Thank You for Taking Our Survey!...We appreciate you taking the time to answer all of our questions. Your responses will help us better understand life with myasthenia...reactions1comment
Having Surgery Without a Neurologist Consult...We all know there’s a certain amount of risk with surgery and anesthesia under the best of circumstances. Surgeons and anesthesiologists talk...reactionscomments
Excited for Spring...It's spring here and I'm rather excited! Now, that might seem strange to say being that I have myasthenia gravis (MG) and...reactions2comments
Rebekah Dorr...I have been living with MG for nearly 11 years and I have worked as a patient educator, clinical advocate and online...
The Adverse Effects of Heat and Cold When You Have MG...I live in the mid-south where extreme hot weather is the norm late spring through early fall. The heat is accompanied with...reactions6comments
Dealing with MG Weakness and Misconceptions...There is a misconception that if our legs are weak from myasthenia gravis (MG), all we have to do is quit being...reactionscomments
Living with Myasthenia Gravis and My Mood Swings...I grew up a rather passive person. Though things would bother me, I rarely allowed people to see me upset. I considered...reactionscomments
Pillow Packin'...Years ago while undiagnosed, I was desperately looking for ways to help me cope. My muscles were so tired, weak, and hurt...reactions7comments
Myasthenia Gravis Diagnosis After the Age of 55: The Risks...In case you missed it, check out part 1 of this article, "A Myasthenia Gravis Diagnosis After the Age of 55." The...reactions1comment
Having Myasthenia Gravis, COVID, and Pneumonia...While I realize that everyone's experience can be different, this is a personal account of my experience with COVID-19 and myasthenia gravis...reactions5comments
Crisis Time...With a condition as rare as myasthenia gravis (MG), caregivers are often challenged to advocate for appropriate care. That can sometimes require...reactions10comments
Causes of Minor MG Flares and How to Deal with Them...Ever since my medication change to mycophenolate (CellCept), I’ve done quite well! I’ve had very minor issues since then and I’ve lost...reactions6comments
Ask the Advocate: Diagnosis and Grief...Life looks different after a myasthenia gravis (MG) diagnosis. It may take some time to process these changes. While everyone responds differently...reactionscomments
The High Cost of MG Medication and Care...The medical bills that accumulated during my initial diagnosis and treatment of myasthenia gravis (MG) came to thousands of dollars. Fortunately, I...reactions2comments
Take the Health and Media Habits Survey!...Managing a chronic condition is not easy and can be physically and mentally exhausting. What types of media do you use to...reactionscomments
A Little Help From Friends...A rare disease, unique and varied symptoms, a scarcity of specialists ... all these things make people with myasthenia gravis (MG) feel isolated...reactions2comments
Recovering After My First Myasthenia Flare-Up...In case you missed it, check out part 1 of this article, "Dealing with My First MG Flare-Up." My myasthenia gravis symptoms...reactions2comments
Finding a Caregiver for Someone with MG...Life with myasthenia gravis (MG) often requires assistance and support. This care varies by the severity of symptoms and ranges from skilled...reactionscomments
Ask the Advocate: How do You Stay Motivated with MG?...When living with myasthenia gravis (MG), energy levels, muscle strength, and symptoms can change daily. These fluctuations may be frustrating, and at...reactionscomments
Finding The Right Doc Is A Challenge...Hi. My name is Brad. I am 60 years old. My diagnosis was only a week ago, but this process may have...reactions1comment
