Feeling Overwhelmed
I have been diagnosed for 2 years now. On prednsione, mestonin and cellcept. gabapentin and nortriptyline, IVIG monthly. Leg fatigue during the day, restless legs at night. SO much fatigue.I go to bed at 6:30 pm, struggle to sleep all night... up with back and leg pain. Often sleep in the tub, I feel like giving up.
We all feel that way sometimes. Don't give up. So many people have it so much worse. Try taking a few short naps during the day, rather than spending a long night in bed. Sleeping in a recliner does wonders for my back and leg pain. Get lots of fresh air and as much sunshine as you can tolerate. After more than 15 years with MG, I can tell you that there are a hundred little techniques you will learn to make everything so much better.
Thanks for reaching out. This community is here to support each other. Sometimes the challenges of MG are nearly overwhelming and just connecting with others who truly understand helps. In my experience, some of the medications have fatigue as a negative side effect, so that may be the case also for you.
Hang in there. With good doctors monitoring your medications and making adjustments as necessarily things will get better.
