Managing Flares by Listening to My Mind...What goes on in your head all day? If you’re like me, maybe you have a constant to-do list running in the...reactions1comment
Helping Others Understand Myasthenia Gravis...Being a member of a small minority might seem special. But when that minority represents individuals with a rare disease, the challenges are...reactions4comments
Frequently Asked Questions (FAQs) About Myasthenia Gravis...Whether you are living with myasthenia gravis (MG) or know someone who is, here is a guide to the basics of MG...reactionscomments
Health Resources...Living with a chronic health condition can be challenging, frustrating, and tiring. You might feel like your life is on hold. Frequent...
Workplace Considerations...Everyone deserves to be treated fairly at work, including people with chronic medical conditions or disabilities. It is not only the right...
Managing Healthcare Expenses...Managing a chronic health condition can take a financial toll on you and your family. Costs add up quickly from medicines, testing...
Disability Benefits...When you have a chronic medical condition, there may be times when you are not able to work. This can seriously affect...
Applying for Social Security Disability Benefits...Living with a chronic health condition may make working impossible at some point. Your symptoms can affect your ability to get your...
Myasthenia Gravis Diagnosis: Still Seeking Answers...We know that myasthenia gravis (MG) affects everyone differently. From the range and severity of symptoms to specific MG triggers, each person’s...reactionscomments
Sometimes We Need Someone to Listen...Sometimes we just need someone to listen, to be there. Not for offering advice. Not even for consoling us or providing encouragement...reactions4comments
Communications on the Job...With such a rare condition, do you ask for accommodations or do you simply endure? What accommodations can help you continue to...reactions2replies
The Need for Myasthenia Gravis Awareness: MG Awareness Month 2021...June marks Myasthenia Gravis Awareness Month. Together, it is time to bring awareness to how it feels to live with a rare...reactionscomments
Managing Flares by Listening to My Heart...The first few months after my myasthenia gravis (MG) diagnosis, I had to quit my job. My vision was consistently double and...reactionscomments
Considerations for Driving with Myasthenia Gravis...When the diverse symptoms of myasthenia gravis converge to a diagnosis, the many unknowns can be the hardest part. Chief among them...reactionscomments
Is There Such A Thing As Bulbar Myasthenia Gravis?...Myasthenia gravis (MG) can have wide-reaching effects on the body. This can lead to different symptoms and ways of classifying MG. One...reactions28comments
Take the Person Before Patient Survey...The Person Before Patient Survey is now closed. Thank you for your interest! What makes us the people we are? Living with...reactionscomments
Zach McCallum...When Zach was diagnosed with myasthenia gravis, he was already, as he puts it, “a professional sick person.” Thanks to a primary...
Twenty-Eight Years with MG...My symptoms leading up to a diagnosis of MG began while I was driving East on U S – 36 in Kansas...reactions3comments
Managing Flares by Listening to My Body...I am turning 30 this year, which has prompted me to start thinking about what I am taking away from my 20s...reactionscomments
Myasthenia Eyes and the Emotional Toll...The first symptom I experienced was the droopy eyelid. At first, I figured it was from the edema I had experienced for...reactions32comments
