IVIG Using GamuNEX-C 50gm
Hi Everyone,
My MG was in remission for about 7 months but just came back recently and has been very bad--diplopia, dysarthia, dysphagia and very weak neck muscles. I'm now taking Mestinon and have had three IVIG infusions every 3 weeks so far with GamuNEX-C 50gm. Previously, I was receiving GammaGARD 50 Gm and Iater was able to be controlled only by Cellcept. My doctor hasn't started me back on that medication yet for various reasons.
My question is this: So far it feels like the GamuNEX-C 50gm is not working as well for me as the GammaGARD 50 Gm did and I would like to hear from those of you that may be having or have had this same experience. Earlier this year, my insurer, BCBSMI, notified me they were switching me to GamuNEX-C but because I was then not having any MG symptoms I didn't question this. I hope all of you out there are doing well with your MG. Thank you!
Karen
After I posted this, I realized I left some important information out! I had a very difficult surgery this past April for Esophageal cancer. In preparation for that, I had chemoradiation and right before that my doctor took me off Cellcept that I had been taking for a long time. After the surgery, I was MG symptom free for about 5 months but very bad MG symptoms then started and have continued until now. Today, I had my 3rd IVIG infusion with Gamunex C and that is what prompted my original question because so far these IVIG infusions haven't improved my symptoms.
I would really appreciate hearing from any community member who may have had or is now having a similar experience. I researched this online and couldn't find anything definitive except that surgeries can result in someone getting MG and also that chemoradiation can adversely affect the immune system. The latter is what now makes me think that is what has caused the present result. Thank you and I hope you're all doing well with your MG.
