Weekly episodes of sounding and looking drunk. GP suggests menopause, but could it something more?...I am writing this post on behalf of my mum and it's going to be a lengthy one. She is 52, no pre-existing health conditions established, although she did have...Reactions0reactionsComments4 repliesSymptoms
Looking for doctor...I’m hoping to move to Georgia to live with my daughter and looking for a doctor in the Savanna area. Hopefully someone in the community can refer me to someone...Reactions0reactionsComments3 repliesCaregiving
MG Has Changed My Perspective on Yoga...I didn't do yoga, let alone try it, before I started having myasthenia gravis (MG) symptoms. I imagined yoga as a long stretching session, something I was already doing. Typically... By Jodi Enders3 min readBookmark for laterReactions0reactionsComments8 comments
Encouragement from Strangers...For the most part, writing articles about my life with myasthenia gravis (MG) is pretty easy to do. I have read once that to be a good writer, you write... By Sally Farrier2 min readBookmark for laterReactions0reactionsComments4 comments
Thymectomy...Hi just to let the community know that since the thymectomy to remove a thymoma I have had three ct scans and I am pleased to say that all have...Reactions0reactionsComments5 repliesAutoimmune Diseases
It's Been 31 Years Now...I was diagnosed with MG in 1992 after being subjected to every kind of blood work and test available at that time. But, nothing was really positive until my doctor... By 1 min readBookmark for laterReactions0reactionsComments1 comments
Out of Remission: Adding a Second Azathioprine...My MG had been in remission for ten plus years. It was under control due to Azathioprine (50 mg) yet it fell out of remission. After a few months of... By ralsted1 min readBookmark for laterReactions0reactionsComments16 comments
medication side effects...Hi. I recently started mestinon. I was having generalized weakness, shortness of breath, double vision/very blurry vision and ptosis. I was at a point that brushing my teeth is difficult...Reactions0reactionsComments2 replies
Will you take our In America survey and help others understand the true impact of MG?...**SURVEY NOW CLOSED** To better understand the patient experience and realities of MG, we are fielding our 3rd Myasthenia Gravis In America survey. By taking this anonymous survey, you can...Reactions0reactionsComments3 replies
The Importance of Finding a Doctor Who Specializes in MG...Throughout my years living with myasthenia gravis (MG), I’ve had my fair share of doctors. I’ve also been in between doctors when the one I had unexpectedly went on permanent... By Mallory San Nicolas3 min readBookmark for laterReactions0reactionsComments12 comments
Diagnosis - New Symptoms?...Hello, I am so thankful for this forum. Your replies have been a tremendous help. I went to my neurology appointment today, and he immediately referred me to a bigger...Reactions0reactionsComments5 repliesSymptomsDiagnosis
Preparing for Winter with a Power Chair...As we prepare for colder weather, it’s time to think about winterizing our outdoor living spaces. It’s bad enough to manage walking on wet or icy surfaces - but what... By Janice Koehn6 min readBookmark for laterReactions0reactionsComments0 comments
Difficulty swallowing while sleeping ...I have difficulty every night swallowing phlegm approx 4 hours every night after I have fallen asleep. I wake up, drink a lot of water and go back to sleep...Reactions0reactionsComments5 repliesAutoimmune Diseases
Therapies to relieve symptoms...Hey everyone, I'm looking for some therapies that might help relieve some of my symptoms. For a bit of background... I'm 26 and recently diagnosed with Myasthenia Gravis, whilst my...Reactions0reactionsComments5 repliesGeneralized MGNewly DiagnosedCoping
Ocular MG...I was diagnosed by a neuro opthamologist but my blood tests were negative. Even though I have ptosis, the consulting neurologist said that he did not believe I have this...Reactions0reactionsComments6 replies
Muscle Weakness...My dad is in the middle of his third MG crisis in 18 months, the latest has included ventilator for 12 days —the past few days (no longer in ICU...Reactions0reactionsComments1 replies
The Challenges of Seronegative Myasthenia Gravis...In this guest post, Cheri Higgason writes about the challenges of obtaining a seronegative myasthenia gravis diagnosis. As someone who has experienced it firsthand, she encourages others to keep pushing... By Editorial Team 6 min readBookmark for laterReactions0reactionsComments32 comments
Good News! ...I was called by a neurology department at st. Claire hospital. They had a cancellation that needed to be filled! I was so relieved to get an appointment a month...Reactions0reactionsComments1 repliesCaregiving
Weakness in my neck and back!...My neck and back muscles were allowing my head to hang forward. Spent five days in hospital. They pumped steroids into me each day. Came out with my head up...Reactions0reactionsComments4 replies
Life Change at 73...Four months ago, in September 2022, I began this journey with shortness of breath. I was very active, swimming twice a week, walking three miles a day, volunteering, busy with... By Connie1 min readBookmark for laterReactions0reactionsComments4 comments
