I Hate It, I Hate It, I Hate It!...I'm a bit frustrated right now. I'm hoping some of you can help me! I'm going to give some examples of why I hate myasthenia gravis (MG). I'm a pretty... By Sally Farrier2 min readBookmark for laterReactions0reactionsComments9 comments
Highest Steroid Dose You’ve Been Prescribed...What is the highest steroid dose you have been prescribed for Myasthenia symptoms? Did a doctor order this after you were in a crisis or significant flare? Have you been...Reactions0reactionsComments19 repliesTreatmentCrisisSymptoms
gMG and Me...The exhaustion started at age 30. I was waitressing and walking/hiking four days a week. One day bang I could not get up off the couch. It lasted three months... By CommunityMember2694 min readBookmark for laterReactions0reactionsComments3 comments
Independent Living Aids for Cooking and Eating...Many of us with myasthenia gravis suffer with varying degrees of weakness and pain. Activities most people take advantage of are more difficult for us. Whether you love to cook... By Janice Koehn4 min readBookmark for laterReactions0reactionsComments1 comments
Recovering from Crisis and......Hi, I’m a 54-year-old Canadian woman who was scheduled for bariatric surgery at the beginning of September…. I was discharged after being in the neuro unit for a week because... By Sdlarter1 min readBookmark for laterReactions0reactionsComments13 comments
My Dream of Becoming A Doctor...I was diagnosed 6 years after the onset of my symptoms. Two months before of my medical entrance test, my condition suddenly got so bad that I ran out of... By tina1 min readBookmark for laterReactions0reactionsComments1 comments
Planning for the Party...The days are getting shorter. Families and friends will be getting together for picnics and end-of-season celebrations. The continuing threat of COVID makes the option of outdoor social events more... By Juliana Texley3 min readBookmark for laterReactions0reactionsComments2 comments
Pregnant with MG...Hello everyone, I've been away for quite some time now and that is due to the fact that I found out me and my hubby are expecting our 3rd child...Reactions0reactionsComments4 repliesGeneralized MGTips & Advice
Medical Review Board...The Health Union Medical Review Board is made up of board-certified healthcare professionals with extensive experience in their respective fields. They review and ensure that our content is accurate and... By Editorial Team 6 min readBookmark for later
Thanks to Social Media, I Met a Friend With MG in Person...After 24 hours in the hospital for slurred speech, a drooping eye, double vision, and overall weakness, I had all clear tests. My frustration was rising with nurses about why... By Jodi Enders3 min readBookmark for laterReactions0reactionsComments2 comments
Advocating and making changes in the diagnosis and treatment of Myasthenia Gravis ...I'm feeling like advocating more for Myasthenia Gravis Awareness and Understanding. Without our contributions to research, community outreach. Educating others and the medical field of what our life is like...Reactions0reactionsComments3 repliesAwarenessResearch & Clinical TrialsDiagnosis
Editorial Team...The Editorial Team works with its Medical Review Board and experienced medical writers to provide Health Union's Community Team with reliable, easy-to-understand information about a host of chronic health conditions... By Editorial Team 7 min readBookmark for later
Tinnitus...I have tinnitus which coincidentally started about the same time my other neurological issues did. Have others had this same problem and if so, has your neurologist said it was...Reactions0reactionsComments10 repliesSymptomsDiagnosis
Community Team...Welcome to Health Union's Community Team. Our Community Team is made up of a diverse group of employees of Health Union who bring you engaging, accurate information about living with... By Editorial Team 2 min readBookmark for later
Sudden movement risks...My symptoms appear to be mild most of the time until I make a sudden movement - either stopping, turning, reaching quickly, etc. It is then that I may fall...Reactions0reactionsComments12 repliesGeneralized MGSymptoms
My Experience Taking Mycophenolate Mofetil (CellCept)...Just after getting diagnosed with myasthenia gravis, I started taking Mestinon. It quickly made an amazing difference. A few months later, I started into an exacerbation, so my neurologist started... By Sally Farrier2 min readBookmark for laterReactions0reactionsComments6 comments
Sorting out MG and non MG symptoms - balance vs. weakness...context: my diagnosis is only tentative seronegative - but I have had classic MG-type symptoms for over 20 years with no meds prescribed so far. In an effort to better...Reactions0reactionsComments6 repliesMuscle WeaknessSeronegativeTriggers
Managing Vision Issues...For some reason, double vision is the hardest symptom for me to manage. I say double-vision, but for me it’s more like an intoxicated vision after drinking. It’s been quite... By Mallory San Nicolas2 min readBookmark for laterReactions0reactionsComments27 comments
What Test(s) Were Used to Diagnose Your MG?...What tests did doctors run to diagnose your MG? Were imaging and bloodwork involved in your diagnosis?...Reactions0reactionsComments24 repliesSymptomsNewly DiagnosedDiagnosis
Home Cleaning Aids...Cleaning your home can be extremely tiring and difficult when living with myasthenia gravis (MG). This is true for me, even when I feel great. What can people living with... By Janice Koehn2 min readBookmark for laterReactions0reactionsComments1 comments
