Skip to Accessibility Menu Skip to Login Skip to Content Skip to Footer

Forums

Read conversations, start a discussion, and connect with others about myasthenia gravis.

Plasma aphersis

Wondering if anyone knows. If getting 10treaments of plasma aphersis (didn’t work) am I losing any of protection from the Covid shots had 3. Drs didn’t answer me either!!! Dr...

How do I manage this mysthania ?gravis

Hi Am ifeoma I started experiencing weakness in 2010 because I was pregnant I thought it was one of the symptoms of pregnancy. After birth it continues that I have...

I was born in 1956 . There was something wrong with my muscles...my brother had it too...

We were tested for MS and other neurological diseases. We had very heavy eyelids and our eyes did not move. We were diagnosed with MG at the Univercity of Chicago...

Diagnosis Eludes Us- So Frustrated

At 19 I noticed my daughter holding her chin up all of the time and she stopped singing around the house. She had trouble swallowing and chewing. Since then she...

Might it be MG?

Right, for the last 18 months I have experienced double vision (vertical) accompanied by a tightness over my head from temple to temple whenever I bend down and do something...

Covid and Paxlovid

Hi just wondering if anyone has taken Paxlovid for Covid? Paxlovid is an anti viral treatment which has FDA emergency use authorization. I was given this after testing positive for...

breathing problems with mg

Hi I was diagnosed with generalized mg nine months ago .I am currently taking a range of medication . pyridostigmine and immunosuppressants plus I also recieve immunoglobulin treatment every month...

Healthcare team

…Looking for MD whose primary specialization is MG..seen too many who were useless. I live on Long Island, NY. Anyone out there who can help me? Thank you!...

MG testing complicated by pre-existing conditions

Hello everybody I just registered here today to ask for advice on testing for MG when there are pre-existing genetic conditions and autoimmune conditions with overlapping symptoms. I will try...

Plasmapheresis cessation

My wife was recently diagnosed with MG and had a thymectomy two and a half months ago. My expectation was that she would be on medication to control symptoms from...

Categories

Select a category to find topics that interest you.