New to Myasthenia...7 months ago I went to work and had pressure on the left side of my head and in my ear. As I was triaging a patient I felt my...Reactions0reactionsComments4 repliesOcular MG
Heat/Sweat...Dear friends, Before I ever even had one symptom of MG that I knew of I started having a problem. I would be at work and if I got the...Reactions0reactionsComments1 replies
Surviving Myasthenia Gravis...Word to the wise, especially for those living with myasthenia gravis (MG) at a young age: Us adults are all just faking it 'til we make it. It’s true. As... By Meridith2 min readBookmark for laterReactions0reactionsComments3 comments
My Unexpected Insurance Company Ally...Myasthenia gravis (MG) can be scary when you are left by yourself to figure out what is going on. Knowing who to call when you think there is a problem... By Sally Farrier2 min readBookmark for laterReactions0reactionsComments0 comments
How to Approach Gardening When You Have Physical Limitations...I have always loved gardening. I guess you could say "it’s in my blood." I’m a farmer’s daughter originally from Kansas. I pretty much did it all, just like my... By Janice Koehn4 min readBookmark for laterReactions0reactionsComments0 comments
Starting My MG Journey...I was setting this down to help my own recollection, but I find I have a lot of questions, so maybe someone would like to comment on some of the...Reactions0reactionsComments3 replies
What would you tell yourself when you were first diagnosed?...Its easy to notice where we are in the present and where we'd like to be in the future, but what would you tell yourself back when you were told...Reactions0reactionsComments9 repliesNewly DiagnosedMental HealthTips & Advice
Adding a Wheelchair Ramp to Our Home...I don’t have stairs into my house. Well, I do, but they are covered with a wheelchair ramp. I needed a way into the house, so my husband and youngest... By Janice Koehn2 min readBookmark for laterReactions0reactionsComments2 comments
31 Years Down...I developed double vision at 19, assumed it was too many late nights but it wouldn’t go away. Then I noticed weak arms, legs, couldn’t walk far. I spent 18... By CommunityMember5cced21 min readBookmark for laterReactions0reactionsComments2 comments
In Remission Now...I was originally diagnosed in 1988 I woke up one morning unable to fully open my eyes. My eyeballs would not move. This, it seems, are quite common symptoms. After... By CommunityMember38a69b1 min readBookmark for laterReactions0reactionsComments8 comments
My Myasthenia Start...I was an Army Reservist and a nurse. It started in fall 2016 with extreme fatigue, I mean bad, I worked night shift for years, had deployed, done 24hr duties... By bjsmith47955 min readBookmark for laterReactions0reactionsComments3 comments
Trying to Work After Almost Two Years...As we all know, myasthenia gravis (MG) is a roller coaster ride that we didn't voluntarily get on, but we're on the ride anyway! Because of MG, I've had several... By Sally Farrier2 min readBookmark for laterReactions0reactionsComments2 comments
Breathing problems...I'm a 47 year old male and I was diagnosed with the dok7 variant of congenital myasthenia about a year ago. I've been symptomatic for a few years, but all...Reactions0reactionsComments1 repliesDiagnosisAssistive DevicesGeneralized MG
Speech...Hello, I care for my mother, who has been diagnosed w/ Myasthenia Gravis, and she has issues w/ trying to think of words that she is trying to say. Can...Reactions0reactionsComments3 replies
MG and Homeopathy...Hi, I'm very freshly diagnosed and trying to educate myself on the illness. Very grateful for this group and for technology, I live in Greece.. I have a question. Has...Reactions0reactionsComments3 repliesTreatment
You Work at a Restaurant?..."You work at a restaurant?" After people learn that I have myasthenia gravis (MG), it's very shocking for them to hear that I am a server. Doctors, nurses, and non-medical... By Shelbie Brown2 min readBookmark for laterReactions0reactionsComments0 comments
How I Explain MG to Others...I can start out the day just fine. I'm ready to go as if I didn't have myasthenia gravis (MG), even if it's a day where I'm a little slow... By Sally Farrier2 min readBookmark for laterReactions0reactionsComments4 comments
Managing Safety at Home When Diagnosed with MG...A diagnosis of myasthenia gravis (MG) can bring with it a lot of problems. One of those is home safety. There are some things in my home today that I... By Janice Koehn4 min readBookmark for laterReactions0reactionsComments2 comments
blepharoptosis surgery for Ptosis ...Hi, i am diagnosed with ocular myasthenia gravis and was given mestinon to help with my droppy eyelid. Aside from the medications, i am just wondering if anyone go for...Reactions0reactionsComments2 repliesAutoimmune Diseases
Minimalizing Has Given Me Energy to Do More...I have lived in a converted van for 4 months, traveling full time with my boyfriend and 2 cats! We are in the process of working towards a converted school... By Jodi Enders4 min readBookmark for laterReactions0reactionsComments2 comments
