Still not diagnosed but Dr started me on mestinon........I have not officially been diagnosed. Waiting on labs. But because of symptoms, the Doctor started me on Mestinon. It seemed to help at first but now it is only...reactions8replies
Eyepatch Usage...I'm fairly new to living with MG (it's been about three months since my diagnosis) and I was curious if others with double vision also find eyepatches to be helpful...reactions3repliesDrivingOcular MGVision
Pyridostigmine (Mestinon) Shortage in UK...You may be among the many frantic over the pyridostigmine (mestinon) shortage in the United Kingdom. --- How has this affected you? Has your doctor adjust your treatment to accommodate?...reactions1replyTriggersTreatmentCrisis
How Do I Make My Outdoor Space Power Chair-Friendly?...I don’t let myasthenia gravis (MG) stop me from being outside and enjoying the things I love. But how do I make that happen when I’m in a power chair?...reactionscomments
Myasthenia Flare?...I currently have ocular myasthenia. Thursday I ended up at the ER. My mouth was moving weird, my vision impaired, difficulty swallowing and walking. When doing a CT Scan, I...reactions2repliesDiagnosis
Could I have this disease?...I'm almost 56 years old and lately I have little to no energy, I've always been energetic some shortness of breath should I be concerned and should I try to...reactions3repliesAutoimmune Diseases
What MG Muscle Weakness Feels Like...Myasthenia gravis (MG) is an autoimmune disease that causes muscle weakness. But what exactly does muscle weakness feel like? To understand more, we took the opportunity to ask our Patient...reactions44comments
CellCept From My Standpoint...I have been on CellCept® (mycophenolate mofetil) for 2 and a half years since my myasthenia gravis (MG) diagnosis. I am sharing my experience to benefit others interested in learning...reactions12comments
Autoimmune Conditions Common With MG..."Like many other autoimmune conditions, research shows that people who develop MG may have inherited genes that make them more likely to develop autoimmune conditions. Doctors also know that people...reactions24repliesDiagnosisAutoimmune DiseasesResearch & Clinical Trials
Heart Issues...I am wondering if anyone else with MG has experienced any heart related issues. Recently my doctor found an abnormality in my EKG relating to electrical conductivity. This wasn't there...reactions12repliesSymptoms
Steps Towards Making the Bedroom MG-Friendly...Many myasthenia gravis (MG) sufferers complain of insomnia or difficulty sleeping. For a while after my diagnosis, I had several MG symptoms, 1 of which was difficulty breathing, especially if...reactions2comments
ANA (Antinuclear Antibody) Test and Myasthenia Gravis...ANA (Antinuclear Antibody) Test and Myasthenia gravis. ANA, antinuclear antibodies, is a type of autoantibody. "Autoantibodies are antibodies (immune proteins) that mistakenly target and react with a person's own tissues...reactionsrepliesAwarenessDiagnosisTypes
Waiting on lab results and not fully diagnosed...Today is my first day on this forum. I need some advice. I have been symptomatic since Janaury. I have seen every specialist known to man. We have ruled out...reactions4replies
Is mestinon not available anymore? ...I have been taking mestinon for ocular MG since about 2012. I’ve been told that it’s been stopped being made and I can’t get anymore. I’m waiting to be reviewed...reactions1reply
Does a Negative ANA mean a negative for MG or are the specific antibody tests different....Hello, I have been having crazy and life changing symptoms within a week after my vaccine in 2021 ( Pfizer). Blurred/double vision Eyelid droop-steroids help Weakness Tremors Cognitively I feel...reactions1replyAutoimmune DiseasesTips & AdviceNewly Diagnosed
Mestinon not working...Hi everyone! I am having problems with Mestinon which I never had for 10 years. After MG crisis and plasmapheresis, Mestinon is not working like before. I take it to...reactions14replies
Keep Calm and Spoon On...Have you ever heard of the term "spoonie?" If you know what a spoonie is, then there is a good chance you may consider yourself a spoonie or relate to...reactionscomments
The Hardest Thing for Me with Myasthenia Gravis...Let me be clear: There are so many hard things about myasthenia gravis (MG). There is the fatigue, chewing and swallowing issues, breathing difficulty, and vision problems, just to name...reactions9comments
Active yesterdayFatigue/exhaustion in arms and legs...I was diagnosed in December 2022 with MG. It seems that some of the most common and bothersome symptoms I have experienced are exhaustion/fatigue in my arms and legs at...reactions2repliesDrivingExerciseMuscle Weakness
