A Fatigue Scale
When I began having MG symptoms it occurred to me that it would be helpful in order to track the progress of the disease to have a fatigue scale comparable to the 1 to 10 pain scale. There did not appear to be one, so I came up with my own:
0 = All is well; no fatigue; go git 'em!
1 = I feel a little fatigue, but I can ignore it
2 = I definitely feel some fatigue, but I can go on
3 = I'd like to rest, but I can go on
4 = I need a rest but I can go on
5 = I have to rest; I can't go on
This, like the pain scale, is clearly subjective. My 3 for example might well be someone else's 5. But I've found it useful, and I offer it to anyone else who might also find it useful.
Thank you for sharing this with us. This is very useful and also thank you for saying that your 3 may be someone else's 5. Implicating that we all experience fatigue and symptoms differently. I will have to use this for myself. This morning I am currently at a 2. I have mild fatigue in my right eye but nothing that I feel to go back to sleep for. - Jazmin (MG team member)
