Active yesterdayrunny nose...I don't have a cold or sinus or allergies. I'm in year one of MG and my nose will not stop running and sneezing often. Drip drip drip my nose...reactions2replies
Active yesterdayWhat are the early signs of glaucoma, and can a regular optician spot them?...Glaucoma is often called the "silent thief of sight" because it typically develops slowly and without noticeable symptoms in the early stages. Some early signs, when they do appear, may...reactionsrepliesSide Effects
Active 3 days agoVYVGART?...I started Vivgart infusions on May 5, 2025 and I’m still taking 10 mg Prednisone & 2,000 mg mycophenolate per day. Pyridostigmine is as needed and take about 1 x...reactionsreplies
Active 3 days agoExercizing...What can you do to help with legs being heavy, weak and exhausted....reactions1reply
Active 3 days agoThe bladder and myasthenia connection ...Can you please repost the talk about myasthenia and the bladder. It was deleted too quickly. Thank you...reactions1reply
Active 3 days ago"Wrong" Diagnosis for Years?...I was Dx for MG last year. Yet, twice since 2008, I had extreme fatigue and was sent to 2 different Rheumatologists, who thought I had something called PMR. Bloodwork...reactions1reply
I V ports...I had a port put in yesterday as I am a hard stick. I was wondering what kind of experience people have had with ports?...reactionsreplies
CAR T Cell therapy or UCAR T cell therapy...My family member has been diagnosed with MG. It's been refractory to the first 4 infusions. He has the opportunity to enter a CAR T cell study , but really...reactionsrepliesTreatmentRefractory MGHealthcare Team
Hear+Now: An AI-Powered Audio Digest - The Importance of Vaccinations for MG Patients...Vaccinations play a critical role in safeguarding the health of individuals with Myasthenia Gravis (MG). Due to their compromised immune systems, often exacerbated by immunosuppressive therapies, MG patients face heightened...reactionscomments
Cold water therapy ...I have recently started cold water therapy in our plunge pool.( It's winter here). I actually have a positive response after i get out of the pool. I feel rejuvinated...reactionsreplies
Do positive blood tests later show no sign of gMG?...My neurologist keeps saying that now that my antibody blood test shows no antibodies, that she is stopping Vyvgart. This is after 3 positive blood tests that kept getting worse...reactions1replyGeneralized MG
Newly Diagnosed OMG...I initially just had Ptosis, e which began in January of this year. My 16 and a half year old heart dog had just passed away and I had been...reactionsrepliesOcular MG
Severe Back Pain ...I am considering going to a physiatrist to get a steroid injection in my spine. Has anyone had any such injections and what was your experience if you don't mind...reactionsreplies
Myasthenia-gravis ...I have not been diagnosed with OMG but I have read a lot about this condition after suffering from Bell's Palsy, I had double vision and drooping eyelids, loss of...reactions2repliesDrivingAutoimmune Diseases
Micro cap mushrooms for better face control on MG...I have had MG for 18 months. I am a 70 year old male. On cellcept, Mestinon and recently stopped taking a 5mg steroid. Get IVIG treatment (4+ hours) monthly...reactionsreplies
Active yesterdayOccular MG...My eye lid started drooping one week ago and my other eye double vision. My blood pressure went very high so the ER first assumption was a stroke did ct...reactions4repliesAutoimmune DiseasesNewly DiagnosedOcular MG
Summer ...Hi everyone, I got diagnosed last fall and this is my first summer in Northern Nevada with MG. Heat Intolerance and trouble breathing is one of the problems you all...reactionsrepliesAwareness
Assessing MG Patients’ Meningococcal Vaccine Status...Key Takeaways:Myasthenia gravis (MG) is a chronic autoimmune neuromuscular disease characterized by fluctuating weakness of voluntary muscles. Management often involves immunosuppressive therapies to modulate the autoimmune response. While these treatments...reactionscomments
Managing MG in Special Populations: Children, Pregnant People, and the Elderly...Key Takeaways:Myasthenia gravis (MG) is a chronic autoimmune neuromuscular disease characterized by fluctuating muscle weakness and fatigue. MG can affect people of any age. But its presentation, diagnosis, and management...reactionscomments
Active 4 days agoAdvice/comments for new MG diagnosis and possible treatments...This is quite long, but if you have time and can share any thoughts, I would be very appreciative. New MG diagnosis and would like some opinions on doctor's advice...reactions5repliesGeneralized MGNewly DiagnosedTips & Advice
