Living in Remission...My myasthenia gravis came on with a vengeance in the midst of a major business-related stress situation. Double vision and alternately drooping eyelids were constant for the next 8 years...Reactions0reactionsComments3 comments
Ocular MG...I have been living with ocular MG for almost 8 years now and my symptoms are getting worse. I am now going for eye therapy as a last resort. I...Reactions0reactionsComments5 replies
Trying to Stay Positive When Living with Myasthenia Gravis...One of the hardest things to do when living with any chronic health condition is trying to stay positive. I was diagnosed with seronegative myasthenia gravis (MG) about 2 years...Reactions0reactionsComments0 comments
FeaturedWaiting Sucks...Hello! I haven’t been officially diagnosed but I think it might be right around the corner. I’m waiting on some bloodwork and my follow up is on Dec 1st. In...Reactions0reactionsComments5 replies
Working with MG...Hi everyone, I was diagnosed with OMG in April and am working full time in office. I am unsure how to navigate having a conversation with my employer about the...Reactions0reactionsComments3 repliesMental HealthTips & AdviceDepression
Life as a Military Spouse Living with MG...Shortly after my myasthenia gravis diagnosis in 1995, I married my college sweetheart who was an Ensign in the US Navy. I remember being so concerned that I wouldn’t be...Reactions0reactionsComments0 comments
When Is It Too Much?...Some mornings I wake up and I know right from the start ... today I just need to rest. Now mind you, I do have to take Mestinon every 2...Reactions0reactionsComments8 comments
Mid-diagnosis journey and have a few questions ...Hi there, having been referred to neurology earlier in the year with a drooping right eyelid, I am now in the midst of tests and scans; blood tests came back...Reactions0reactionsComments2 replies
Furniture for MG Weakness...Let’s talk about living room and dining room furniture since that’s where we spend a lot of time. My husband and I are both tall, as are our children. Low...Reactions0reactionsComments0 comments
Cooking with MG...Like so many others, I have had difficulty eating and even more difficulty in cooking my own meals. As such, I have become dependent on family members for food and...Reactions0reactionsComments11 repliesCopingDiet & Nutrition
New to Myasthenia...7 months ago I went to work and had pressure on the left side of my head and in my ear. As I was triaging a patient I felt my...Reactions0reactionsComments4 repliesOcular MG
Heat/Sweat...Dear friends, Before I ever even had one symptom of MG that I knew of I started having a problem. I would be at work and if I got the...Reactions0reactionsComments1 replies
Surviving Myasthenia Gravis...Word to the wise, especially for those living with myasthenia gravis (MG) at a young age: Us adults are all just faking it 'til we make it. It’s true. As...Reactions0reactionsComments3 comments
My Unexpected Insurance Company Ally...Myasthenia gravis (MG) can be scary when you are left by yourself to figure out what is going on. Knowing who to call when you think there is a problem...Reactions0reactionsComments0 comments
How to Approach Gardening When You Have Physical Limitations...I have always loved gardening. I guess you could say "it’s in my blood." I’m a farmer’s daughter originally from Kansas. I pretty much did it all, just like my...Reactions0reactionsComments0 comments
Starting My MG Journey...I was setting this down to help my own recollection, but I find I have a lot of questions, so maybe someone would like to comment on some of the...Reactions0reactionsComments3 replies
What would you tell yourself when you were first diagnosed?...Its easy to notice where we are in the present and where we'd like to be in the future, but what would you tell yourself back when you were told...Reactions0reactionsComments9 repliesNewly DiagnosedMental HealthTips & Advice
Adding a Wheelchair Ramp to Our Home...I don’t have stairs into my house. Well, I do, but they are covered with a wheelchair ramp. I needed a way into the house, so my husband and youngest...Reactions0reactionsComments2 comments
In Remission Now...I was originally diagnosed in 1988 I woke up one morning unable to fully open my eyes. My eyeballs would not move. This, it seems, are quite common symptoms. After...Reactions0reactionsComments8 comments
My Myasthenia Start...I was an Army Reservist and a nurse. It started in fall 2016 with extreme fatigue, I mean bad, I worked night shift for years, had deployed, done 24hr duties...Reactions0reactionsComments3 comments
