Blood results - is it MG?...Hi everyone I’m going through tests for MG at the moment as I have a thymoma. I’ve been ill for nearly 18 months now. My AChR level is at 0.51...Reactions0reactionsComments4 replies
What Does It Mean to Be a Rare Disease?...Chances are, you or someone you know has been diagnosed with a rare disease and that is why you are reading this now. You are not alone if you are...Reactions0reactionsComments0 comments
Myasthenia Gravis...Hello. I have MG.After 18 months I'm actually seeing a MG specialist. Neurologist are great,but to have a specialist who opened a MG clinic in a hospital has been great...Reactions0reactionsComments6 replies
Azathioprine (Imuran)...Hello, I am newly diagnosed as of November '22. I am responding well to Pyridostigmine, with speech and swallowing problems greatly reduced. Now my neurologist wants me to take Azathioprine...Reactions0reactionsComments3 repliesNewly DiagnosedTreatment
Myasthenia Gravis and Differential Diagnosis...Myasthenia gravis (MG) is an autoimmune condition. This means it is caused by the immune system attacking the body mistakenly. The symptoms of MG can sometimes look like other conditions...Reactions0reactionsComments7 comments
High Altitude Effects on the Body When You Have MG...My husband and I love Colorado! When we lived in Greeley and Westminster, we would take many day trips into the Rocky Mountains, going west on I-70 or north of...Reactions0reactionsComments6 comments
Not Myasthenia......In 2016, I began the year with prostate cancer surgery. In June, my father died. In July, I experienced ptosis. An ophthalmologist diagnosed a nerve that would improve. It did...Reactions0reactionsComments6 comments
Treatment Question...Hi I have mg and taking prydistmeneand predestalone does this help double vision?...Reactions0reactionsComments12 replies
My Journey Continues...Earlier I wrote about being 73 and waiting for help. I felt pretty hopeless. Since then I have met with my neurologist. It was a great meeting. My diagnosis was...Reactions0reactionsComments2 comments
Community Views: Having a Thymectomy...One treatment for myasthenia gravis (MG) is a thymectomy. A thymectomy is a surgery on your chest. The surgery removes the thymus gland, which is near the heart. For many...Reactions0reactionsComments7 comments
The Unusual Night with Myasthenia Gravis...It's nothing new for me to go to bed around 8:30 PM. I'm not usually tired at that time, the problem is I no longer have any core body strength...Reactions0reactionsComments3 comments
Friendship Challenges with MG...I have had the opportunity to talk to 2 different men who stated they were interested in knowing me. So I told them about the MG and the disabilities it...Reactions0reactionsComments3 comments
Long Journey to Diagnosis...I am an 80-year-old woman who wasn’t diagnosed with MG until I was almost 75. I have had symptoms of the disease since I was an older teenager, but no...Reactions0reactionsComments9 comments
Looking for doctor to treat my mg...I am in Westpalm Beach Florida and looking for a doctor who has experience treating Mayosthesia gravis Thx Joe Patel...Reactions0reactionsComments2 replies
Issues That Made Me Despise My Power Wheelchair...I really despise my power wheelchair. I have not liked it since the day it was delivered! I am in a power chair because of myasthenia gravis (MG) weakness and...Reactions0reactionsComments2 comments
Did You Massage Your Thymectomy Scar?...Many hospitals and health institutions recommend scar massaging a few weeks post-operation. Different massaging methods may be suggested, but they all have the same purpose. The aim of scar massaging...Reactions0reactionsComments8 repliesThymectomySurgeryNewly Diagnosed
Ultomiris vs Vyvgart...My doctor is wanting to switch me from Ultomiris to Vyvgart. I wanted to know if there is anyone who has made the same switch - would like to hear...Reactions0reactionsComments7 repliesGeneralized MG
vyvgart vs IVIG...Just wondering whatever anyone can share--from personal knowledge--about vvgart and IMIG ... especially success rates and side affects. I have just been told about IVIG and I saw an ad...Reactions0reactionsComments11 repliesResearch & Clinical Trials
My Experience with IVIG & Tips...The article I just read about IVIG provides great information. I can't take steroids like Prednisone so, when Mestinon alone wasn't enough, my wonderful neurologist suggested a trial of IVIG...Reactions0reactionsComments3 comments
Yes Connie, This Is Another Connie...Well, I am 72 and was diagnosed this last September. I think I have had symptoms for years and blamed them on other things... weakness in walking because of my...Reactions0reactionsComments4 comments
