Active todayReturn of diplopia ...When I was diagnosed 10 years ago, my initial symptom was first "scrambled" vision then double. It cleared very quickly (2-3 days) during my 5 day hospital stay. I've been...reactionsrepliesVision
Active yesterdaydealing with creeping depression ...Hello everyone I am recently diagnosed with Myasthenia and am finding it increasingly difficult to cope mentally. In 6 months I've gone from being fairly active, living a stressful but...reactionsreplies
Active yesterdayBranded medication ...Hello, is there any documentation regarding the effects of different drug brands in myasthenia patients?...reactionsreplies
Active 5 days agoIts Been A While...Silly question, for my MG treatment my doctor has me on a temporary high dose of Predisone in and effort to bring my MG under better control as he put...reactions1replyTreatment
Ear Pain...Has anyone experienced ear pain. The pain is not like an ear ache. It’s more like the outer part of your ear. My ENT Has treated it with drops and...reactionsrepliesTriggersAutoimmune Diseases
Drinking alcohol...Experience in drinking alcohol on pyridiostigmine ER. Doctor said it was fine, however internet says do NOT. I had a glass of wine and my lips and tounge swelled and...reactionsrepliesSymptoms
transistion from oral tabs to extended release - ...just transitioned to ER tabs instead of oral but still 180mg a day. My lower lip is numb and difficulty ennunciating words. Could it be this is too much medicine?...reactionsrepliesSpeech
What about portable oxygen if I have a breathing episode?...I was wondering if there is some kind of canned oxygen like athletes use that I can use when I travel, and if it would help if I get out...reactionsrepliesTips & Advice
Excessive sweating (Hyperhidrosis)...I've been having a somewhat embarrassing problem. I've always sweated rather heavily when exercising, but since developing MG it's gone to ridiculous extremes. For example, if I'm wearing a cap...reactionsrepliesExerciseWeatherSymptoms
How to Thrive With Myasthenia Gravis: Building Community, Practicing Mindfulness, and Empowering Yourself...Community, to me, isn’t about everyone agreeing or seeing eye to eye on everything. It’s about finding common ground, something that unites us even when we have different perspectives or...reactionscomments
Travel Considerations...My best friend is 87 y.o. He wants me to do a cruise with him on a 160 passenger ship to Antartica. I have been diagnosed with MG since last...reactions4repliesAwarenessGeneralized MGTravel
I find doing things in the morning are a lot easier than later in the day....I was diagnosed two years ago at 70 but looking back I now realize I had symptoms about 2 years prior but didn’t understand what I was experiencing. I did...reactions3replies
Azathioprine...Does anyone take this medication? The side effects scare me but prednisone makes me super crazy and my blood sugars are through the roof. I am newly diagnosed with Seropositive...reactionsrepliesTreatmentTravelNewly Diagnosed
Ocular MG...I have just been diagnosed with Ocular MG, effects my eyes (double vision) and balance. Anyone ever heard of this or has this. I am being told there is nothing...reactionsreplies
Getting a handle on MG (or trying)...I have been having fairly frequent flairs, due to stress, summer heat, and just too much exertion. And I have to admit I have gotten a little depressed about that...reactionsrepliesTreatmentCopingSymptoms
Can glaucoma surgery and cataract removal be done at the same time, and why would that be beneficial?...Yes, in certain cases, glaucoma surgery and cataract removal can be performed together in a single procedure. This approach can help lower eye pressure while also restoring clarity of vision...reactionsrepliesTips & Advice
Walking problems ...First thing upon rising in the morning I have ability to walk for a few minutes then weakness in my legs sets in and I can no longer walk and...reactionsreplies
Vyvgart Injections...Hello Everyone, Just finished the, Once - a - Week for 4 weeks Injections and waiting for the Maintenance Injections coming up. Do not feel like the Vyvgart has helped...reactions2replies
Should I try to continue hunting...I grew up hunting. It’s an activity I love and and last year my son has gotten into it and we had a successful hunt last fall. But I was...reactions3repliesCoping
Initial Treatent Experiences...As I said in my first post yesterday, I am so thankful for my family doctor. He did not know what was wrong with me, but he did not let...reactions2repliesMuscle WeaknessCopingNewly Diagnosed
