Getting a Second Opinion...A diagnosis that does not feel right or a misdiagnosis can be overwhelming. You may have many questions about your diagnosis. You may also be curious about your treatment options...Reactions0reactionsComments4 comments
Devastating Personal Experience...I had a heart stent implanted. The following day, I could not walk, the pain was too much. My doctor said it was rheumatism. I said I didn’t have rheumatism...Reactions0reactionsComments7 comments
Anti-MuSK Myasthenia Gravis...This past December, I had all the symptoms of myasthenia but my clinic, after some blood work, said that I had a viral infection. I waited another 2 weeks and...Reactions0reactionsComments3 comments
Numbness and tingling in limbs...I have recently been diagnosed as having MG with MuSK. About 5 months ago I started feeling pain around my right elbow. My PCP diagnosed it as tennis elbow. About...Reactions0reactionsComments3 replies
Surgery caused an MG crisis and Death (Throat stopped working)...My mom (74 yrs. old) recently passed away after being approved for a surgery to fix her broken arm. The anesthesia and surgery created enough stress that triggered a crisis...Reactions0reactionsComments3 repliesCrisisSurgeryTriggers
Can MGnegative patient take VYTGARD...My doctor subscribed it for me and I am MG negative FDA only approved for MG positive...Reactions0reactionsComments2 repliesGeneralized MG
Spouse has MG and Fibromyalgia ...How are you handling a spouse with MG and Fibro? How are your spirits? I am frustrated and I know she is too. Tips?...Reactions0reactionsComments3 repliesIntimacy & RelationshipsFriends & FamilyCaregiving
Mestinon causing too frequent bowel movements....Does anyone else have this problem and is there a work around? I am currently taking half of a 60 mg three times a day to moderate the side effects....Reactions0reactionsComments4 replies
Pretty sure I have MG...Hello! I have a long and complicated history so I won’t get too detailed with it. I have been trying to get a diagnosis for my muscle weakness and mobility...Reactions0reactionsComments3 repliesMuscle Weakness
The Longest Day: Single Fiber Electromyography Testing...We'll admit it now. We put it off. The definitive test that would have helped my hubby's team close in on a diagnosis of seronegative myasthenia gravis was put off way...Reactions0reactionsComments2 comments
How Pets Add Value to My Life with MG...Once my medication controlled my myasthenia gravis (MG), I started doing pretty well. However, over the past 4 years, MG and my emotions have been challenging. During this time, my...Reactions0reactionsComments6 comments
Dance...I just got diagnosed with MG 3 days ago. I'm still in the hospital trying to regain my strength. I was fine one day...painting my kitchen, taking my grandkids to...Reactions0reactionsComments2 replies
Ivig treatment at home ...I have been approved by Medicare for IVIG treatments at home but was informed by Optim Infusion there is a $4239.50 out of pocket expence. Anyone know anything about this....Reactions0reactionsComments6 replies
New diagnosed ...I just diagnosed s week and just got the hospital on Prednisone hope to start mestinon tomorrow? Need something for tongue and blurry vision! Does it take awhile to start...Reactions0reactionsComments3 repliesAutoimmune Diseases
Imuran again!...20 yrs ago during the first year of my diagnosis my neurologist tried me on Imuran. I wasn't even done with 30 day supply when he stopped it. Now twenty...Reactions0reactionsComments1 replies
Getting a Colonoscopy When You Have Myasthenia Gravis...I know everybody loves to get colonoscopy! I just recently had my third colonoscopy, but it was the first one after being officially diagnosed with myasthenia gravis (MG). Although I...Reactions0reactionsComments8 comments
Unique Struggles of a Young Adult With Myasthenia Gravis...Myasthenia gravis (MG) symptoms can begin at any age, most often beginning for females before they reach the age of 40. Anyone who has had MG as a young adult...Reactions0reactionsComments0 comments
An MG Wedding...I am now 71, but back in 2015, I was married, and then, the next week, I was diagnosed. Droopy eye, trouble swallowing, weakness... I went into crisis while working...Reactions0reactionsComments2 comments
Mouth and scalp ...I'm 52 was diagnosed at 37 and have a strange variety of symptoms like burning mouth and scalp syndrome can't eat watermelon in large portions if I do it trigger...Reactions0reactionsComments2 replies
