MG and going to the dentist...I have MG and I am scared to get my mouth numbed up at the dentist. Does a person with MG do ok with this?...Reactions0reactionsComments5 repliesCoping
Frustration...So after being told that I was in remission and being encouraged to cease my mycophenolate which I was not comfortable with I now find out through new blood tests...Reactions0reactionsComments1 replies
Thankful, Grateful...I was diagnosed in 1974 with this disease. I had double vision and was very weak in my arms. I fell down the steps going out the front door with... By CommunityMember12361 min readBookmark for laterReactions0reactionsComments2 comments
MG Warrior...I am alone! No one understands what it's like for me. There's that deep pain inside, I just want to cry! The feeling is there and I just want to... By Sally Farrier2 min readBookmark for laterReactions0reactionsComments12 comments
Dressing Aids...Myasthenia gravis (MG) causes some of us to feel fatigued all or most of the time. So how do we manage our daily hygiene and getting dressed for the day?... By Janice Koehn3 min readBookmark for laterReactions0reactionsComments6 comments
Can You Donate Blood With Myasthenia Gravis?...Donating blood helps people in local hospitals who need blood transfusions. It benefits people who have lost blood from transplants or surgery. It also helps people who cannot make enough... By Editorial Team 3 min readBookmark for laterReactions0reactionsComments1 comments
I've bee n prescribed CellCept...Anyone out there using cellcept now who can give me some information, etc??? Reading about all the possible side effects is lots of fun, if you know what I mean!...Reactions0reactionsComments3 repliesAutoimmune DiseasesGeneralized MGAwareness
First Symptoms...What were the first MG symptoms you experienced? How long did they persist before you were diagnosed? How long until you felt you possibly had something serious? - Jodi, Team...Reactions0reactionsComments11 repliesSymptomsDiagnosisAwareness
An MG Marriage...My husband didn’t marry me when I was sick. He had no idea what was in store for his or our future when he got down on one knee and... By Mallory San Nicolas4 min readBookmark for laterReactions0reactionsComments3 comments
My Thymectomy and Me...It was January 2021, a new year. My first neurologist appointment of the year, my doctor and I decided that the next step was a thymectomy surgery. I was a... By Shelbie Brown4 min readBookmark for laterReactions0reactionsComments21 comments
Eculizimab treatment in seronegative Mg...Hello there! I am writing this article via translation. So there may be mistakes in my explanation, sorry.. I live in Istanbul, Turkey. I am 42 years old female and...Reactions0reactionsComments0 replies
Bathing Tips for MG...One of my biggest problems with range of motion is using my left arm due to pain from the left side of my neck, shoulder, and upper back that radiates... By Janice Koehn2 min readBookmark for laterReactions0reactionsComments0 comments
Been ghosted by my neuro's PA...Early this year, just before I got my monthly shot in the eye, I mentioned to my retina specialist that my left eye would suddenly go droopy and I would...Reactions0reactionsComments5 repliesNewly DiagnosedHealthcare TeamTreatment
What Qualities Should I Look for in a Doctor?...The path to a myasthenia gravis (MG) diagnosis can be exhausting, but finding the right doctor can make a huge impact. We had the opportunity to hear from our patient... By Editorial Team 2 min readBookmark for laterReactions0reactionsComments12 comments
Antibody Blood Test Timing...Are blood test results affected by the timing of an antibody blood test draw with the immediate level of Myasthenia symptoms?...Reactions0reactionsComments2 replies
Myasthenia what? ...I have been dealing with chronic Lyme disease for several years and have had different types of pain so I thought the weakness in the left side of my mouth...Reactions0reactionsComments6 replies
Two Steps Forward, One Step Back ... the MG Dance...Myasthenia gravis (MG) is sometimes a little like Lucy and the football. You make careful life changes, modify your goals, take your meds, follow doctors’ orders, and symptoms seem to... By Juliana Texley3 min readBookmark for laterReactions0reactionsComments5 comments
infusions...I have had 3 infusions of oxidam. How long until see improvements?...Reactions0reactionsComments3 replies
What Now?...I am so frustrated, I'm not quite sure what to do! It already took 48 years to get a diagnosis of myasthenia gravis (MG) - the entire time there were... By Sally Farrier2 min readBookmark for laterReactions0reactionsComments5 comments
Diagnosed During A Pandemic...March of 2020, the country shut down. And at the end of that month, it seemed like so did my body? I began to have a slight eyelid droop for... By Shelbie Brown3 min readBookmark for laterReactions0reactionsComments7 comments