10 Years After Diagnosis......I was diagnosed with gMG in 2013. I was given Prednisone which gave me thoughts of suicide. I was also given Mestinon which has left me with constant muscle fasciculations...Reactions0reactionsComments7 comments
Does this mean I have MG...Hi guys, So I've been unwell for a while and Neuro considered MS. I had a hospital admission last month for Dysphagia and while there they did the ACHR antibody...Reactions0reactionsComments2 repliesDiagnosis
Seronegative MG...Hello! I was diagnosed in March 2020. I am a 30 year old female...I'll give you a little backstory..heads up it will be long! To start- I have never had...Reactions0reactionsComments3 repliesAutoimmune DiseasesMedical MarijuanaNewly Diagnosed
Muscle Weakness...I have been falling for 3 years, in the last 2 years I've fallen 22 time. With good luck so far haven't broken anything. But I am afraid to go...Reactions0reactionsComments8 repliesExerciseMuscle WeaknessDriving
What Happened to My Face?...Years before I was diagnosed with myasthenia gravis (MG), there were times when the left side of my face just seemed to sag way down. For the most part, I'm...Reactions0reactionsComments6 comments
Your Experience Terminating Being Under the Care of a Doctor...Many of us have had at least one healthcare professional that we quit going to see because we believed they didn't provide quality care, listen, be respectful, be thorough, educate...Reactions0reactionsComments0 repliesNewly DiagnosedTreatmentHealthcare Team
Myths and Facts About Steroids...Corticosteroids, commonly referred to as "steroids," are a class of drugs used to treat a variety of medical conditions. There are many myths and misunderstandings about steroids, which can lead...Reactions0reactionsComments0 comments
Seronegative MG...Myasthenia gravis had been a background disease for a good portion of my life until I was roughly 45. I sometimes wonder if menopause was the trigger. The last summer...Reactions0reactionsComments25 comments
MG Flare...What are some ways you get through a Myasthenia flare? It's so disappointing after things have been doing better for a while. I'm reading a lot and thankful that I...Reactions0reactionsComments5 repliesCoping
Coping with Stress When You Have MG...The last few years, I’ve been under a lot of stress. As with anyone, even when we’re happy and feel stress-free, stress is always near. However, there have been several...Reactions0reactionsComments1 comments
Should I Wear a Medical Alert Bracelet for MG?...Myasthenia gravis (MG) is a condition in which the immune system attacks healthy cells in places where the nerves connect to the muscles. Symptoms of MG can change on a...Reactions0reactionsComments7 comments
Medicare supplements/disability...Hello! I will soon be eligible for Medicare for disability. I am fortunate to live in a state where I can purchase supplemental plans under age 65. I expect to...Reactions0reactionsComments2 repliesInsurance & Disability
Travel with refractory MG...Hi friends! I have severe, refractory MG-diagnosed at onset 2 years ago-no other health conditions. I would very much like to travel overseas by plane or boat but am struggling...Reactions0reactionsComments1 replies
Diplopia and prisms?...I was just seen by the optometrist in the ophthalmologist’s office. When I told him that I was still having double vision he put prisms in front of my eyes...Reactions0reactionsComments10 repliesVisionAssistive Devices
I Have Lived with MG Most of My Life...I was diagnosed with MG in 1969 at the age of six. It took forever to figure out what was wrong with me. I would just fall down while I...Reactions0reactionsComments4 comments
My Story Continues......Yes, I was diagnosed last September. I shared my story a few weeks back. As time has gone by I have been getting stronger! I just finished my first four...Reactions0reactionsComments2 comments
Unprofessional/rude healthcare professionals ...I had a neurologist appointment today with a new neurologist I'd not met before and it was such a bad appointment. I'm the kind of person (and I also advocate...Reactions0reactionsComments2 repliesHealthcare TeamCoping
Financial Assistance Available Through The National Organization for Rare Diseases...NORD is a non-profit organization. This is from their website. "We provide patient assistance programs to help individuals living with rare diseases: Obtain medication Receive financial help with insurance premiums...Reactions0reactionsComments2 repliesCostInsurance & DisabilityResearch & Clinical Trials
FeaturedDo You Have Seronegative Myasthenia Gravis? What Treatment Has Improved Your Symptoms Best?...Are you diagnosed with seronegative MG? Which treatments have you been approved for? Which have you tried? Which form of treatment offered you the most improvement, and what doses? -...Reactions0reactionsComments126 repliesSeronegativeTreatmentDiagnosis
Prosthetic Contact Lenses...Have you tried prosthetic contact lenses? Did they improve your Myasthenia gravis eye symptoms and vision? - Jodi, Team Member...Reactions0reactionsComments2 repliesVisionTreatmentCoping
