Do you have treatment goals?

Do you and your neurologist have measurable treatment goals? I know not everyone does, but because MG is not curable, it seems to me treatment should have some measurable objectives. Mine are:

SYMPTOMS: All the usual symptoms should be well controlled by medication 95 percent of the time: Little eye droop; no double vision; no mouth weakness or trouble chewing, speaking and swallowing; no breathing issues; arm, hand and leg weakness may noticeable but not debilitating, so long as I avoid excessive heat or cold.

FLARES AND CRISES: Zero crises and no flares requiring overnight hospitalization.

LIFETYLE: Able to shower and care for myself independently. Able to drive to town and do light shopping, banking, etc. Able to do or assist in light housekeeping, including cooking, laundry and dish washing.

ENERGY AND AMBITION: Able to awake each morning eager for the day. Able to make plans, do productive work and enjoy friends and family within my physical limitations. On a one to ten scale, I should rate my happiness and life satisfaction as nine or above.

These goals, of course, must change over time. I am 75 and in the process of disassembling. (That’s the word Space X uses to describe a rocket blowing up.) My own demise will be less spectacular but no less sure. I never want to confuse the progression of my disease, which is treatable, with the process of aging, which is terminal. I tell my doctor his job is not to keep me alive, but to keep my MG under control until I’m not.

I and probably many others would like to know if you have goals that you and your doctor can discuss and measure, and what they are.