Diagnosis - New Symptoms?...Hello, I am so thankful for this forum. Your replies have been a tremendous help. I went to my neurology appointment today, and he immediately referred me to a bigger...Reactions0reactionsComments5 repliesSymptomsDiagnosis
Preparing for Winter with a Power Chair...As we prepare for colder weather, it’s time to think about winterizing our outdoor living spaces. It’s bad enough to manage walking on wet or icy surfaces - but what...Reactions0reactionsComments0 comments
Difficulty swallowing while sleeping ...I have difficulty every night swallowing phlegm approx 4 hours every night after I have fallen asleep. I wake up, drink a lot of water and go back to sleep...Reactions0reactionsComments5 repliesAutoimmune Diseases
Therapies to relieve symptoms...Hey everyone, I'm looking for some therapies that might help relieve some of my symptoms. For a bit of background... I'm 26 and recently diagnosed with Myasthenia Gravis, whilst my...Reactions0reactionsComments5 repliesGeneralized MGNewly DiagnosedCoping
Ocular MG...I was diagnosed by a neuro opthamologist but my blood tests were negative. Even though I have ptosis, the consulting neurologist said that he did not believe I have this...Reactions0reactionsComments6 replies
Muscle Weakness...My dad is in the middle of his third MG crisis in 18 months, the latest has included ventilator for 12 days —the past few days (no longer in ICU...Reactions0reactionsComments1 replies
The Challenges of Seronegative Myasthenia Gravis...In this guest post, Cheri Higgason writes about the challenges of obtaining a seronegative myasthenia gravis diagnosis. As someone who has experienced it firsthand, she encourages others to keep pushing...Reactions0reactionsComments32 comments
Good News! ...I was called by a neurology department at st. Claire hospital. They had a cancellation that needed to be filled! I was so relieved to get an appointment a month...Reactions0reactionsComments1 repliesCaregiving
Weakness in my neck and back!...My neck and back muscles were allowing my head to hang forward. Spent five days in hospital. They pumped steroids into me each day. Came out with my head up...Reactions0reactionsComments4 replies
Life Change at 73...Four months ago, in September 2022, I began this journey with shortness of breath. I was very active, swimming twice a week, walking three miles a day, volunteering, busy with...Reactions0reactionsComments4 comments
Problems...I am nearly eighty and have a secondary illness I have to take medication for this 2nd illness which causes constipation etc. Since i cannot do much physical exercise, I...Reactions0reactionsComments4 replies
FeaturedDoes Anything Help Your Double Vision And/or Droopy Eyes?...Do you have Myasthenia gravis symptoms of diplopia (double vision) or ptosis (drooping eye)? Has anything helped you? Medication, surgery, tape, glasses, contacts, eye drops, etc.? - Jodi, Team Member...Reactions0reactionsComments102 repliesOcular MGDrivingVision
Benefits of Understanding MG and Being Your Own Advocate...Take the initiative to become an advocate for your health and you will have a completely new experience with your myasthenia gravis (MG) doctor. Every day, doctors brief patients about...Reactions0reactionsComments3 comments
My Reaction to Insecticides, Pesticides, and Herbicides...The other day I was in the house when I heard a plane. It was flying low, I could tell by the sound of the engine. I live in a...Reactions0reactionsComments0 comments
shoes and boots...Does anyone have good , lightweight shoes with great traction,not super expensive? Boots are also an issue. Have found zip, kind of light weight, sort of warm but during the...Reactions0reactionsComments5 repliesAssistive Devices
The Way We Were...I'm one of the few who hates the song "Have a Holly, Jolly Christmas." For huge numbers of us, the idea that the season must be endlessly jolly is way...Reactions0reactionsComments0 comments
double vision...For dealing with MY Ptosis based, or caused, double vision, I initially found the closing of one eye gave me clear vision in the other eye. The problem with this...Reactions0reactionsComments14 repliesGeneralized MGTreatmentVision
Does IVIG work?...Hello, I have generalized MG confirmed by blood work at age 35. Prednisone made me feel better but I stopped taking it after reading how it can destroy your body...Reactions0reactionsComments1 repliesGeneralized MG
Statins and Beta Blockers...I have read in various articles that taking Statins or Beta Blockers facilitates OMG. Discussed with Cardiologist and he became defensive that it was proven fact through research that they...Reactions0reactionsComments12 repliesTreatment
Resources for Veterans, LGBTQ+ People, and Other Special Groups...Coping with a chronic health condition can be challenging for you, your family, and your caregivers. You rely on your healthcare team to manage your condition. However, there are other...
