My Journey Continues...Earlier I wrote about being 73 and waiting for help. I felt pretty hopeless. Since then I have met with my neurologist. It was a great meeting. My diagnosis was... By Connie1 min readBookmark for laterReactions0reactionsComments2 comments
Community Views: Having a Thymectomy...One treatment for myasthenia gravis (MG) is a thymectomy. A thymectomy is a surgery on your chest. The surgery removes the thymus gland, which is near the heart. For many... By Editorial Team 3 min readBookmark for laterReactions0reactionsComments7 comments
The Unusual Night with Myasthenia Gravis...It's nothing new for me to go to bed around 8:30 PM. I'm not usually tired at that time, the problem is I no longer have any core body strength... By Sally Farrier3 min readBookmark for laterReactions0reactionsComments3 comments
Friendship Challenges with MG...I have had the opportunity to talk to 2 different men who stated they were interested in knowing me. So I told them about the MG and the disabilities it... By CommunityMember9a806d1 min readBookmark for laterReactions0reactionsComments3 comments
Long Journey to Diagnosis...I am an 80-year-old woman who wasn’t diagnosed with MG until I was almost 75. I have had symptoms of the disease since I was an older teenager, but no... By tjmjones11 min readBookmark for laterReactions0reactionsComments9 comments
Looking for doctor to treat my mg...I am in Westpalm Beach Florida and looking for a doctor who has experience treating Mayosthesia gravis Thx Joe Patel...Reactions0reactionsComments2 replies
Issues That Made Me Despise My Power Wheelchair...I really despise my power wheelchair. I have not liked it since the day it was delivered! I am in a power chair because of myasthenia gravis (MG) weakness and... By Janice Koehn4 min readBookmark for laterReactions0reactionsComments2 comments
Did You Massage Your Thymectomy Scar?...Many hospitals and health institutions recommend scar massaging a few weeks post-operation. Different massaging methods may be suggested, but they all have the same purpose. The aim of scar massaging...Reactions0reactionsComments8 repliesThymectomySurgeryNewly Diagnosed
Ultomiris vs Vyvgart...My doctor is wanting to switch me from Ultomiris to Vyvgart. I wanted to know if there is anyone who has made the same switch - would like to hear...Reactions0reactionsComments7 repliesGeneralized MG
vyvgart vs IVIG...Just wondering whatever anyone can share--from personal knowledge--about vvgart and IMIG ... especially success rates and side affects. I have just been told about IVIG and I saw an ad...Reactions0reactionsComments11 repliesResearch & Clinical Trials
My Experience with IVIG & Tips...The article I just read about IVIG provides great information. I can't take steroids like Prednisone so, when Mestinon alone wasn't enough, my wonderful neurologist suggested a trial of IVIG... By Denilyn1 min readBookmark for laterReactions0reactionsComments3 comments
Yes Connie, This Is Another Connie...Well, I am 72 and was diagnosed this last September. I think I have had symptoms for years and blamed them on other things... weakness in walking because of my... By CommunityMember2c29f62 min readBookmark for laterReactions0reactionsComments4 comments
Cane Use...I was 'sort of' diagnosed with MG by an ophthalmologist who specialized in neurological eye issues -- awaiting blood test results for the Mayo Clinic. Anyway, when I walk my...Reactions0reactionsComments3 repliesAssistive DevicesCopingAwareness
New Mg symptoms or something else....I have some new symptoms not sure if it’s Mg related. My middle, ring and pinky finger will curl in towards the palm of my hand. The other problem is...Reactions0reactionsComments6 repliesAutoimmune Diseases
Cure or Relief...Recently (to me) CBS News released a segment on Tzield; a new medication recently approved by the FDA for some level of relief of Type 1 Diabetes. It was clear...Reactions0reactionsComments1 repliesTreatment
Prevnar 20...Anyone get the prevnar 20 vaccine? Any problems?? Im scheduled for one at 1:00 pm today abd nervous. Help...Reactions0reactionsComments1 repliesAutoimmune Diseases
What Is Medical Gaslighting?...If you have ever felt dismissed by a doctor, you may have experienced a type of bias (prejudice) called medical gaslighting. Medical gaslighting can happen to anyone, but it most... By Editorial Team 3 min readBookmark for laterReactions0reactionsComments9 comments
My experience with University of Chicago neuromuscular clinic-seronegative friensly...I feel like I need a disclaimer or something similar:This is just reflecting on my journey for a diagnosis. UCM has made a HUGE impact on my life and I...Reactions0reactionsComments2 repliesDiagnosis
Facial swelling and throat closure ...I've been dealing with MG for about ten years. From extreme fatigue, drooling, drooping of my eyes and vision issues. This last exacerbation affected my throat , it closed cutting...Reactions0reactionsComments16 repliesAwareness
Relationships, Intimacy, and MG...Myasthenia gravis (MG) is a rare disease, a chronic condition, and often misunderstood. Coping with any one of those factors alone could place a strain on relationships, let alone managing... By Editorial Team 1 min readBookmark for laterReactions0reactionsComments6 comments
