Deep frustration and sadness after finding the love of my life...Hi all, my name is Lucienne, i,m a 57 year old woman from The Netherlands. I,m so depressed and sad that i...reactions11replies
Immunotherapy (stem cell)...Does anyone have experence treating autoimmune MG with immunotherapy (stem cell) treatments simular to what is used in cancer treatment? I am...reactions4repliesTreatment
What is myasthenia gravis?...What are some tips to help me with myasthenia gravis?...reactions1replyAwarenessAssistive DevicesGeneralized MG
Flying with Incontinence: Going Through Airport Security...I've flown a few times, and maybe a dozen times before having problems with myasthenia gravis (MG) and incontinence. As we all...reactions2comments
What Are Prism Glasses and Can They Help People With Myasthenia Gravis?...Weakness of the muscles that control eye movement often causes the first symptoms of myasthenia gravis (MG). While there are therapies available...reactions38comments
Three crisis in 5 months...My Mg manifests itself in my ability to be able to walk along with vision neck muscle and not to much in...reactions8repliesCopingMuscle WeaknessSpeech
Hereditary MG...My mother in law told me her mother had MG and she died in late 50s due to complications from the disease...reactions3replies
Getting Back to a Semi-Normal Life with Myasthenia Gravis...It has been a long road these last 3 years with myasthenia gravis. In just the blink of an eye, I have...reactionscomments
The Wave of It All!...My name is Grady. I was diagnosed with myasthenia gravis four years ago. This past year, 2023, I began noticing that my...reactions15comments
Steroids, Rituximab and summer...I have diagnosed with gMG (seropositive)since Feb 2022. I was on steroids since then. I stared to have issues with my vision...reactions11replies
Not reacting to treatments...Hi there im a caretaker and my spouse has MG 3 weeks ago he was not feeling good since the new IV...reactions1replyCaregivingAutoimmune DiseasesGeneralized MG
I never heard of myasthenia gravis until the neuroglist said I have it. ...I noticed that I would occasionally have double vision and that my left eye was not behaving. Having had retina problems, I...reactions16repliesOcular MGSide Effects
What Time of the Year Is Best and Worst for Your MG?...Myasthenia gravis can be triggered uniquely for each individual that lives with it. The time of the year may affect how many...reactionsrepliesTriggersSymptomsWeather
Did Your MG First Symptoms Happen All at Once, a Crisis?...A Myasthenic Crisis is the most severe event Myasthenia gravis can cause. Although it can vary, a crisis typically involves weakening multiple...reactionsrepliesNewly DiagnosedCrisisAwareness
Do You Have a Preference of Older or Younger Doctors to Treat MG?...Do you prefer a young or older healthcare professional to treat your MG? Age by no means determines how much knowledge or...reactionsrepliesHealthcare TeamTreatmentNewly Diagnosed
Myasthenia Gravis and Reducing My Mestinon Dosage...We’ve just passed the 2 year anniversary of my thymectomy, and the results I've seen continue to impress. I'm currently on the...reactions18comments
Don’t Waste Energy Stressing Over Things That Didn’t Work in Your Favor...During a recent paddleboarding outing, my boyfriend and I were returning to the boat ramp, only minutes away, when I hit a...reactionscomments
Myasthenia Gravis and Cardiovascular Medication...Myasthenia gravis may pose a risk to patients using cardiovascular medications to treat heart conditions (coronary artery disease, hypertension, high cholesterol, and...reactions20repliesTreatmentSymptomsNewly Diagnosed
MG Terminology...I bet we all remember the first few years after being diagnosed with Myasthenia gravis and constantly finding new MG-related terms we...reactions2repliesDiagnosisAwarenessNewly Diagnosed
Neck Pain...Do you have Myasthenia gravis and experience neck pain? https://myasthenia-gravis.com/clinical/pain What does the sensation feel like, and when do you notice it?...reactionsrepliesSymptomsTips & AdviceMuscle Weakness
