Headaches or migraines as a primary or persistent/main symptom

I have experienced migraine as a prodrome to an ocular flare. The ocular flare consisted of diplopia (worse in my right eye) which gets worse with "position changes". The happens to be a change in proprioception for me. Leaning forward or turning your head from side to side, sitting then standing. It's difficult to know where you're body is at. After the migraines subsides the diplopia is still there but less . It seems like, for me, that migraine, fatigue, over exertion, stress, poor sleep and heat, all contribute to a flare. The flare may last for hours or days. It's a vicious circle as of the above can bring on a migraine. Holy moly, what are we to do. Incorporate stress relief into our lives, eat healthy, drink lots and lots of water change positions slowly, make sure your house is safety proofed. Just one example is picking up throw rugs that you might trip on. We purchased a faucet in the kitchen that just taps on and off. I can't tell you how much this helps. When you have weakness even turning on faucets is a big deal. So just a small tap to get water, that's great. This sounds like Sheldon off of Big bang, but make sure you have adhesive stickies in your bathtub. And grab bar on the side of the wall to make it easier to get in and out of the tub. We were fortunate enough to be able to put in a safety tub. No I don't like the way they look but boy do I really like having one. Being able to sit down do the weakness has been just great. Washing my hair is a whole other deal, it takes a while due to having to take breaks. If you can't afford the tub buy a small teak seat to place in your bathtub. That way you can sit down and take your time bathing or showering. When having difficulty getting up from a sitting position; I have considered purchasing a lift chair. On one hand it would make my life easier but on the other hand I would not use my leg muscles which in turn might cause muscle atrophy. This is something I'm just considering but have not gone through with yet. My point is making small changes in your home environment can make all the difference in the world when you have myasthenia. Am I rambling? I apologize. My thoughts are with everyone that is having a tough day. Remember you are a strong person and we'll get through this.

I, too, have suffered from extremely paint headaches since my Dx. What is the cause? The meds, prednisone, mestinon, the disease? I have them every day, all day long. It is wearing on me.

I have migraine headaches a lot and I'm told it's a side effect from the medications and not MG itself. Now, if you suffer from double vision. Double vision can cause headaches and the sensation of feeling off-balance (vertigo). I tend to get the biggest migraine after I undergo an IVIG treatment. My nurse informed me on how important it is to stay hydrated during and after that treatment. Since the medication is super thick and given at a high quantity, pressure builds up in the brain causing the headaches which would be a sign of dehydration. - Jazmin (MG team member)

Hi it can be a challenge to determine if MG is the direct cause of headaches. That being said, those in our community have mentioned experiencing headaches and migraines. If you don't mind me asking, have you discussed this with your doctor? We always recommend reaching out to one's physician with new or developing symptoms. I included an article on pain and MG, which touches on headaches - https://myasthenia-gravis.com/clinical/pain. Wishing you some relief. Kindly, Jessica, Myasthenia-Gravis.com Team Member