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IVIG Infusion

Hi,
I am new to MG and this Forum. First forum I ever joined. I have read many on-line of various subjects when I am looking for info.
I am trying to be an involved member, but the difficulty I see is that most of the questions people have or had have already been asked and answered. So, trying to find something new to ask or talk about can be challenging.
Next week I have an IVIG Infusion. Finally got approved because we wanted to know which Health Insurance Agency is going to pick what share of the costs for the Infusion treatment before I commit to saying, "yes, make an appointment". Expensive treatment if you had only Medicare and/or were paying cash. Health Insurance companies do not want to answer those type of questions of how much of the cost they are going to pick up.
Anyone have any experience with this treatment and if it helps or side effects ?
How long does the treatment last ?
Will I need more than one infusion ?

Thanks,
Ron @ flatouttrucking

  1. Hi Ron, I have had about 5 or 6 IVIG treatments with some in hospitals and some in outpatient clinics. I have a Medicare Advantage plan and was not charged anything for the outpatient treatments. The course is 5 days using IV and takes about two to three hours each time. It does work for most people and myself but my first experience in the hospital I was in bad shape (very weak and hard to breath) so I ended up needing Plasma Aspirases too (spelling?). If you have an Advantage or supplement plan for Medicare you should have little or no cost. I don't know about regular insurance because plans vary but if they have a maximum out of pocket limit then it shouldn't go over that for the year. Good luck.

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