Meds for ocular myasthenia gravis
I developed double vision and a droopy eyelid direction after my 2nd cataract surgery. It took 7 months and 5 providers later to diagnose my ocular mg (no other generalized mg symptoms). I started almost 3 months ago with 60 mg of pyridostigmine 3x a day and am now taking 180mg 4 x a day + 1 mg daily of Glycopyrrolate. Although this helped with double vision I still had blurriness and dizziness. Ten days ago the dr. added 20 mg of prednisone daily, which so far I have not seen any significant improvement. I see the dr tomorrow to see if I go on strictly higher dose prednisone or begin injections or infusions of immunosuppressants. I’m happy to read that the pyridostigmine is helping so my people; unfortunately not for me.
I take it also never new this Neurologist never told me , I sure will check into it thanks.
Ask your neuro to treat your diarrhea with something else, I'm sure there's a lot out there and it doesn't have to be prescription. Mestinon is great but terrible for that problem. I ended up taking Huperzine A as an alternative, work similar to mestinon with less side effects.
I also have ocular MG diagnosed in 8/24. Taking 90mg mestinon 3x’s per day. Was at a higher dose, but g.i. Side effects were not worth it. Plus, it does nothing for double vision. Started ivig infusions in January. I have had 2 rounds of 3 infusion days. So far, infusions are not working & double vision persists. In fact my “good” eye has started to droop. Very discouraging. Have others had experience with ivig & how long til some positive results occurred?
Next step for me is likely vyzulta. Cannot take prednisone due to severe glaucoma.I have ocular MG, prednisone is the only thing that works for me. Started at 60mg and was able to drop down to 1.5mg.
