Raising Young Children While Managing Myasthenia Gravis...I have 2 children - a son who is 4, and a daughter who just turned 2. Life is nonstop with the...reactions1comment
We're in Charge of Celebrations!...There’s a classic children’s book with the name I’m In Charge of Celebrations. It’s been 25 years since I read it. I can’t...reactionscomments
Shining a Light on Photophobia...Myasthenia gravis (MG) patients experience many symptoms. As individuals, we have different symptoms, react to the same situations differently, and medications work...reactionscomments
FDA Approves Vyvgart™ (efgartigimod) for Adults with Generalized Myasthenia Gravis...On December 17, 2021, the U.S. Food and Drug Administration (FDA) approved Vyvgart™ (efgartigimod) to treat generalized myasthenia gravis (gMG) in adults...reactionscomments
More Helpful Cooking Solutions for Myasthenia Gravis...In case you missed it, check out part 1 of this article, My Cooking Tips for Myasthenia Gravis. For those of us...reactions1comment
Celebrating Christmas the Myasthenia and COVID Way...The biggest holidays of the year are peaking just around the corner. This will be our second Christmas dealing with COVID-19 during...reactionscomments
5 Ways to Gussy Up Mashed Potatoes (When Mashed Potatoes Are All You Can Eat)...Question: When is the worst time of year to have a myasthenia gravis (MG) flare up? Well, there isn’t really a good...reactions1comment
MG Gave Me Lemons, So I Made Lemonade...Being diagnosed with myasthenia gravis (MG) can be a shock. Not only are you confronted by a condition you’ve never heard of...reactionscomments
Reinventing Myself with Myasthenia Gravis...Ah, being alive and having the energy to do the things that you want to do! Or at least that's what we...reactions3comments
When Roles Are Switched and You Become a Caregiver...God blessed me when I met my husband. We’ve been there for each other from the beginning. We have always shared the...reactions3comments
Community Views: What You Wish People Understood About Myasthenia Gravis...Living with a rare disease means a lot of questions like, "You have what?" Myasthenia gravis (MG) is a diagnosis many do...reactionscomments
On the Road Again in the Tiny House...We sometimes reminisce about "good old days." Just a few years ago we traveled constantly both for pleasure and as part of...reactionscomments
Home and Healthy for the Holidays...There’s an old joke going around: "If you discuss politics at the Thanksgiving table, you will have fewer Christmas gifts to buy."...reactionscomments
Jodi Enders...Jodi Enders is an artist, advocate, and anthropologist diagnosed with myasthenia gravis (MG). She was misdiagnosed and incorrectly treated for Lyme disease...
Wheels for Days...Since my initial diagnosis of myasthenia gravis (MG) in June of 2021, trying to find and maintain some normalcy has been a...reactions2comments
Prednisone's Impact on My Self-Esteem...In a previous article, I talked about how prednisone caused me to have the horrible side effect of severe edema (swelling caused...reactions5comments
The Pros and Cons of Thymectomy...Thymectomy is often one of the first treatments doctors consider for many people with myasthenia gravis (MG). This surgical procedure removes the...reactions3comments
My Cooking Tips for Myasthenia Gravis...I have always cooked from scratch. Growing, harvesting, and preserving my own fruits and vegetables. In years past, that also included grinding...reactions2comments
Exercising Again After My Diagnosis...Our first summer coming back to Tennessee from Colorado in 2007, we rented a house with a pool - we thoroughly enjoyed...reactions15comments
How Do I Connect with People Living with Myasthenia Gravis?...Navigating life with myasthenia gravis (MG) can be overwhelming, especially if you do not know others with the condition. It is hard...reactionscomments
