What Qualities Should I Look for in a Doctor?...The path to a myasthenia gravis (MG) diagnosis can be exhausting, but finding the right doctor can make a huge impact. We had the opportunity to hear from our patient...Reactions0reactionsComments12 comments
Antibody Blood Test Timing...Are blood test results affected by the timing of an antibody blood test draw with the immediate level of Myasthenia symptoms?...Reactions0reactionsComments2 replies
Myasthenia what? ...I have been dealing with chronic Lyme disease for several years and have had different types of pain so I thought the weakness in the left side of my mouth...Reactions0reactionsComments6 replies
Two Steps Forward, One Step Back ... the MG Dance...Myasthenia gravis (MG) is sometimes a little like Lucy and the football. You make careful life changes, modify your goals, take your meds, follow doctors’ orders, and symptoms seem to...Reactions0reactionsComments5 comments
infusions...I have had 3 infusions of oxidam. How long until see improvements?...Reactions0reactionsComments3 replies
What Now?...I am so frustrated, I'm not quite sure what to do! It already took 48 years to get a diagnosis of myasthenia gravis (MG) - the entire time there were...Reactions0reactionsComments5 comments
Diagnosed During A Pandemic...March of 2020, the country shut down. And at the end of that month, it seemed like so did my body? I began to have a slight eyelid droop for...Reactions0reactionsComments7 comments
IVIG infusion ...I was told by my dr. I can’t have that infusion because I had 2 cancers back in 2008 and the side effect of that infusion is cancer ! I...Reactions0reactionsComments2 replies
Toilet and Bathroom Aids for MG...Some may find this topic a little embarrassing, but elimination is a fact of life and is nothing to be embarrassed about. As someone living with myasthenia gravis (MG), I've...Reactions0reactionsComments0 comments
what is the best way to deal this?...newly diagnosed,what can I expect in the future?...Reactions0reactionsComments2 repliesCopingDiet & NutritionIntimacy & Relationships
Can Anybody Understand?...I have myasthenia gravis (MG)! Each minute of each day can change rapidly, leaving my life in limbo when it comes to what I'm able to do. Sometimes daily life...Reactions0reactionsComments5 comments
My Experiences with Doctors and Misdiagnosis...It's been a long hard battle for a diagnosis over the years. The past 2 years have been both the best and the worst. After 10 years of remission from...Reactions0reactionsComments5 comments
Oral Care Products for People with MG...People with myasthenia gravis (MG) may experience individual struggles with daily oral care. I previously talked about risks at the dentist and tips on how to prepare for a dentist...Reactions0reactionsComments0 comments
Diet and suppliments...Are there any guidelines for diet and suppliments with MG?...Reactions0reactionsComments5 repliesDiet & Nutrition
10 Week Update: My Vyvgart Experience...My Vyvgart treatment started May 18, 2022. I am at 10 weeks from that start date. Here is an earlier update I posted. Included in my start kit was a...Reactions0reactionsComments13 comments
Detected Late?...I am a 57-year-old male, a university teacher in India. I was diagnosed with MG only about a year ago, but now I think I may have been living with...Reactions0reactionsComments7 comments
Thymectomy...Would you all please describe what it was like before and after having a thymectomy including what your recovery was like? I am most likely going to have one but...Reactions0reactionsComments9 repliesThymectomy
A tuning point of healing MG...My healing journey reached a turning point when I first got in touch with self-healing Qigong meditation. I was in my friend’s car. His wife showed me the Chinese book...Reactions0reactionsComments8 repliesAutoimmune DiseasesAwareness
Myasthenia flare up ...Hi all, I was diagnosed at 21 years old, with mg and thymoma over 2 years ago. I was treated with steroids, IV and chemotherapy for thymoma tumour and have...Reactions0reactionsComments2 repliesAwarenessCrisis
The Lessons We Teach Our Children...The thing that I find most challenging about having myasthenia gravis (MG) might surprise you. It’s not the double vision, the prednisone roller coaster, or even the times where my...Reactions0reactionsComments0 comments
