My Experience with IVIG & Tips...The article I just read about IVIG provides great information. I can't take steroids like Prednisone so, when Mestinon alone wasn't enough, my wonderful neurologist suggested a trial of IVIG...Reactions0reactionsComments3 comments
Yes Connie, This Is Another Connie...Well, I am 72 and was diagnosed this last September. I think I have had symptoms for years and blamed them on other things... weakness in walking because of my...Reactions0reactionsComments4 comments
Cane Use...I was 'sort of' diagnosed with MG by an ophthalmologist who specialized in neurological eye issues -- awaiting blood test results for the Mayo Clinic. Anyway, when I walk my...Reactions0reactionsComments3 repliesAssistive DevicesCopingAwareness
New Mg symptoms or something else....I have some new symptoms not sure if it’s Mg related. My middle, ring and pinky finger will curl in towards the palm of my hand. The other problem is...Reactions0reactionsComments6 repliesAutoimmune Diseases
Cure or Relief...Recently (to me) CBS News released a segment on Tzield; a new medication recently approved by the FDA for some level of relief of Type 1 Diabetes. It was clear...Reactions0reactionsComments1 repliesTreatment
Prevnar 20...Anyone get the prevnar 20 vaccine? Any problems?? Im scheduled for one at 1:00 pm today abd nervous. Help...Reactions0reactionsComments1 repliesAutoimmune Diseases
What Is Medical Gaslighting?...If you have ever felt dismissed by a doctor, you may have experienced a type of bias (prejudice) called medical gaslighting. Medical gaslighting can happen to anyone, but it most...Reactions0reactionsComments9 comments
My experience with University of Chicago neuromuscular clinic-seronegative friensly...I feel like I need a disclaimer or something similar:This is just reflecting on my journey for a diagnosis. UCM has made a HUGE impact on my life and I...Reactions0reactionsComments2 repliesDiagnosis
Facial swelling and throat closure ...I've been dealing with MG for about ten years. From extreme fatigue, drooling, drooping of my eyes and vision issues. This last exacerbation affected my throat , it closed cutting...Reactions0reactionsComments16 repliesAwareness
Relationships, Intimacy, and MG...Myasthenia gravis (MG) is a rare disease, a chronic condition, and often misunderstood. Coping with any one of those factors alone could place a strain on relationships, let alone managing...Reactions0reactionsComments6 comments
Weekly episodes of sounding and looking drunk. GP suggests menopause, but could it something more?...I am writing this post on behalf of my mum and it's going to be a lengthy one. She is 52, no pre-existing health conditions established, although she did have...Reactions0reactionsComments4 repliesSymptoms
Looking for doctor...I’m hoping to move to Georgia to live with my daughter and looking for a doctor in the Savanna area. Hopefully someone in the community can refer me to someone...Reactions0reactionsComments3 repliesCaregiving
MG Has Changed My Perspective on Yoga...I didn't do yoga, let alone try it, before I started having myasthenia gravis (MG) symptoms. I imagined yoga as a long stretching session, something I was already doing. Typically...Reactions0reactionsComments8 comments
Encouragement from Strangers...For the most part, writing articles about my life with myasthenia gravis (MG) is pretty easy to do. I have read once that to be a good writer, you write...Reactions0reactionsComments4 comments
Thymectomy...Hi just to let the community know that since the thymectomy to remove a thymoma I have had three ct scans and I am pleased to say that all have...Reactions0reactionsComments5 repliesAutoimmune Diseases
It's Been 31 Years Now...I was diagnosed with MG in 1992 after being subjected to every kind of blood work and test available at that time. But, nothing was really positive until my doctor...Reactions0reactionsComments1 comments
Out of Remission: Adding a Second Azathioprine...My MG had been in remission for ten plus years. It was under control due to Azathioprine (50 mg) yet it fell out of remission. After a few months of...Reactions0reactionsComments16 comments
medication side effects...Hi. I recently started mestinon. I was having generalized weakness, shortness of breath, double vision/very blurry vision and ptosis. I was at a point that brushing my teeth is difficult...Reactions0reactionsComments2 replies
Will you take our In America survey and help others understand the true impact of MG?...**SURVEY NOW CLOSED** To better understand the patient experience and realities of MG, we are fielding our 3rd Myasthenia Gravis In America survey. By taking this anonymous survey, you can...Reactions0reactionsComments3 replies
The Importance of Finding a Doctor Who Specializes in MG...Throughout my years living with myasthenia gravis (MG), I’ve had my fair share of doctors. I’ve also been in between doctors when the one I had unexpectedly went on permanent...Reactions0reactionsComments12 comments
