Medication & Treatment Side Effects

I just asked the doctor if I could quit prednisone, and he said perhaps he had made a mistake. He put me on Vyvgart, which has not had all the crazy side effects, but my wife sent me to the hospital as she thought I was having heart issues, it was just because I had been in the hospital so many times and could not get any exercise so my heart would pound when I would try to do anything, and the local idiots thought I had endocarditis, which my cardiologist thought was wrong, as they did not scope me to see for sure, but anyway the neuro muscular specialist took me off the cellcept for the antibiltic treatments, 35 infusions in all, daily at the hospital, He put me back on the cellcept at the last appointment.The local idiots also put me on seizure meds because I was so cold that I was shivering. Wearing that open back dress and sitting by a freezing window made me extremely cold, needed a hooded sweat shirt and sweat pants to get warm. Had to wear clothes like that all winter as being inactive just makes me freeze. Never had this problem when I was able to work. Course I would sit down in my chair and as i warmed up would go to sleep. My wife was always waking me up.

I was diagnosed with MG about 3 years ago. Although I am sure it was present long before being discovered. I was started on Mestinon, prednisone and Tacrolimus , I improved minimally, if at all but had to stop all three because of intolerable side effects. Currently I receive infusions of Ultomiris every 8 weeks. I revcently was given Amatadine . I stopped it because it was to constipating.

Breathing issues, swallowing, chewing, talking and muscle weakness! Side effects: cramping, excess saliva, thin skin, bruising and some vision issues.
Other than that I’m very healthy 😊

My doctor put me on Imuran. Results were stomach upset. Gotta remember to eat something 1st!