What I Didn't Know...I submitted a story in January about being angry and sad due to losing my independence. I mentioned I read everything I...reactions9comments
Equivocal Result on MG blood test...Hi everyone. I have not been diagnosed with anything as of yet but I certainly have something I'm going through and wanted...reactions4repliesSymptoms
NEW APPROVED MG TREATMENT for Gmg - Vyvgart Hytrulo...Super exciting!! The FDA has just approved Argenx’s subcutaneous injection (given in the fatty tissue just under the skin) formulation of efgartigimod...reactions3repliesTreatmentGeneralized MGSymptoms
Recent positive MG blood test ...Hi, i received a letter from the hospital last night confirming that i had tested positive from a blood test for MG...reactions3repliesOcular MGNewly DiagnosedTips & Advice
Muscle Weakness with MG...I have found that after having a thymectomy to remove a thymoma going to the gym four days a week and using...reactions5replies
Has anyone had this problem?...Hi, my name is Suzie, I have been diagnosed with MuSk myasthenia gravis 3 months ago. Last Thursday I went to the...reactions8replies
Heat and MG...I had a thymectomy to remove a thymoma back in April 2021 and have been in remission for nearly three years. I...reactions5replies
Burning pain/muscle weakness...Hello. Been suffering from a weakness that progressed over years from mild to disabling. The weakness is like the muscles just don't...reactions22repliesGeneralized MGAwareness
Exhaustion?...Hi, I'm not (yet?) diagnosed with MG, but I have a strong suspicion, and my doctor does too and is currently doing...reactions3repliesMuscle WeaknessSymptoms
Still not diagnosed but Dr started me on mestinon........I have not officially been diagnosed. Waiting on labs. But because of symptoms, the Doctor started me on Mestinon. It seemed to...reactions8replies
Eyepatch Usage...I'm fairly new to living with MG (it's been about three months since my diagnosis) and I was curious if others with...reactions3repliesDrivingOcular MGVision
Pyridostigmine (Mestinon) Shortage in UK...You may be among the many frantic over the pyridostigmine (mestinon) shortage in the United Kingdom. --- How has this affected you?...reactions1replyTriggersTreatmentCrisis
How Do I Make My Outdoor Space Power Chair-Friendly?...I don’t let myasthenia gravis (MG) stop me from being outside and enjoying the things I love. But how do I make...reactionscomments
Myasthenia Flare?...I currently have ocular myasthenia. Thursday I ended up at the ER. My mouth was moving weird, my vision impaired, difficulty swallowing...reactions2repliesDiagnosis
Could I have this disease?...I'm almost 56 years old and lately I have little to no energy, I've always been energetic some shortness of breath should...reactions3repliesAutoimmune Diseases
What MG Muscle Weakness Feels Like...Myasthenia gravis (MG) is an autoimmune disease that causes muscle weakness. But what exactly does muscle weakness feel like? To understand more...reactions56comments
CellCept From My Standpoint...I have been on CellCept® (mycophenolate mofetil) for 2 and a half years since my myasthenia gravis (MG) diagnosis. I am sharing...reactions12comments
Autoimmune Conditions Common With MG..."Like many other autoimmune conditions, research shows that people who develop MG may have inherited genes that make them more likely to...reactions24repliesDiagnosisAutoimmune DiseasesResearch & Clinical Trials
Heart Issues...I am wondering if anyone else with MG has experienced any heart related issues. Recently my doctor found an abnormality in my...reactions12repliesSymptoms
Steps Towards Making the Bedroom MG-Friendly...Many myasthenia gravis (MG) sufferers complain of insomnia or difficulty sleeping. For a while after my diagnosis, I had several MG symptoms...reactions2comments
