Getting Back to a Semi-Normal Life with Myasthenia Gravis...It has been a long road these last 3 years with myasthenia gravis. In just the blink of an eye, I have gone from doing whatever I wanted, when I...reactionscomments
The Wave of It All!...My name is Grady. I was diagnosed with myasthenia gravis four years ago. This past year, 2023, I began noticing that my MG symptoms were becoming worse. My eyes were...reactions13comments
Steroids, Rituximab and summer...I have diagnosed with gMG (seropositive)since Feb 2022. I was on steroids since then. I stared to have issues with my vision. Checked up and diagnosed as a steroids responder...reactions11replies
Not reacting to treatments...Hi there im a caretaker and my spouse has MG 3 weeks ago he was not feeling good since the new IV treatment was not lasting him ( vyvgard) And...reactions1replyCaregivingAutoimmune DiseasesGeneralized MG
I never heard of myasthenia gravis until the neuroglist said I have it. ...I noticed that I would occasionally have double vision and that my left eye was not behaving. Having had retina problems, I prefer to be checked out by an opthalmologist...reactions16repliesOcular MGSide Effects
What Time of the Year Is Best and Worst for Your MG?...Myasthenia gravis can be triggered uniquely for each individual that lives with it. The time of the year may affect how many MG symptoms and severeness you must deal with...reactionsrepliesTriggersSymptomsWeather
Did Your MG First Symptoms Happen All at Once, a Crisis?...A Myasthenic Crisis is the most severe event Myasthenia gravis can cause. Although it can vary, a crisis typically involves weakening multiple muscles, double vision, unsteady balance, and swallowing difficulties...reactionsrepliesNewly DiagnosedCrisisAwareness
Do You Have a Preference of Older or Younger Doctors to Treat MG?...Do you prefer a young or older healthcare professional to treat your MG? Age by no means determines how much knowledge or skill a doctor offers. And an individual could...reactionsrepliesHealthcare TeamTreatmentNewly Diagnosed
Myasthenia Gravis and Reducing My Mestinon Dosage...We’ve just passed the 2 year anniversary of my thymectomy, and the results I've seen continue to impress. I'm currently on the lowest dose of Mestinon since I started treatment...reactions18comments
Don’t Waste Energy Stressing Over Things That Didn’t Work in Your Favor...During a recent paddleboarding outing, my boyfriend and I were returning to the boat ramp, only minutes away, when I hit a rapid current that sent me back some 50...reactionscomments
Myasthenia Gravis and Cardiovascular Medication...Myasthenia gravis may pose a risk to patients using cardiovascular medications to treat heart conditions (coronary artery disease, hypertension, high cholesterol, and heart arrhythmias). Beta-blockers, calcium channel blockers, and statins...reactions20repliesTreatmentSymptomsNewly Diagnosed
MG Terminology...I bet we all remember the first few years after being diagnosed with Myasthenia gravis and constantly finding new MG-related terms we were unfamiliar with. Many of us are still...reactions2repliesDiagnosisAwarenessNewly Diagnosed
Neck Pain...Do you have Myasthenia gravis and experience neck pain? https://myasthenia-gravis.com/clinical/pain What does the sensation feel like, and when do you notice it? Have you found any remedies to help? As...reactionsrepliesTips & AdviceSymptomsMuscle Weakness
Not Ready for Summer...Now don't get me wrong, I love summer. Well ... I used to love summer! But the longer I live with myasthenia gravis (MG), the more heat bothers me. Whether...reactions13comments
Gabapentin and Myasthenia Gravis...Gabapentin (Gralise, Horizant, Neuraptine) is deemed cautionary with Myasthenia gravis, as it can potentially worsen symptoms. Gabapentin is used to treat seizure, nerve, and pain conditions. It can be problematic...reactions27repliesTreatmentTriggersNewly Diagnosed
Had You Heard of Myasthenia Gravis Before Your Diagnosis?...When you were diagnosed, or a doctor proposed you could have Myasthenia gravis, had you heard of it before? If yes, from where? I was utterly clueless about what it...reactions50repliesDiagnosisNewly DiagnosedAwareness
Soliris (Eculizumab) Outcome & Side Effects...Eculizumab (Soliris®), https://myasthenia-gravis.com/biologics, is a Myasthenia gravis treatment approved for generalized myasthenia gravis (gMG)(https://myasthenia-gravis.com/generalized) & anti-acetylcholine receptor (AChR) antibody-positive (https://myasthenia-gravis.com/causes). Have you been treated...reactionsrepliesTreatmentRefractory MGGeneralized MG
Are You a Diabetic With Myasthenia Gravis?...Do you have diabetes as well as Myasthenia gravis? We would love it if you could share your experience and what your treatment regimen looks like....reactions4repliesHealthcare TeamNewly DiagnosedTreatment
Active 5 days agoHow Do You Cope With Hot Temperatures?...Summer is almost here. Does the heat worsen your Myasthenia gravis symptoms? Which ones? https://myasthenia-gravis.com/living/heat How often are you outdoors in the hot temperatures? When you are outside in the...reactions65repliesCopingSymptomsWeather
Do You Have MuSK or LRP4 Antibodies?...Do you have MuSK or LRP4 antibodies? "Most people with MG have problems with acetylcholine receptors (AChR). However, other antibodies may cause MG, such as muscle-specific kinase (MuSK) and low-density...reactions5repliesTypesAwarenessDiagnosis
