Box Breathing and How It Helps With Stress...Our lives are filled with family obligations, work and school responsibilities, healthcare appointments, and busy schedules. Stress is a normal part of life. But sometimes, stress can get out of...reactions7comments
My Youngest Grandson's Opinion About My MG...Our grandsons were over visiting and they were asking to go outside. What they really wanted to do was ride the dirt bike. They know another adult has to be...reactions3comments
Share some medications that have been proved to be useful for CMS patients....Hii everyone! I have a neurological disorder called congenital myasthenic syndrome (CMS). Despite trying various medications, none of them have been effective. My neurologist has suggested ephedrine treatment, which has...reactions1replyMuscle Weakness
Blood tests are negative but have symptoms...I have many of the symptoms of MG- loss of muscle strength around my mouth, sometimes trouble chewing/swallowing /drinking water some slurring of words but the blood tests are negative...reactions7replies
Mestinon Reverse Effect ...Hello all, I have been taking mestinon for 8 years and was very dependent on it. Just recently I have been having reverse effects from it. It actually causes MG...reactions6repliesAutoimmune Diseases
Helen's Story...I am writing in sadness but with the intent of expressing hope for all those who have been diagnosed with MG. I do not have myasthenia, but I had a...reactions8comments
Did COVID Make You a Germophobe?...I was diagnosed with MG right at the start of covid. I was never one to focus on germs before then. I would wash my hands but never was worried...reactions3repliesTreatmentMental HealthDepression
What Year Were You Diagnosed With Myasthenia Gravis?...What year were you diagnosed with Myasthenia gravis? How long did it take to receive a diagnosis? What treatments were available to you at the time? Have you tried any...reactions68repliesAwarenessDiagnosisTreatment
Refractory Mg-Does Your MG Not Cooperate With Treatment?...Do you have refractory MG? If you are unsure of this term, refractory MG refers to anyone with MG in which: "MG symptoms that do not improve with typical drugs...reactionsrepliesRefractory MG
How Do I Get the Latest Updates on Myasthenia-Gravis.com?...The internet is rife with information on myasthenia gravis (MG). Unfortunately, sometimes it can get to be a little too much. Perhaps it leaves you feeling like you are trapped...reactionscomments
How Gardening with MG Is Beneficial to Me...In some of my other articles, I’ve mentioned that my husband and I love to garden. We love growing and preserving our own food. There are several reasons we love...reactions2comments
Do You Suffer From Dysphoria? Feeling Dissatisfied With Life...Do you suffer from dysphoria, meaning feeling depressed, troubled, and unsatisfied with how life is going for you? How much does MG play a role in these feelings? What attempts...reactionsrepliesDepressionCopingMental Health
What Main Quality Do You Look For in a Doctor...When aiming to find a doctor that feels like a good fit, we must remember that health professionals are human and not perfect. Some have so much on their plate...reactionsrepliesNewly DiagnosedHealthcare TeamTreatment
Acetylcholine Receptor Binding Antibodies...My husband was tested for Acetylcholine Receptor Binding Antibodies 14 yrs ago and was told he was NEGATIVE! Recently watched a youtube video of MGFA National Patient conference and Myasthenia...reactions1replySeronegative
Side effects vs. Symptoms...I'm 74, diagnosed in 2019 did steroids, MESTINON, and CELLCEPT and I find that the side effects of the medications are as bad as the symptoms. I'm presently on ULTOMIRIS...reactions1reply
Ocular to Generalized Myasthenia Gravis...Commonly, the first symptoms of Myasthenia gravis experienced, and possibly the only MG symptoms for years, are double vision or drooping of the eyes, referred to as ocular MG, https://myasthenia-gravis.com/ocular...reactions18repliesOcular MGGeneralized MGNewly Diagnosed
My Experience with Myasthenia Gravis and Cholesterol Medication...In September 2019, I was in the emergency room with extremely high blood pressure. I was started on atorvastatin because of my high cholesterol levels. Atorvastatin is a drug that...reactions18comments
National Awareness Month...Being new to M-G.com (and the Health Union Community) does Myasthenia-Gravis.com do anything each year to give light to one, or more, aspects of Myasthenia-Gravis; either awareness, or healing, or...reactions14replies
How does the heat affect you?...Yesterday I took a walk, the distance I've been able to work up to since starting Mestinon a few weeks ago. Nowhere near how far I could walk a year...reactions4repliesExerciseNewly DiagnosedWeather
Myasthenia Gravis Has Changed How I Approach My Art...I have been a painter since I was young and I have consistently been painting landscapes "en plein air," which is the term for painting outside. Myasthenia gravis (MG) initially...reactions11comments
