Swings of emotions following diagnosis ...I'm pretty new here, I'm experiencing huge swings of emotions following diagnosis. From extreme relief and happy that I have an answer to real anger and crying over being ignored...Reactions0reactionsComments4 repliesNewly DiagnosedCopingTips & Advice
Botox® and MG...Botox® injections work by temporarily weakening muscles and are a common procedure with several uses. They are commonly used to minimize wrinkles. But they can also treat certain conditions. For...Reactions0reactionsComments1 comments
My Muscles with Myasthenia Gravis...Our muscles are funny things. If we don't use them, we lose them. Our muscles have memory and remember how to do things. But when you have myasthenia gravis (MG)...Reactions0reactionsComments2 comments
The Holidays with Myasthenia Gravis...I remember the busy days of preparing for the holidays. There was always so much to do, but I never gave it a second thought. Between preparing meals, decorating, shopping...Reactions0reactionsComments0 comments
My MG Progression...My myasthenia gravis (MG) symptoms first began in 2013. I should say "symptom" because it was only vision issues. I never had a droopy eyelid, and I couldn’t really explain...Reactions0reactionsComments2 comments
Awful problems after covid jab ...Smell in the nose. Occasionally hot and sweaty problems with eyes could that be the vaccine or covid itself...Reactions0reactionsComments2 repliesSide EffectsGeneralized MGMuscle Weakness
Tapering Off Mestinon?...I was on the phone with my PCP who told me that skipping a dose of Mestinon can cause my weakness symptoms to get worse even if I don't have...Reactions0reactionsComments4 repliesGeneralized MGMuscle WeaknessTreatment
MG Versus MS...Myasthenia gravis (MG) is a chronic (long-term) condition that affects your muscles and causes weakness. Multiple sclerosis (MS) is also a chronic condition. MS can sometimes cause symptoms that are...Reactions0reactionsComments0 comments
Side Effects From Pyridostigmine(Mestinon)...Have you experienced any side effects from the MG treatment Pyridostigmine, commonly called Mestinon? This article on our website, https://myasthenia-gravis.com/treatment/ache-inhibitor, discusses the side effects of these kinds of medications, acetylcholinesterase...Reactions0reactionsComments19 repliesSide EffectsTreatmentDiagnosis
How To Play Doctor ... Or Not...One of the hardest things about advocating for a patient with a rare disease is the uncertainty of the information that we want to share. Only about 14 in every...Reactions0reactionsComments2 comments
Evacuating and Relocating Due to Natural Disasters With MG...Hurricanes, fires, earthquakes, tsunamis, tornados, avalanches, ice storms, sinkholes, eruptions, flooding, blizzards, and landslides. Natural disasters are devastating phenomena entirely out of our control. I'm located in South Florida and...Reactions0reactionsComments0 comments
Mycophenolate Mofetil 500mg...Last year was a milestone making 80, Octogenarian status, but challenge with multiple health concerns, full hysterectomy finding ovarian cancer, stage 3, chemo (now in remission thank God); urinary infection...Reactions0reactionsComments8 repliesOcular MG
What Should I Do?...I went to BWH and meet with Dr. Dou.... a 150-mile round trip. He wanted to continue to see me, but it is too difficult for me to drive there...Reactions0reactionsComments6 replies
EMG test on Mestinon?...Hi, I have been put on Mestinon 90mg every 4 hours during the day and 180 mg time release at night. Should I be on Mestinon while receiving an EMG...Reactions0reactionsComments7 repliesGeneralized MGSeronegative
OMG and other medications I’m taking ...Hi all. I’m in the UK. Diagnosed with OMG 10 years ago when I was 42. Remitting and relapsing. Went into remission for a good few years then this year...Reactions0reactionsComments4 repliesOcular MG
Drugs and Vaccines to Avoid With Myasthenia Gravis...Myasthenia gravis (MG) is a rare disorder of the immune system. MG affects how some muscles and nerves communicate. Many people living with MG experience muscle weakness. Certain types of...Reactions0reactionsComments24 comments
What Is the Social Health Network Community?...Like our other Health Union condition communities, the Social Health Network brings people together to drive unique and impactful conversations about health. It also aims to expand opportunities for health...Reactions0reactionsComments0 comments
Any side effects of long term IVIG treatment? ...I am now 53 years old. I got diagnosed with Thymoma in Dec 2020. Had surgery in February 2021. After surgery, in April 2021 I started slurry speech and difficulty...Reactions0reactionsComments1 replies
Your Azathioprine (Imuran) Side Effect Experience...Azathioprine, also known as Imuran, can cause several side effects, commonly including nausea and vomiting. Long-term usage can cause cancer and infection risk increases. Has your Myasthenia gravis ever been...Reactions0reactionsComments3 repliesNewly DiagnosedSide EffectsTreatment
Not Recognizing the Person I See in the Mirror With MG...Have you looked in a mirror and not recognized the person you saw? As we watch our physical appearance change, it can damper our mental health. Appearance can affect our...Reactions0reactionsComments2 comments
