Active todayWhat are the early symptoms of Myasthenia Gravis, and how can they be managed effectively?...Myasthenia Gravis (MG) often begins with symptoms that may seem mild but can gradually worsen. Early signs include muscle weakness, especially in the eyes, face, and throat, which may cause...Reactions0reactionsComments0 repliesSymptomsCaregivingAwareness
Daily Life with MG: Perception Versus Reality...In order to spread awareness about myasthenia gravis (MG), I think it's essential to delve into the perception of MG versus the reality and shed light on the everyday lives... By Deborah Vick3 min readBookmark for laterReactions0reactionsComments0 comments
Active 2 days agoWhat is the most effective treatment for MG!...Got diagnosed 5 months ago and was started on 1 tablet of Pyridostigmine a day & now taking 4 tablets daily with 20mg of steroids which has given me severe...Reactions0reactionsComments1 repliesCoping
The Exhaustion of Caregiving...I have myasthenia gravis (MG) and over the past year I have been a caregiver to my husband throughout several illnesses, which included taking care of him while he was... By Janice Koehn4 min readBookmark for laterReactions0reactionsComments0 comments
Active 7 days agoStress ...Some one was asking what I'm on. for treatment. I'm on Restiggo. Once a week for 6 weeks, then 4 weeks off. I had 2 round of that. I was...Reactions0reactionsComments0 replies
Active 7 days agoImmunizations and MG...Has anyone noticed that Immunizations make their MG symptoms worse. My OMG has seemed worse after a Shingles, Flu and Covid shot. Covid the worst....Reactions0reactionsComments2 repliesSymptoms
New diagnosis with double vision ...Tried mestinon twice for 3-4 weeks with no improvement. I will see a neuro muscular specialist soon and wondering what others have tried when mestinon did not help...Reactions0reactionsComments0 repliesNewly DiagnosedTips & Advice
Plasmapheresis...I had the full gambit, the eight day program. I know it is supposed to make you feel like a new person, but, in my case I went down the...Reactions0reactionsComments0 repliesGeneralized MG
Test results...I’ve read that even low-level ACHR test results which labs record as a negative result should equate to an MG diagnosis (I assume especially if there are symptoms), since normal...Reactions0reactionsComments1 replies
Exotropia with ocular MG...I've been diagnosed with ocular MG. Symptoms include double vision but also intermittent exotropia in both eyes. Does anyone else suffer from exotropia? I was previously scheduled to have eye...Reactions0reactionsComments0 replies
The Challenge of Understanding What Triggers MG...Since my myasthenia gravis (MG) first manifested 4 years ago, I’ve tried to wrap my head around how it started, and since then, what repeatedly causes my flare-ups or exacerbations... By Mike Stabile3 min readBookmark for laterReactions0reactionsComments13 comments
necessary medication ...I’m taking 1000 mg of cellcept a day down from 2000 mg. My symptoms are gone. I was on 5 mg of prednisone for several months but went down to...Reactions0reactionsComments1 repliesTreatment
I can’t talk for myself but I will tell you a true fact ...As you may or may not know but I’m from Sydney Australia & this is my story or should I say a fellow MGer, I met this friend in Hospital...Reactions0reactionsComments0 repliesTips & AdviceCopingAutoimmune Diseases
Country of Origin ...I’m from Australia & an MGer, having suffered from this dreaded disease for 13yrs that I know of because I had different reactions to MG from being told I was...Reactions0reactionsComments1 replies
Have you tried Oxymetazoline hydrochloride eye drops for your ptosis (eyelid droop)?...Has your doctor had you try Oxymetazoline hydrochloride eye drops for your ptosis (eyelid droop)? Did it help?...Reactions0reactionsComments0 repliesDrivingOcular MGTreatment
Active yesterdayPlasmapheresis and IVIG...I was 91 years when I was diagnosed with MG. Since then I have been treated with the usual oral meds including prednisone, mestinon, mycophenolate mofetil and infusions of Soliris...Reactions0reactionsComments10 repliesTreatmentCoping
Switching MG Treatment Brands...Have you had to switch MG treatment brands before, possibly due to insurance or shortages? Did this result in any adverse reactions or problems?...Reactions0reactionsComments0 repliesTreatmentTips & AdviceTriggers
Insurance Companies and MG...Are there specific insurance companies you have had good or bad experiences with regarding getting MG treatments?...Reactions0reactionsComments0 repliesInsurance & DisabilityTreatmentCost
Has anyone been affected by the recent two hurricanes in Florida?...Has anyone been affected by the recent two hurricanes in Florida? Has it resulted in any MG-related concerns?...Reactions0reactionsComments0 repliesTreatmentSymptomsWeather
Active 7 days agoIntravenous immunoglobulin treatment (IVIG) ...Intravenous immunoglobulin (IVIG) is a treatment option for many people with autoimmune diseases. IVIG can be a treatment for myasthenia gravis (MG). Have you ever gotten IVIG before? If so...Reactions0reactionsComments21 repliesTips & AdviceTreatment
