Unprofessional/rude healthcare professionals ...I had a neurologist appointment today with a new neurologist I'd not met before and it was such a bad appointment. I'm the kind of person (and I also advocate...reactions2repliesHealthcare TeamCoping
Financial Assistance Available Through The National Organization for Rare Diseases...NORD is a non-profit organization. This is from their website. "We provide patient assistance programs to help individuals living with rare diseases: Obtain medication Receive financial help with insurance premiums...reactions2repliesCostInsurance & DisabilityResearch & Clinical Trials
FeaturedDo You Have Seronegative Myasthenia Gravis? What Treatment Has Improved Your Symptoms Best?...Are you diagnosed with seronegative MG? Which treatments have you been approved for? Which have you tried? Which form of treatment offered you the most improvement, and what doses? -...reactions181repliesSeronegativeTreatmentDiagnosis
Prosthetic Contact Lenses...Have you tried prosthetic contact lenses? Did they improve your Myasthenia gravis eye symptoms and vision? - Jodi, Team Member...reactions3repliesVisionTreatmentCoping
Myasthenia Gravis Does Not Stop Us From Making Memories...Since my myasthenia gravis (MG) diagnosis, I have endured my hands going weak when I use them intensely. I have been on the road towards remission since my diagnosis. Yet...reactions3comments
Managing expectations...Hey folks - I'm pretty new to this, having been diagnosed with antibody positive MG in January. Currently, I am only experiencing ptosis and very occasional diplopia, both of which...reactions4repliesOcular MGSymptomsSurgery
Getting a Second Opinion...A diagnosis that does not feel right or a misdiagnosis can be overwhelming. You may have many questions about your diagnosis. You may also be curious about your treatment options...reactions4comments
Devastating Personal Experience...I had a heart stent implanted. The following day, I could not walk, the pain was too much. My doctor said it was rheumatism. I said I didn’t have rheumatism...reactions7comments
Anti-MuSK Myasthenia Gravis...This past December, I had all the symptoms of myasthenia but my clinic, after some blood work, said that I had a viral infection. I waited another 2 weeks and...reactions3comments
Numbness and tingling in limbs...I have recently been diagnosed as having MG with MuSK. About 5 months ago I started feeling pain around my right elbow. My PCP diagnosed it as tennis elbow. About...reactions3replies
Surgery caused an MG crisis and Death (Throat stopped working)...My mom (74 yrs. old) recently passed away after being approved for a surgery to fix her broken arm. The anesthesia and surgery created enough stress that triggered a crisis...reactions3repliesSurgeryCrisisTriggers
Can MGnegative patient take VYTGARD...My doctor subscribed it for me and I am MG negative FDA only approved for MG positive...reactions2repliesGeneralized MG
Spouse has MG and Fibromyalgia ...How are you handling a spouse with MG and Fibro? How are your spirits? I am frustrated and I know she is too. Tips?...reactions3repliesIntimacy & RelationshipsFriends & FamilyCaregiving
Mestinon causing too frequent bowel movements....Does anyone else have this problem and is there a work around? I am currently taking half of a 60 mg three times a day to moderate the side effects....reactions4replies
Pretty sure I have MG...Hello! I have a long and complicated history so I won’t get too detailed with it. I have been trying to get a diagnosis for my muscle weakness and mobility...reactions3repliesMuscle Weakness
The Longest Day: Single Fiber Electromyography Testing...We'll admit it now. We put it off. The definitive test that would have helped my hubby's team close in on a difficult diagnosis of seronegative myasthenia gravis was put off...reactions6comments
How Pets Add Value to My Life with MG...Once my medication controlled my myasthenia gravis (MG), I started doing pretty well. However, over the past 4 years, MG and my emotions have been challenging. During this time, my...reactions6comments
Dance...I just got diagnosed with MG 3 days ago. I'm still in the hospital trying to regain my strength. I was fine one day...painting my kitchen, taking my grandkids to...reactions2replies
Ivig treatment at home ...I have been approved by Medicare for IVIG treatments at home but was informed by Optim Infusion there is a $4239.50 out of pocket expence. Anyone know anything about this....reactions6replies
