Evacuating and Relocating Due to Natural Disasters With MG...Hurricanes, fires, earthquakes, tsunamis, tornados, avalanches, ice storms, sinkholes, eruptions, flooding, blizzards, and landslides. Natural disasters are devastating phenomena entirely out of our control. I'm located in South Florida and... By Jodi Enders3 min readBookmark for laterReactions0reactionsComments0 comments
Mycophenolate Mofetil 500mg...Last year was a milestone making 80, Octogenarian status, but challenge with multiple health concerns, full hysterectomy finding ovarian cancer, stage 3, chemo (now in remission thank God); urinary infection...Reactions0reactionsComments8 repliesOcular MG
What Should I Do?...I went to BWH and meet with Dr. Dou.... a 150-mile round trip. He wanted to continue to see me, but it is too difficult for me to drive there...Reactions0reactionsComments6 replies
EMG test on Mestinon?...Hi, I have been put on Mestinon 90mg every 4 hours during the day and 180 mg time release at night. Should I be on Mestinon while receiving an EMG...Reactions0reactionsComments7 repliesGeneralized MGSeronegative
OMG and other medications I’m taking ...Hi all. I’m in the UK. Diagnosed with OMG 10 years ago when I was 42. Remitting and relapsing. Went into remission for a good few years then this year...Reactions0reactionsComments4 repliesOcular MG
Drugs and Vaccines to Avoid With Myasthenia Gravis...Myasthenia gravis (MG) is a rare disorder of the immune system. MG affects how some muscles and nerves communicate. Many people living with MG experience muscle weakness. Certain types of... By Editorial Team 3 min readBookmark for laterReactions0reactionsComments24 comments
What Is the Social Health Network Community?...Like our other Health Union condition communities, the Social Health Network brings people together to drive unique and impactful conversations about health. It also aims to expand opportunities for health... By Editorial Team 4 min readBookmark for laterReactions0reactionsComments0 comments
Any side effects of long term IVIG treatment? ...I am now 53 years old. I got diagnosed with Thymoma in Dec 2020. Had surgery in February 2021. After surgery, in April 2021 I started slurry speech and difficulty...Reactions0reactionsComments1 replies
Your Azathioprine (Imuran) Side Effect Experience...Azathioprine, also known as Imuran, can cause several side effects, commonly including nausea and vomiting. Long-term usage can cause cancer and infection risk increases. Has your Myasthenia gravis ever been...Reactions0reactionsComments3 repliesNewly DiagnosedSide EffectsTreatment
Not Recognizing the Person I See in the Mirror With MG...Have you looked in a mirror and not recognized the person you saw? As we watch our physical appearance change, it can damper our mental health. Appearance can affect our... By Jodi Enders3 min readBookmark for laterReactions0reactionsComments2 comments
Living in Remission...My myasthenia gravis came on with a vengeance in the midst of a major business-related stress situation. Double vision and alternately drooping eyelids were constant for the next 8 years... By CommunityMember4941 min readBookmark for laterReactions0reactionsComments3 comments
Ocular MG...I have been living with ocular MG for almost 8 years now and my symptoms are getting worse. I am now going for eye therapy as a last resort. I...Reactions0reactionsComments5 replies
Trying to Stay Positive When Living with Myasthenia Gravis...One of the hardest things to do when living with any chronic health condition is trying to stay positive. I was diagnosed with seronegative myasthenia gravis (MG) about 2 years... By Sally Farrier2 min readBookmark for laterReactions0reactionsComments0 comments
FeaturedWaiting Sucks...Hello! I haven’t been officially diagnosed but I think it might be right around the corner. I’m waiting on some bloodwork and my follow up is on Dec 1st. In...Reactions0reactionsComments5 replies
Working with MG...Hi everyone, I was diagnosed with OMG in April and am working full time in office. I am unsure how to navigate having a conversation with my employer about the...Reactions0reactionsComments3 repliesMental HealthTips & AdviceDepression
Life as a Military Spouse Living with MG...Shortly after my myasthenia gravis diagnosis in 1995, I married my college sweetheart who was an Ensign in the US Navy. I remember being so concerned that I wouldn’t be... By Claire Denton3 min readBookmark for laterReactions0reactionsComments0 comments
When Is It Too Much?...Some mornings I wake up and I know right from the start ... today I just need to rest. Now mind you, I do have to take Mestinon every 2... By Sally Farrier2 min readBookmark for laterReactions0reactionsComments8 comments
Mid-diagnosis journey and have a few questions ...Hi there, having been referred to neurology earlier in the year with a drooping right eyelid, I am now in the midst of tests and scans; blood tests came back...Reactions0reactionsComments2 replies
Furniture for MG Weakness...Let’s talk about living room and dining room furniture since that’s where we spend a lot of time. My husband and I are both tall, as are our children. Low... By Janice Koehn3 min readBookmark for laterReactions0reactionsComments0 comments
Cooking with MG...Like so many others, I have had difficulty eating and even more difficulty in cooking my own meals. As such, I have become dependent on family members for food and...Reactions0reactionsComments11 repliesCopingDiet & Nutrition
