MG Medication and Navigating the "Donut Hole"I’ve been on mycophenolate mofetil (generic of CellCept) for myasthenia gravis (MG) for several years now. I’ve never had an issue with getting any of my medication, but this past... By Janice Koehn3 min readBookmark for laterReactions 0 reactions Comments4 comments
Avoiding New Diagnoses and Routine HealthcareI have a dilemma. I put my focus and energy into staying on top of my myasthenia gravis (MG) healthcare. But then consequently, I lose focus on other aspects of... By Jodi Enders4 min readBookmark for laterReactions 0 reactions Comments5 comments
I Can be Rebuilt: Cataract SurgeryAs a kid I remember watching TV shows about people being rebuilt bionically. Now here I am, cataract surgery in both eyes, getting shots in my lumbar and cervical spine... By Sally Farrier2 min readBookmark for laterReactions 0 reactions Comments0 comments
Inclusivity and Rare Diseases: 6 Things for Friends and Family to ConsiderEditor's Note: This article was written by Jessica Hanson and originally appeared on our partner site RareDisease.net. Social situations can be very difficult to navigate with a rare disease or... By Editorial Team 2 min readBookmark for laterReactions 0 reactions Comments0 comments
My Animal Testing Morals and Myasthenia Gravis: Finding PeaceAlmost everyone will require medical treatment at some point throughout life. But for those like me, who have strong values in support of a cruelty-free world, it creates a moral... By Jodi Enders3 min readBookmark for laterReactions 0 reactions Comments0 comments
The Challenges of Living Away from HomeI have myasthenia gravis (MG), and even though I’m partially confined to a wheelchair/power chair, I can still walk with the aid of a walker or rollator. I can also... By Janice Koehn3 min readBookmark for laterReactions 0 reactions Comments3 comments
Life Will Never Be the SameThere is no joy left in life for me with myasthenia gravis (MG). I know most people would read that sentence and think, hmm ... depression? No, it's not depression... By Sally Farrier2 min readBookmark for laterReactions 0 reactions Comments12 comments
Learning Everything I Can About Myasthenia GravisIn this guest post, Mike Stabile talks about how he has navigated the past few years since his myasthenia gravis (MG) diagnosis. After vowing to learn everything he could about... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments5 comments
Preparing for Winter Travel with MGTraveling anytime is trying at best, but winter travel can be quite challenging. I have done a lot of travel before and after my myasthenia gravis (MG) diagnosis. When we... By Janice Koehn4 min readBookmark for laterReactions 0 reactions Comments1 comments
My Favorite Activities: Trying Not to Let MG Hold Me BackSo many times, we have to give up some things we love or love to do when we are diagnosed with a life-altering disease like myasthenia gravis (MG). Well, I’m... By Janice Koehn3 min readBookmark for laterReactions 0 reactions Comments1 comments
Choosing Compassion When We Don't Know People’s IntentionsWith Thanksgiving approaching, I encourage you to welcome this season as a reevaluation period. Similar to the basics of "treating others how we wish to be treated," we want to... By Jodi Enders4 min readBookmark for laterReactions 0 reactions Comments7 comments
Feeling Better Versus Coping Better: How to Tell the DifferenceEditor’s Note: This article originally was written by Leanne Donaldson and shared by our partner site Psoriatic-Arthritis.com. Living with chronic illness, we are often evaluated on how well we are... By Editorial Team 4 min readBookmark for laterReactions 0 reactions Comments0 comments
My Experience with a Modified Barium SwallowI’ve had chewing and swallowing issues on and off for years. I was prescribed a modified barium swallow study (MBSS) so the doctors could figure out why I was choking... By Sally Farrier3 min readBookmark for laterReactions 0 reactions Comments6 comments
Will My Disability Benefits Change If My Diagnosis Changes?Getting approved for disability benefits from the US Social Security Administration (SSA) can take a lot of paperwork and patience. But you may be also wondering: What if my diagnosis... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments0 comments
Decision Fatigue: What It Is and a Few Ways to Get Past ItEditor’s Note: This article originally was written by Leanne Donaldson and shared by our partner site Psoriatic-Arthritis.com. I almost hesitate to bring up the f-word again. No, not that one... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments0 comments
MG Symptoms: I Shouldn't Need to Explain MyselfI have found that when it comes to describing myasthenia gravis (MG), there is no one good explanation for every person. Just like everyone with MG experiences symptoms differently, everyone... By Sally Farrier2 min readBookmark for laterReactions 0 reactions Comments3 comments
The Added Stress of Finding a New Neurologist for MGSince my husband’s recent fractured ankle and my pacemaker implantation and cardioversion, we have been staying at our youngest son’s home. He has been helping both of us with our... By Janice Koehn3 min readBookmark for laterReactions 0 reactions Comments0 comments
Is MG Causing Fatigue, Pain, and Knots in My Muscles?After a myasthenia gravis (MG) diagnosis, if not before, many of us experience pain in one way or another. Some experience joint pain, some headaches, and others experience muscle cramps... By Janice Koehn2 min readBookmark for laterReactions 0 reactions Comments1 comments
Not All MG Support Groups Are HelpfulI want to say how thankful I am for Myasthenia-Gravis.com and the way this community is run. I will admit that at times I have some controversial viewpoints. Sometimes I... By Sally Farrier3 min readBookmark for laterReactions 0 reactions Comments0 comments
Vitamins and Minerals I Prioritize with Myasthenia GravisMyasthenia gravis (MG) is not directly affected by diet. Certain foods can help mitigate some side effects from MG treatments, but diet will not cure MG. However, there are vital... By Jodi Enders4 min readBookmark for laterReactions 0 reactions Comments0 comments