Ways I Save Energy Around the House With Myasthenia Gravis...Living with Myasthenia Gravis has forced me to look at energy differently. Before MG, energy felt endless or at least predictable. Now...reactionscomments
Your gMG treatment: time for something different? ...Your journey with generalized myasthenia gravis is uniquely yours. Symptoms may shift, needs may change, and what once worked may not anymore...
When Exercise Begins in Bed...We hear it all the time: movement is good for us. Doctors recommend it. Physical therapists encourage it. Research continues to highlight...reactions1comment
Am I Glad I Got MG? Maybe......I had a life. I was healthy, the kids had grown up and moved on, and I had just retired and really...reactions1comment
Community Health Leaders...In order to stay up to date on latest treatments, drug discovery, clinical studies and how to cope with myasthenia gravis every...
Stefani Shea-Akers...Stefanie Shea-Akers lives with her husband of 20 years and two cats in central California. She has BA and MA degrees in...
Meridith O'Connor...Meridith was previously a health leader on Myasthenia-Gravis.com. Meridith O’Connor is a patient advocacy specialist dedicated to unveiling the value of the...
Trying a New Infusion Treatment: My Experience...When I started a new infusion treatment for MG, I was excited to contribute my personal data to an ongoing research study...reactionscomments
Old Symptoms, New Treatment: My Experience With Prepping for Ultomiris...When I started my Ultomiris treatments in 2023, I’d kind of reached the end of my hope for remission and had begun...reactions27comments
Newly Diagnosed: Navigating Your First Myasthenia Gravis Treatment Steps...The days and weeks following a generalized Myasthenia Gravis (gMG) diagnosis can feel like a whirlwind. Between processing the news and sitting...reactionscomments
Considering Advanced Therapy: Evaluating the Next Step in Your MG Journey...When standard first-line therapies like Mestinon or steroids aren't providing enough symptom control, the conversation shifts toward advanced therapies, such as targeted...reactionscomments
Recently Starting Advanced Therapy: Realities of the First Months...Making the final leap to start an advanced gMG therapy—whether it's an IV infusion or a subcutaneous injection—is a psychological milestone. The...reactionscomments
Established on Treatment: Long-Term Management & The Choice to Switch...Being established on a gMG plan requires a balancing act of daily symptom tracking, medication management, and routine check-ins. But stability can...reactions3comments
Reclaiming Your Freedom: Modern Ways to Get Myasthenia Gravis Treatment...Living with myasthenia gravis (MG) often means planning your whole life around treatment. For many people, that has meant long trips to...reactionscomments
Other Autoimmune Diseases and Myasthenia Gravis...Myasthenia gravis (MG) is an autoimmune disease. This means that the body’s immune system can no longer tell the difference between healthy...
The Real Measure of a gMG Treatment Discussion Isn't What Your Doctor Says: It's What You Take Home...There is immense value when a neurologist takes the time to explain complex options clearly and understandably. But we know that clinical...reactionscomments
Unpredictable Fatigue With Myasthenia Gravis...One of the hardest parts of dealing with myasthenia gravis (MG) is fatigue. Especially never knowing when it's going to hit or...reactions39comments
I'm Lost...I was diagnosed with MG during a hospital visit based on muscle weakness, difficulty breathing, and overall discomfort. After 10 days in...reactions1comment
Ocular MG...I have recently been diagnosed with ocular MG. I've had double vision in my left eye since I've been 40. I am...reactions2comments
Speaking Out for Myasthenia Gravis...What does awareness mean to me? Awareness is knowledge. If you have experienced something, then you at least have a basic knowledge of...reactionscomments
