this forum. I started having double vision & a droopy eyelid in mid February and was diagnosed with MG 2-3 weeks later...

Do you have treatment goals?

Do you and your neurologist have measurable treatment goals? I know not everyone does, but because MG is not curable, it seems to me treatment should have some measurable objectives...

Is a wheelchair in my future?

I am 75 with a moderately controlled case of gMG. I can still walk around the house. I can go outside and go to small stores on a rolling walker...

Just had 1st ivig infusion-any success stories?

Hello, I am newly diagnosed with MG (2 months ago), neuro put me on pyridostigmine right away. It took about 2 weeks to start working and whether coincidental or not...

Double vision

Diagnosed in 2024. I have no peripheral vision and have double vision always minimum leg cramps. What do people take for vision?...

Cellcept induced muscle strains/problems

I started CellCept the end of August, 2024. I write this on 4/9/25 to give you a frame of reference, so I've been on it just short of 9 months...

anyone get glasses for your double vision?

My opthamologist who diagnosed my MG wants to stay involved in my treatment, he was saying he would do botox on my eye to make the muscle wake up that...

3 Tips You Wish You Had When You Were First Diagnosed With Myasthenia Gravis?

Think back to when you were first diagnosed with Myasthenia gravis. What are 3 tips you wish you could go back in time and have given yourself? Mine would be:...

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