Active todayFinancial Assistance Available Through The National Organization for Rare DiseasesNORD is a non-profit organization. This is from their website. "We provide patient assistance programs to help individuals living with rare diseases: Obtain medication Receive financial help with insurance premiums...Reactions 0 reactions Comments2 repliesCostInsurance & DisabilityResearch & Clinical Trials
Headaches or migraines as a primary or persistent/main symptomHi, just wanted to know if there were many of you with headaches or migraines as a main symptom. As myasthenia is under researched like a lot of conditions and...Reactions 0 reactions Comments3 repliesResearch & Clinical TrialsAwarenessSymptoms
vyvgart vs IVIGJust wondering whatever anyone can share--from personal knowledge--about vvgart and IMIG ... especially success rates and side affects. I have just been told about IVIG and I saw an ad...Reactions 0 reactions Comments11 repliesResearch & Clinical Trials
Autoimmune Conditions Common With MG"Like many other autoimmune conditions, research shows that people who develop MG may have inherited genes that make them more likely to develop autoimmune conditions. Doctors also know that people...Reactions 0 reactions Comments19 repliesDiagnosisAutoimmune DiseasesResearch & Clinical Trials
Advocating and making changes in the diagnosis and treatment of Myasthenia Gravis I'm feeling like advocating more for Myasthenia Gravis Awareness and Understanding. Without our contributions to research, community outreach. Educating others and the medical field of what our life is like...Reactions 0 reactions Comments3 repliesAwarenessResearch & Clinical TrialsDiagnosis
Connection between MG and the sPLA2-11a Enzyme?See the link below which speaks to the impact of this enzyme which "has the capacity to bind to receptors at neuromuscular junctions and potentially disable the function of these...Reactions 0 reactions Comments0 repliesAutoimmune DiseasesResearch & Clinical TrialsDiagnosis