Methotrexate
Is anyone currently taking Methotrexate please?
This has now been prescribed for me as I was experiencing bad side effects from taking Mycophenolate. Mainly numbness of hands and feet, but it also made the MG so much worse. Having now stopped taking
Mycophenolate I almost instantly started to feel stronger and function again!
Just want to know if anyone experiences bad side effects from Methotrexate, and what those effects are.
Cannot take the Azathioprine as it was damaging my liver, which is a pity as I did well on this drug.
Wishing you all well on your MG journey, so good to be able to touch base with you guys!
Tillyval (UK)
should have posted correctly, cellcept is the same as mycophenolate.
I am taking cellcept, same thing, and I have a lot of things going on, but the doctor says they are from myasthenia, not the drug. Except for the dry eye, all drugs can cause dry eye. Mine is bad news, using the ointment as the tear drops last a few seconds unless I just hold my eyes closed. I do have tingling in my arms while using my exercise machine, and for a while after. Feels like they are just extremely tired. Neck is causing me problems, but that seems to be something many myasthenia patients have problems with. Some can't even hold their head up.
Hi
! I want to apologize for the long delay in responding to you. How have you been doing? Have you been on the methotrexate? If you’re still interested in hearing about the experience of others on this medication, I found this article on our RA sister site https://rheumatoidarthritis.net/living/what-to-expect-methotrexate. Community members shared many different experiences in the comments! Again, I apologize for the delay. I hope this is helpful. Sending well wishes, Julie (team member)
