The Longest Day: Single Fiber Electromyography Testing...We'll admit it now. We put it off. The definitive test that would have helped my hubby's team close in on a diagnosis of seronegative myasthenia gravis was put off way... By Juliana Texley3 min readBookmark for laterReactions0reactionsComments2 comments
How Pets Add Value to My Life with MG...Once my medication controlled my myasthenia gravis (MG), I started doing pretty well. However, over the past 4 years, MG and my emotions have been challenging. During this time, my... By Janice Koehn3 min readBookmark for laterReactions0reactionsComments3 comments
Dance...I just got diagnosed with MG 3 days ago. I'm still in the hospital trying to regain my strength. I was fine one day...painting my kitchen, taking my grandkids to...Reactions0reactionsComments2 replies
Ivig treatment at home ...I have been approved by Medicare for IVIG treatments at home but was informed by Optim Infusion there is a $4239.50 out of pocket expence. Anyone know anything about this....Reactions0reactionsComments6 replies
New diagnosed ...I just diagnosed s week and just got the hospital on Prednisone hope to start mestinon tomorrow? Need something for tongue and blurry vision! Does it take awhile to start...Reactions0reactionsComments3 repliesAutoimmune Diseases
Imuran again!...20 yrs ago during the first year of my diagnosis my neurologist tried me on Imuran. I wasn't even done with 30 day supply when he stopped it. Now twenty...Reactions0reactionsComments1 replies
Getting a Colonoscopy When You Have Myasthenia Gravis...I know everybody loves to get colonoscopy! I just recently had my third colonoscopy, but it was the first one after being officially diagnosed with myasthenia gravis (MG). Although I... By Sally Farrier2 min readBookmark for laterReactions0reactionsComments8 comments
Unique Struggles of a Young Adult With Myasthenia Gravis...Myasthenia gravis (MG) symptoms can begin at any age, most often beginning for females before they reach the age of 40. Anyone who has had MG as a young adult... By Jodi Enders5 min readBookmark for laterReactions0reactionsComments0 comments
An MG Wedding...I am now 71, but back in 2015, I was married, and then, the next week, I was diagnosed. Droopy eye, trouble swallowing, weakness... I went into crisis while working... By CommunityMemberd48c751 min readBookmark for laterReactions0reactionsComments2 comments
Mouth and scalp ...I'm 52 was diagnosed at 37 and have a strange variety of symptoms like burning mouth and scalp syndrome can't eat watermelon in large portions if I do it trigger...Reactions0reactionsComments2 replies
Blood results - is it MG?...Hi everyone I’m going through tests for MG at the moment as I have a thymoma. I’ve been ill for nearly 18 months now. My AChR level is at 0.51...Reactions0reactionsComments4 replies
What Does It Mean to Be a Rare Disease?...Chances are, you or someone you know has been diagnosed with a rare disease and that is why you are reading this now. You are not alone if you are... By Editorial Team 2 min readBookmark for laterReactions0reactionsComments0 comments
Myasthenia Gravis...Hello. I have MG.After 18 months I'm actually seeing a MG specialist. Neurologist are great,but to have a specialist who opened a MG clinic in a hospital has been great...Reactions0reactionsComments6 replies
Azathioprine (Imuran)...Hello, I am newly diagnosed as of November '22. I am responding well to Pyridostigmine, with speech and swallowing problems greatly reduced. Now my neurologist wants me to take Azathioprine...Reactions0reactionsComments3 repliesNewly DiagnosedTreatment
Myasthenia Gravis and Differential Diagnosis...Myasthenia gravis (MG) is an autoimmune condition. This means it is caused by the immune system attacking the body mistakenly. The symptoms of MG can sometimes look like other conditions... By Editorial Team 3 min readBookmark for laterReactions0reactionsComments7 comments
High Altitude Effects on the Body When You Have MG...My husband and I love Colorado! When we lived in Greeley and Westminster, we would take many day trips into the Rocky Mountains, going west on I-70 or north of... By Janice Koehn3 min readBookmark for laterReactions0reactionsComments6 comments
Not Myasthenia......In 2016, I began the year with prostate cancer surgery. In June, my father died. In July, I experienced ptosis. An ophthalmologist diagnosed a nerve that would improve. It did... By reneroman1 min readBookmark for laterReactions0reactionsComments6 comments
Treatment Question...Hi I have mg and taking prydistmeneand predestalone does this help double vision?...Reactions0reactionsComments12 replies
My Journey Continues...Earlier I wrote about being 73 and waiting for help. I felt pretty hopeless. Since then I have met with my neurologist. It was a great meeting. My diagnosis was... By Connie1 min readBookmark for laterReactions0reactionsComments2 comments
Community Views: Having a Thymectomy...One treatment for myasthenia gravis (MG) is a thymectomy. A thymectomy is a surgery on your chest. The surgery removes the thymus gland, which is near the heart. For many... By Editorial Team 3 min readBookmark for laterReactions0reactionsComments7 comments
