Conserving Energy...I don't know if this has been brought up... When I have several things I want to accomplish I think of all that energy. How can I do all of... By Gramma Louise1 min readBookmark for laterReactions0reactionsComments4 comments
Bathing Aids and Tools for Myasthenia Gravis...When we are struggling with myasthenia gravis (MG) symptoms, bathing can be difficult. If you tire easily, try resting before bathing. I almost always bathe right after rising in the... By Janice Koehn2 min readBookmark for laterReactions0reactionsComments0 comments
Shaking (tremor) and myasthenia...Hello! I was diagnosed with myasthenia gravis almost a year ago. I had slurred speech, difficulty swallowing and chewing, and than after some time my hands would get weak. The...Reactions0reactionsComments25 repliesSymptomsMuscle Weakness
Tips for the Summer Heat...The heat is not our friend. Not with myasthenia gravis at least. It may send us spiraling downhill fast, and it does for many including myself. It actually took me... By Mallory San Nicolas2 min readBookmark for laterReactions0reactionsComments13 comments
Very Scared...I just was diagnosed the first of this year they out me on steroids till I could see nuro see is saying its just me eyes I can barely walk...Reactions0reactionsComments2 replies
Congenital myasthenic syndrome...I'm a Brit in my mid-seventies living in Germany and have had CMG for the past 35 years. CMG means that I have a genetic defect, not an auto-immune disease...Reactions0reactionsComments7 replies
Newly diagnosed ...Hi all , after having covid in October 2021 I started getting double vision, I had blood tests & was told I have mg , I have been on medication...Reactions0reactionsComments2 replies
New diagnosis of MG...I just had my first visit with a neurologist after I tested positive for MG back in November. It seems my double vision got worse a couple of years back...Reactions0reactionsComments3 replies
An Interview With Chef Sean Brock: Pursuing Your Passion With MG...Chef Sean Brock is an award-winning chef and restaurateur who is focused on Southern cuisine. Sean is the winner of the 2010 James Beard Award for Best Chef, Southeast. He... By Editorial Team 2 min readBookmark for laterReactions0reactionsComments0 comments
A Break in the Chaos...This whole week so far has been wonderful! The temperature outside is 90 degrees but it feels like it's 100 degrees. Tomorrow it's supposed to be even hotter. I can't... By Sally Farrier2 min readBookmark for laterReactions0reactionsComments0 comments
What medical testing is OK if you have gMG?...Orthopedic specialist is wanting to do multiple tests to evaluate several issues. These include MRI, nerve conduction tests, mylogram with dye, etc. Can't find internet sites that discuss medical testing....Reactions0reactionsComments3 repliesGeneralized MG
PVCs ...I recently saw an article, quite a technical medical article, they talked about the possibility of PVCs, premature Ventricular contractions, and MG. Do we know anything about the correlation if...Reactions0reactionsComments1 replies
The 2024 Social Health Awards Program...Editorial Note: Nominations for 2024 are now closed. We are very excited to announce the launch of the 2024 Social Health Awards program! The Social Health Awards is an awards... By Editorial Team 1 min readBookmark for laterReactions0reactionsComments0 comments
Potential New Therapies for MG...There are several new emerging pharmaceuticals for myasthenia gravis (MG). Many of these therapies have a novel mechanism of action, thereby offering a new potential treatment for people who do... By Canadian Pharmacist2 min readBookmark for laterReactions0reactionsComments8 comments
What Not to Say to Someone with MG...These are variations on things people have actually said to me, in my real life. Please, for the love of all you hold dear, don’t say these things to anyone... By Zach McCallum4 min readBookmark for laterReactions0reactionsComments29 comments
My Vyvgart Experience...I am AChR-positive, and allergic to Prednisone, so my treatment is Pyridostigmine only. I was at 60 MG 5 times a day and struggling. I have received 4 rounds of... By PatriceNo3 min readBookmark for laterReactions0reactionsComments9 comments
Myasthenia Gravis and Dental Procedure Risks...For more information on dental care and how to prepare for an appointment, check out the article, "The Struggle with a Dental Visit." What makes oral care such a big... By Janice Koehn2 min readBookmark for laterReactions0reactionsComments11 comments
GmG...I am a 62 year old female diagnosed in 1998 with myasthenia gravis had a thymectomy and other treatments went into remission for over 20 years remission living in Florida...Reactions0reactionsComments4 replies
Massage Therapy School and Myasthenia Gravis...It took doctors 48 years to diagnose me with myasthenia gravis (MG). During this time, I had a lot of flares. They all looked a little different than what MG... By Sally Farrier3 min readBookmark for laterReactions0reactionsComments0 comments
A New Life with Myasthenia Gravis...My journey with myasthenia gravis started officially in 2018, but the symptoms started as early as 2017, by the time I started my clinical rotation in med school. Night shifts... By hi_im_ais3 min readBookmark for laterReactions0reactionsComments3 comments