Sleep...I am a 21-year MGer and sleep 4 - 5 hours a night. Even though I use a CPAP, I'm in a...reactionsrepliesSleep
Emergency room- advocating for your MG and communicating with staff...Have you had an emergency room visit since having MG? If you were unaware, many drugs can trigger or worsen MG symptoms...reactions6repliesAwarenessCrisisHealthcare Team
Confidence in your treatment regimen?...How easily or difficult is it for you to have faith and confidence in your treatment regimen? Has this changed over time?...reactions56repliesTreatmentRemissionHealthcare Team
Muscle Spasms with and without Pyridostigmine (Mestinon)...Have you taken mestinon and experienced muscle spasms? Did your doctor have you suspend the use of the treatment? Have you noticed...reactions15repliesSymptomsTreatmentTriggers
One word to describe the past month...Describe how you have felt this past month with one word....reactions1replySymptomsAwarenessFriends & Family
Preparing for Winter Travel with MG...Traveling anytime is trying at best, but winter travel can be quite challenging. I have done a lot of travel before and...reactions1comment
Droopy Eyelid...Hi All, I am new here but wanted to share this. Also I am not saying it will work for all but...reactions1replyOcular MG
Do you have problems swallowing?...Myasthenia gravis causes weakness of the swallowing muscles of many individuals, leading to problems involving choking, a terrifying experience, https://myasthenia-gravis.com/living/swallowing-speaking-symptoms, https://myasthenia-gravis.com/diet, and...reactions148repliesSymptomsDiet & NutritionMuscle Weakness
MG Crisis-What Triggered Yours?...Have you had an MG crisis (https://myasthenia-gravis.com/crisis)? If yes, do you have an idea of what triggered it?...reactions30repliesCrisisTriggersSymptoms
Neuromuscular Blocking Medication Triggered MG Symptoms...Neuromuscular blocking drugs are administered to patients during surgery as muscle relaxants to prevent muscle movement. These medications are scientifically recommended against...reactionsrepliesSurgeryTriggersCrisis
How Do Autoimmune Diseases Affect Cancer Risk?...Our immune system is constantly working to fight foreign or dangerous invaders like viruses, fungi, or bacteria. This helps protect us from...reactions1comment
What are your Goals and/or Challenges ...Join me in an empowering discussion as we discuss our goals and the challenges we face on our journeys. Sharing our aspirations...reactions5repliesCoping
Being new in the community....Hi, my name is Fleur I'm nineteen and I got officially diagnosed around a week ago. I've been really struggling currently and...reactions14repliesCopingAutoimmune Diseases
More patient control of Pyridostigmine (Mestinon) dosing?...The acetylcholinesterase-inhibition properties of Pyridostigmine (pyri) only last a handful of hours. The doctor's Rx very specifically regulates the dosing period and...reactions5replies
Can I Prevent Ocular MG From Progressing to Generalized MG?...Ocular myasthenia gravis is a type of myasthenia gravis (MG) that mainly affects the eye and eyelid muscles. If you have ocular...reactions2comments
Juvenile MG recently diagnosed...My 10 year old daughter was diagnosed on October 31 2023. (As she says. A Halloween to remember). My husband and I...reactions1replyNewly Diagnosed
My Favorite Activities: Trying Not to Let MG Hold Me Back...So many times, we have to give up some things we love or love to do when we are diagnosed with a...reactions1comment
Choosing Compassion When We Don't Know People’s Intentions...With Thanksgiving approaching, I encourage you to welcome this season as a reevaluation period. Similar to the basics of "treating others how...reactions7comments
Reassurance on blood test results...Hello, Just reaching out for some reassurance I've waited 6 months just to get my blood test results and I just want...reactions1replyDiagnosis
