Weakness in my neck and back!...My neck and back muscles were allowing my head to hang forward. Spent five days in hospital. They pumped steroids into me each day. Came out with my head up...Reactions0reactionsComments4 replies
Life Change at 73...Four months ago, in September 2022, I began this journey with shortness of breath. I was very active, swimming twice a week, walking three miles a day, volunteering, busy with... By Connie1 min readBookmark for laterReactions0reactionsComments4 comments
Problems...I am nearly eighty and have a secondary illness I have to take medication for this 2nd illness which causes constipation etc. Since i cannot do much physical exercise, I...Reactions0reactionsComments4 replies
FeaturedDoes Anything Help Your Double Vision And/or Droopy Eyes?...Do you have Myasthenia gravis symptoms of diplopia (double vision) or ptosis (drooping eye)? Has anything helped you? Medication, surgery, tape, glasses, contacts, eye drops, etc.? - Jodi, Team Member...Reactions0reactionsComments102 repliesOcular MGDrivingVision
Benefits of Understanding MG and Being Your Own Advocate...Take the initiative to become an advocate for your health and you will have a completely new experience with your myasthenia gravis (MG) doctor. Every day, doctors brief patients about... By Jodi Enders3 min readBookmark for laterReactions0reactionsComments3 comments
My Reaction to Insecticides, Pesticides, and Herbicides...The other day I was in the house when I heard a plane. It was flying low, I could tell by the sound of the engine. I live in a... By Sally Farrier2 min readBookmark for laterReactions0reactionsComments0 comments
shoes and boots...Does anyone have good , lightweight shoes with great traction,not super expensive? Boots are also an issue. Have found zip, kind of light weight, sort of warm but during the...Reactions0reactionsComments5 repliesAssistive Devices
The Way We Were...I'm one of the few who hates the song "Have a Holly, Jolly Christmas." For huge numbers of us, the idea that the season must be endlessly jolly is way... By Juliana Texley3 min readBookmark for laterReactions0reactionsComments0 comments
double vision...For dealing with MY Ptosis based, or caused, double vision, I initially found the closing of one eye gave me clear vision in the other eye. The problem with this...Reactions0reactionsComments14 repliesGeneralized MGTreatmentVision
Does IVIG work?...Hello, I have generalized MG confirmed by blood work at age 35. Prednisone made me feel better but I stopped taking it after reading how it can destroy your body...Reactions0reactionsComments1 repliesGeneralized MG
Statins and Beta Blockers...I have read in various articles that taking Statins or Beta Blockers facilitates OMG. Discussed with Cardiologist and he became defensive that it was proven fact through research that they...Reactions0reactionsComments12 repliesTreatment
Resources for Veterans, LGBTQ+ People, and Other Special Groups...Coping with a chronic health condition can be challenging for you, your family, and your caregivers. You rely on your healthcare team to manage your condition. However, there are other... By Editorial Team 3 min readBookmark for later
Swings of emotions following diagnosis ...I'm pretty new here, I'm experiencing huge swings of emotions following diagnosis. From extreme relief and happy that I have an answer to real anger and crying over being ignored...Reactions0reactionsComments4 repliesNewly DiagnosedCopingTips & Advice
Botox® and MG...Botox® injections work by temporarily weakening muscles and are a common procedure with several uses. They are commonly used to minimize wrinkles. But they can also treat certain conditions. For... By Editorial Team 3 min readBookmark for laterReactions0reactionsComments1 comments
My Muscles with Myasthenia Gravis...Our muscles are funny things. If we don't use them, we lose them. Our muscles have memory and remember how to do things. But when you have myasthenia gravis (MG)... By Sally Farrier2 min readBookmark for laterReactions0reactionsComments2 comments
The Holidays with Myasthenia Gravis...I remember the busy days of preparing for the holidays. There was always so much to do, but I never gave it a second thought. Between preparing meals, decorating, shopping... By Sally Farrier2 min readBookmark for laterReactions0reactionsComments0 comments
My MG Progression...My myasthenia gravis (MG) symptoms first began in 2013. I should say "symptom" because it was only vision issues. I never had a droopy eyelid, and I couldn’t really explain... By Mallory San Nicolas4 min readBookmark for laterReactions0reactionsComments2 comments
Awful problems after covid jab ...Smell in the nose. Occasionally hot and sweaty problems with eyes could that be the vaccine or covid itself...Reactions0reactionsComments2 repliesSide EffectsGeneralized MGMuscle Weakness
Tapering Off Mestinon?...I was on the phone with my PCP who told me that skipping a dose of Mestinon can cause my weakness symptoms to get worse even if I don't have...Reactions0reactionsComments4 repliesGeneralized MGMuscle WeaknessTreatment
MG Versus MS...Myasthenia gravis (MG) is a chronic (long-term) condition that affects your muscles and causes weakness. Multiple sclerosis (MS) is also a chronic condition. MS can sometimes cause symptoms that are... By Editorial Team 3 min readBookmark for laterReactions0reactionsComments0 comments
