Toilet and Bathroom Aids for MG...Some may find this topic a little embarrassing, but elimination is a fact of life and is nothing to be embarrassed about. As someone living with myasthenia gravis (MG), I've... By Janice Koehn2 min readBookmark for laterReactions0reactionsComments0 comments
what is the best way to deal this?...newly diagnosed,what can I expect in the future?...Reactions0reactionsComments2 repliesCopingDiet & NutritionIntimacy & Relationships
Can Anybody Understand?...I have myasthenia gravis (MG)! Each minute of each day can change rapidly, leaving my life in limbo when it comes to what I'm able to do. Sometimes daily life... By Sally Farrier2 min readBookmark for laterReactions0reactionsComments5 comments
My Experiences with Doctors and Misdiagnosis...It's been a long hard battle for a diagnosis over the years. The past 2 years have been both the best and the worst. After 10 years of remission from... By Sally Farrier3 min readBookmark for laterReactions0reactionsComments5 comments
Oral Care Products for People with MG...People with myasthenia gravis (MG) may experience individual struggles with daily oral care. I previously talked about risks at the dentist and tips on how to prepare for a dentist... By Janice Koehn2 min readBookmark for laterReactions0reactionsComments0 comments
Diet and suppliments...Are there any guidelines for diet and suppliments with MG?...Reactions0reactionsComments5 repliesDiet & Nutrition
10 Week Update: My Vyvgart Experience...My Vyvgart treatment started May 18, 2022. I am at 10 weeks from that start date. Here is an earlier update I posted. Included in my start kit was a... By PatriceNo1 min readBookmark for laterReactions0reactionsComments13 comments
Detected Late?...I am a 57-year-old male, a university teacher in India. I was diagnosed with MG only about a year ago, but now I think I may have been living with... By Sanjeev1 min readBookmark for laterReactions0reactionsComments7 comments
Thymectomy...Would you all please describe what it was like before and after having a thymectomy including what your recovery was like? I am most likely going to have one but...Reactions0reactionsComments9 repliesThymectomy
A tuning point of healing MG...My healing journey reached a turning point when I first got in touch with self-healing Qigong meditation. I was in my friend’s car. His wife showed me the Chinese book...Reactions0reactionsComments8 repliesAutoimmune DiseasesAwareness
Myasthenia flare up ...Hi all, I was diagnosed at 21 years old, with mg and thymoma over 2 years ago. I was treated with steroids, IV and chemotherapy for thymoma tumour and have...Reactions0reactionsComments2 repliesAwarenessCrisis
The Lessons We Teach Our Children...The thing that I find most challenging about having myasthenia gravis (MG) might surprise you. It’s not the double vision, the prednisone roller coaster, or even the times where my... By Mallory San Nicolas3 min readBookmark for laterReactions0reactionsComments0 comments
Didn't Know I Really Had MG Until My Crisis!...I was diagnosed in March of 2021. The droopy eye was the beginning, and then my speech started to go wonky. But a quick intervention with the neurology team gave... By CommunityMember8161 min readBookmark for laterReactions0reactionsComments7 comments
Severity of symptoms...My husband was experiencing muscle weakness in his legs for several years - needing to frequently "rest" between activities. We talked to several doctors with no real suggestions. Last year...Reactions0reactionsComments2 repliesNewly DiagnosedSymptomsDiagnosis
Domestic and Sexual Abuse in People with Disabilities...Editor's note: Content warning - This article includes experiences with sexual assault, domestic abuse, and violence. I am former Certified Domestic Abuse Advocate of 10 years, and I also have... By Sally Farrier3 min readBookmark for laterReactions0reactionsComments0 comments
My self healing journey...I was diagnosed as ocular MG in 2006, double vision was the only symptom. I got treatment of prednisone , starting from 60 mg, taping down to low doze after...Reactions0reactionsComments5 repliesAwarenessFriends & FamilyOcular MG
Myasthenia Gravis-Friendly House Adaptations...We recently conducted the Inaugural Myasthenia Gravis (MG) In America survey. One question on the survey asked, "What changes or modifications to your household/living space have you made since you... By Editorial Team 3 min readBookmark for laterReactions0reactionsComments8 comments
I Was Prescribed MG Cautionary Drugs...In previous articles, I've talked about having the symptoms of myasthenia gravis (MG) for 48 years before being diagnosed. At times these symptoms were quite severe. Now in my 60... By Sally Farrier2 min readBookmark for laterReactions0reactionsComments2 comments
How Do I Get Answers with MG?...I know many people with mysterious symptoms, such as those that appear with myasthenia gravis (MG), who are finding it increasingly difficult to find qualified physicians to diagnose and treat... By Janice Koehn2 min readBookmark for laterReactions0reactionsComments0 comments
Living With Two Rare Diseases...12 years ago I was diagnosed with MG. I couldn't swallow, had a very hard time talking, was fatigued, weak, and had little or no control of my tongue. Anytime... By CommunityMember7453 min readBookmark for laterReactions0reactionsComments2 comments
