Role Reversal...After almost 50 years of marriage, hubby and I were "used to one another." A lot of things went without saying. We had come through a lot of health scares...Reactions0reactionsComments2 comments
What Is Congenital Myasthenic Syndrome?...Myasthenia gravis (MG) is a disease that causes weakness and fatigue in muscles that you voluntarily control. It is an autoimmune disease. This means that your immune system mistakes normal...Reactions0reactionsComments0 comments
IVIG Side Effects...IVIG delivers healthy antibodies to improve an MG flare or crisis but can cause side effects. Headaches, chills, dizziness, and fluid retention are commonly reported (https://myasthenia-gravis.com/plasma-exchange-ivig). What rate of flow...Reactions0reactionsComments24 repliesSide EffectsTreatmentMuscle Weakness
Sfemg ...Hello! I recently had a sfemg. In the frontalis I had 3 abnormally high jitters out of 20 pairs, but one of them was "uncertain". Then they tested orbicularis oculi...Reactions0reactionsComments0 replies
MG During My Pregnancy...I get asked a lot by other women who have myasthenia gravis (MG) what it was like for me when I was pregnant. While my story is a little different...Reactions0reactionsComments2 comments
Awaiting possible diagnosis...Hi, am new to these boards. I’m 52 and living in the UK. I mentioned an intermittently droopy right eyelid to my optometrist about 4 months ago who referred me...Reactions0reactionsComments5 repliesSymptomsDiagnosis
Toll Prednisone Took on Your Body...What impact did Prednisone have on your body? What symptoms did you experience while on the steroid? How was your experience weaning off the medication? Have you struggled to do...Reactions0reactionsComments85 repliesSide EffectsTreatmentNewly Diagnosed
MG and going to the dentist...I have MG and I am scared to get my mouth numbed up at the dentist. Does a person with MG do ok with this?...Reactions0reactionsComments5 repliesCoping
Frustration...So after being told that I was in remission and being encouraged to cease my mycophenolate which I was not comfortable with I now find out through new blood tests...Reactions0reactionsComments1 replies
Thankful, Grateful...I was diagnosed in 1974 with this disease. I had double vision and was very weak in my arms. I fell down the steps going out the front door with...Reactions0reactionsComments2 comments
MG Warrior...I am alone! No one understands what it's like for me. There's that deep pain inside, I just want to cry! The feeling is there and I just want to...Reactions0reactionsComments12 comments
Dressing Aids...Myasthenia gravis (MG) causes some of us to feel fatigued all or most of the time. So how do we manage our daily hygiene and getting dressed for the day?...Reactions0reactionsComments6 comments
Can You Donate Blood With Myasthenia Gravis?...Donating blood helps people in local hospitals who need blood transfusions. It benefits people who have lost blood from transplants or surgery. It also helps people who cannot make enough...Reactions0reactionsComments1 comments
I've bee n prescribed CellCept...Anyone out there using cellcept now who can give me some information, etc??? Reading about all the possible side effects is lots of fun, if you know what I mean!...Reactions0reactionsComments3 repliesAutoimmune DiseasesGeneralized MGAwareness
Active todayFirst Symptoms...What were the first MG symptoms you experienced? How long did they persist before you were diagnosed? How long until you felt you possibly had something serious? - Jodi, Team...Reactions0reactionsComments11 repliesSymptomsDiagnosisAwareness
An MG Marriage...My husband didn’t marry me when I was sick. He had no idea what was in store for his or our future when he got down on one knee and...Reactions0reactionsComments3 comments
My Thymectomy and Me...It was January 2021, a new year. My first neurologist appointment of the year, my doctor and I decided that the next step was a thymectomy surgery. I was a...Reactions0reactionsComments21 comments
Eculizimab treatment in seronegative Mg...Hello there! I am writing this article via translation. So there may be mistakes in my explanation, sorry.. I live in Istanbul, Turkey. I am 42 years old female and...Reactions0reactionsComments0 replies
Bathing Tips for MG...One of my biggest problems with range of motion is using my left arm due to pain from the left side of my neck, shoulder, and upper back that radiates...Reactions0reactionsComments0 comments
Been ghosted by my neuro's PA...Early this year, just before I got my monthly shot in the eye, I mentioned to my retina specialist that my left eye would suddenly go droopy and I would...Reactions0reactionsComments5 repliesNewly DiagnosedHealthcare TeamTreatment