Jodi Enders...Jodi Enders is an artist, advocate, and anthropologist diagnosed with myasthenia gravis (MG). She was misdiagnosed and incorrectly treated for Lyme disease...
Wheels for Days...Since my initial diagnosis of myasthenia gravis (MG) in June of 2021, trying to find and maintain some normalcy has been a...reactions2comments
Prednisone's Impact on My Self-Esteem...In a previous article, I talked about how prednisone caused me to have the horrible side effect of severe edema (swelling caused...reactions5comments
The Pros and Cons of Thymectomy...Thymectomy is often one of the first treatments doctors consider for many people with myasthenia gravis (MG). This surgical procedure removes the...reactions3comments
My Cooking Tips for Myasthenia Gravis...I have always cooked from scratch. Growing, harvesting, and preserving my own fruits and vegetables. In years past, that also included grinding...reactions2comments
Exercising Again After My Diagnosis...Our first summer coming back to Tennessee from Colorado in 2007, we rented a house with a pool - we thoroughly enjoyed...reactions15comments
How Do I Connect with People Living with Myasthenia Gravis?...Navigating life with myasthenia gravis (MG) can be overwhelming, especially if you do not know others with the condition. It is hard...reactionscomments
A Glimmer of Hope...In October of 2020, I was officially diagnosed with what my neurologist said, "for now we are calling it seronegative myasthenia gravis."...reactions3comments
Mallory San Nicolas...Mallory has been living with myasthenia gravis since 2013 although it wasn’t until 2015 that she received a diagnosis. As a young...
My Journey to Buy a Mobility Device...My journey to use mobility devices began when I could not get out and enjoy things like shopping, going to a park...reactions1comment
What to Know About MG and Social Security Disability...There is no question that myasthenia gravis (MG) can be debilitating. The muscle weakness, vision problems, and fatigue common to MG can...
Resistance Band Stretching Helps my MG...How did people with myasthenia gravis (MG) get the nickname "snowflake"? Because we are all different just like a snowflake. No 2...reactions3comments
Take the Managing Treatment and Medication Survey...The Managing Treatment and Medication Survey is now closed. Thank you for your interest! Treatment is a big part of managing a...reactionscomments
IVIG: Success or Failure?...I’d been living with myasthenia gravis (MG) for about 3 months. The speech problem was now intermittent, but I still had minor...reactions3comments
Saying Goodbye to Prednisone...I'm eating breakfast on a Saturday morning and all seems normal. However, this morning is different. For the first time in 2...reactions4comments
Motherhood and Myasthenia Gravis...When I feel better, I want to: This was the wish list I made as I lay bedridden with myasthenia gravis. These...reactionscomments
Moody Myasthenia Roller Coaster Ride...I don't know about you, but for me, the moodiness of myasthenia gravis (MG) just makes it hard to live with. Think...reactions3comments
Adjusting to Life with Myasthenia Gravis...I spent days in the hospital awaiting a diagnosis. Finally, I was home at last! When I got home, I had a...reactions5comments
Feeling Defeated by Myasthenia Gravis...This week we've had high heat along with high humidity. I don't know about you, but for me, it's been a real...reactions1comment
My Brief MG Story...I was 60 years old before I agreed to be tested for MG. Before that I was in denial. My younger sister...reactions4comments