What Now?...I am so frustrated, I'm not quite sure what to do! It already took 48 years to get a diagnosis of myasthenia...reactions5comments
Diagnosed During A Pandemic...March of 2020, the country shut down. And at the end of that month, it seemed like so did my body? I...reactions7comments
Toilet and Bathroom Aids for MG...Some may find this topic a little embarrassing, but elimination is a fact of life and is nothing to be embarrassed about...reactions1comment
Can Anybody Understand?...I have myasthenia gravis (MG)! Each minute of each day can change rapidly, leaving my life in limbo when it comes to...reactions5comments
10 Week Update: My Vyvgart Experience...My Vyvgart treatment started May 18, 2022. I am at 10 weeks from that start date. Here is an earlier update I...reactions13comments
Detected Late?...I am a 57-year-old male, a university teacher in India. I was diagnosed with MG only about a year ago, but now...reactions7comments
Didn't Know I Really Had MG Until My Crisis!...I was diagnosed in March of 2021. The droopy eye was the beginning, and then my speech started to go wonky. But...reactions7comments
My Experiences with Doctors and Misdiagnosis...It's been a long hard battle for a diagnosis over the years. The past 2 years have been both the best and...reactions5comments
Domestic and Sexual Abuse in People with Disabilities...Editor's note: Content warning - This article includes experiences with sexual assault, domestic abuse, and violence. I am former Certified Domestic Abuse...reactionscomments
Conserving Energy...I don't know if this has been brought up... When I have several things I want to accomplish I think of all...reactions4comments
Maynard Johnson...Maynard was previously an advocate on Myasthenia-Gravis.com. I'm Maynard Johnson, a self-employed manufacturer’s representative for many different companies. I am also a...
Ashley Lujan...Ashley was previously an advocate on Myasthenia-Gravis.com. Hello! My name is Ashley, which is often just shortened to Ash. I'm a 31-year-old...
Living With Two Rare Diseases...12 years ago I was diagnosed with MG. I couldn't swallow, had a very hard time talking, was fatigued, weak, and had...reactions2comments
Tips for the Summer Heat...The heat is not our friend. Not with myasthenia gravis at least. It may send us spiraling downhill fast, and it does...reactions16comments
An Interview With Chef Sean Brock: Pursuing Your Passion With MG...Chef Sean Brock is an award-winning chef and restaurateur who is focused on Southern cuisine. Sean is the winner of the 2010...reactionscomments
A Break in the Chaos...This whole week so far has been wonderful! The temperature outside is 90 degrees but it feels like it's 100 degrees. Tomorrow...reactionscomments
My Vyvgart Experience...I am AChR-positive, and allergic to Prednisone, so my treatment is Pyridostigmine only. I was at 60 MG 5 times a day...reactions13comments
A New Life with Myasthenia Gravis...My journey with myasthenia gravis started officially in 2018, but the symptoms started as early as 2017, by the time I started...reactions3comments
Massage Therapy School and Myasthenia Gravis...It took doctors 48 years to diagnose me with myasthenia gravis (MG). During this time, I had a lot of flares. They...reactionscomments
Stressful Times Call for Relaxing Times with MG...When you have a disease such as myasthenia gravis (MG), learning how and when to rest and relax is key to a...reactions1comment
