Active todayEye Health: 3 Questions...Are vision changes caused by: MG, Steroid Use or Age Related ? or a combination of all three ? Has anyone ever met any Eye Doctor who REALLY knows about...reactions4repliesOcular MG
Active 3 days agoAcute MG Attacks...I have recently had my first MG acute attack. It started with weakness in my hands, which don't feel attached to my arms, and I am dropping everything. Next, there...reactionsreplies
Active 6 days agoMG with Shingles...Diagnosed over a year ago with Ocular which migrated to general MG around March of 2024. In March of this year i was diagnosed with Shingles off the lower left...reactionsreplies
ultimaris - Anyone taking it ? How do you feel after ...Hi i am due for my first infusion. What are the side effects ? Any idea ? can i go to work the next day or will this hit me...reactionsreplies
Has anyone here experienced Myasthenia Gravis or is currently managing it? What symptoms did you notice first, and what treatment or lifestyle changes helped you the most?...Myasthenia Gravis is a rare autoimmune neuromuscular disorder that causes muscle weakness, often starting with drooping eyelids, double vision, or difficulty in speaking, chewing, or swallowing. The symptoms usually worsen...reactionsrepliesAwareness
Active 8 days agoNeurologist concerns? I have them....I'm frustrated. I was diagnosed with MG 2 years ago when I was beginning a crisis. My eye drooping and double vision perplexed the best of them til my ophthalmologist...reactions5repliesGeneralized MGMuscle WeaknessSymptoms
Actively Recruiting Myasthenia Gravis Clinical Trials...Key Takeaways: Several clinical trials are currently enrolling participants with generalized myasthenia gravis (gMG) and ocular myasthenia gravis (OMG), exploring various mechanisms of action. These include studies evaluating new complement...reactionscomments
Differential Diagnosis of Myasthenia Gravis: Ruling Out Mimickers...Key Takeaways: While the hallmark symptoms of myasthenia gravis (MG) are fatigue and weakness, often affecting ocular, bulbar, facial, and limb muscles, a thorough differential diagnosis is crucial to ensure...reactionscomments
Myasthenia Gravis: The Road to Individualized Treatment...Key Takeaways: Myasthenia gravis (MG) is a chronic autoimmune neuromuscular disorder characterized by muscle weakness and fatigue that worsens after activity and improves with rest. The underlying pathology involves autoantibodies...reactionscomments
Vaccinations and Myasthenia Gravis: Current Recommendations...Key Takeaways: Vaccination is a critical aspect of healthcare for all individuals, and it holds particular importance for patients with myasthenia gravis (MG). Due to potential immunosuppression from its treatments...reactionscomments
I feel horrible - maybe detoxing system ?...Hi everyone, Like the title said, I need advice and or opinions in regards to my recent journey with MG medicines. Been on steroids for 6 months, not much progress...reactions1reply
Active todayChange in Symptoms...Hello. I have generalized MG for the past 1 1/2 years. For the past 2 months, I get overheated VERY easily from just getting dressed in the morning to walking...reactions1replyCoping
Unusual symptom?...I was finally diagnosed with a muscle disease/disorder, non-specific, about 5 years ago after going to the neurologist for over 10 years. I have the muscle weakness, pain, double vision...reactions3repliesGeneralized MG
Active 3 days agored blotchy skin color after 5 days of ivig infusion...Did not have this symptom during the week of infusion, but today I am seeing this on my legs and arms. Any comments?...reactions5replies
Active 3 days agoIVIG Infusion for 5 days straight...That was a long week. Anyone have symptoms of yellow/brown colored urine after the 5 days of IVIG Infusion ? How to stay hydrated when MG seems to cause frequent...reactionsreplies
How long before you were diagnosed?...Hello, I am newly diagnosed and new to this forum. I started having double vision & a droopy eyelid in mid February and was diagnosed with MG 2-3 weeks later...reactions4repliesNewly DiagnosedTreatmentTips & Advice
Just had 1st ivig infusion-any success stories?...Hello, I am newly diagnosed with MG (2 months ago), neuro put me on pyridostigmine right away. It took about 2 weeks to start working and whether coincidental or not...reactions2repliesAutoimmune Diseases
Vyvgart Hytrulo journey...I want to start a thread to post my experience with Vyvgart Hytrulo as a treatment for gMG. It is not easy to get an understanding of what is required...reactions8repliesGeneralized MGAutoimmune Diseases
Active 4 days agoivig infusion and back surgery...I start IVIG Infusion on Monday 14, 2025. Five straight days then followed by "maintenance days" of IVIG. During the "maintenance days" , has anyone had back surgery ? How...reactions2repliesSurgery
