Advocating and making changes in the diagnosis and treatment of Myasthenia Gravis ...I'm feeling like advocating more for Myasthenia Gravis Awareness and Understanding. Without our contributions to research, community outreach. Educating others and the medical field of what our life is like...Reactions0reactionsComments3 repliesAwarenessResearch & Clinical TrialsDiagnosis
Editorial Team...The Editorial Team works with its Medical Review Board and experienced medical writers to provide Health Union's Community Team with reliable, easy-to-understand information about a host of chronic health conditions...
Tinnitus...I have tinnitus which coincidentally started about the same time my other neurological issues did. Have others had this same problem and if so, has your neurologist said it was...Reactions0reactionsComments10 repliesSymptomsDiagnosis
Community Team...Welcome to Health Union's Community Team. Our Community Team is made up of a diverse group of employees of Health Union who bring you engaging, accurate information about living with...
Sudden movement risks...My symptoms appear to be mild most of the time until I make a sudden movement - either stopping, turning, reaching quickly, etc. It is then that I may fall...Reactions0reactionsComments12 repliesGeneralized MGSymptoms
My Experience Taking Mycophenolate Mofetil (CellCept)...Just after getting diagnosed with myasthenia gravis, I started taking Mestinon. It quickly made an amazing difference. A few months later, I started into an exacerbation, so my neurologist started...Reactions0reactionsComments6 comments
Sorting out MG and non MG symptoms - balance vs. weakness...context: my diagnosis is only tentative seronegative - but I have had classic MG-type symptoms for over 20 years with no meds prescribed so far. In an effort to better...Reactions0reactionsComments6 repliesMuscle WeaknessSeronegativeTriggers
Managing Vision Issues...For some reason, double vision is the hardest symptom for me to manage. I say double-vision, but for me it’s more like an intoxicated vision after drinking. It’s been quite...Reactions0reactionsComments27 comments
Active todayWhat Test(s) Were Used to Diagnose Your MG?...What tests did doctors run to diagnose your MG? Were imaging and bloodwork involved in your diagnosis?...Reactions0reactionsComments24 repliesSymptomsNewly DiagnosedDiagnosis
Home Cleaning Aids...Cleaning your home can be extremely tiring and difficult when living with myasthenia gravis (MG). This is true for me, even when I feel great. What can people living with...Reactions0reactionsComments1 comments
toll prednisone took on my body...I have a big round face, big neck, weight gain and round torso, just cut back over 3 months and now off of it. too early to see what will...Reactions0reactionsComments2 repliesGeneralized MG
Making Self-Care a Priority...I’ve had myasthenia gravis for almost 10 years now. I can’t believe I’m even typing that. It feels surreal to think back on how much I’ve learned since I was...Reactions0reactionsComments11 comments
Just when you think you are safe......It's been almost 3 years since hubby has had a crisis. He took his meds, avoided infections, and improved steadily. Then one day last week MG came out of the...Reactions0reactionsComments0 comments
Advice about antibiotics ...I was diagnosed with MG in Feb '22, as a result of double vision and droopy eyelids. Luckily only misdiagnosed briefly as 3rd cranial nerve palsy before getting corrected diagnosis...Reactions0reactionsComments2 repliesNewly Diagnosed
Choosing a Wheelchair, Power Chair, or Mobility Scooter...You’ve checked with your insurance about what durable equipment and mobility aids they will cover for myasthenia gravis (MG). You’ve discussed your needs with your physician. You’ve ruled out walkers...Reactions0reactionsComments0 comments
Newly diagnosed ...Started treatment this week for mg 4 x half pyridostigmine but only slight change...is this normal? Also im in the UK and would love to connect with others as I...Reactions0reactionsComments6 replies
Firing My Neurologist...I wrote an article called "My Experience with Doctors and Misdiagnoses" where I talked about how I finally got to meet with a neurologist who was able to figure out...Reactions0reactionsComments0 comments
Obtaining a Mobility Aid and What One to Choose...A mobility aid is a piece of equipment or device designed to help you walk when your mobility is impaired, temporarily or permanently or to provide other means of mobility...Reactions0reactionsComments0 comments
The Process of Getting a Handicap Placard...If you have trouble walking due to myasthenia gravis and haven’t gotten a handicap placard or license plate, you may want to at least think about it. You can get...Reactions0reactionsComments8 comments
Deborah Vick...Deborah Vick is driven by her passion to create inclusive communities for people of ALL abilities, with special emphasis on equitable medical care, access to education, and life’s basic necessities...
