VYVGART: Has Your IgG (Immunoglobulin G) Gotten Dangerously Low?...Have you been treated with VYVGART for your Myasthenia gravis, and have your IgG (Immunoglobulin G) gotten dangerously low? Did your doctor...reactionsrepliesTreatmentSide EffectsAwareness
Reluctant to diagnose myasthenia gravis...Can anyone please help my neurologist will not acknowledge that 8 have myasthenia even though my antibodies are 205 I also have...reactions2replies
Has an Infection Triggered Your MG?...Have you ever had an infection that ultimately resulted in, whether caused or not, triggered/worsened Myasthenia gravis symptoms or an MG crisis?...reactionsrepliesAwarenessTriggersTips & Advice
Opinion of Your Residing Country's Healthcare/Disability Assistance...Do you think the country you reside in has good healthcare and/or disability assistance? What aspects do you like/dislike? Anything related to...reactionsrepliesTreatmentWork & EmploymentInsurance & Disability
PLEX or IVIG Complications?...Have you had complications or issues arise during or after a PLEX (plasma exchange/plasmapheresis) or IVIG (intravenous immunoglobulin injection) treatment? https://myasthenia-gravis.com/treatment...reactions3repliesTreatmentCrisisTips & Advice
Negative Hospital Experience With MG?...Have you had a negative hospital experience with Myasthenia gravis? Did the staff not have familiarity or knowledge with treating a patient...reactions10repliesSurgeryAwarenessNewly Diagnosed
Pacing Yourself, Pushing Yourself: Managing Energy With a Rare Disease...Editor's Note: This article was written by Natalie Abbott and originally appeared on our partner site RareDisease.net. I am beginning this article...reactions1comment
Aging Gracefully With Myasthenia Gravis...Myasthenia gravis (MG) has not been studied sufficiently in older adults. But, more and more often, MG is being found in the...reactions1comment
How to get more rest...Does anyone have advice or tips on getting more rest. If I take a nap in afternoon it is really difficult to...reactions2repliesNewly Diagnosed
MG symptoms ...Does anyone have stiff trunk like legs, where when you stand more than 5 minutes and you can't bend your legs, also...reactions1reply
Yoga Doesn’t Cure My Autoimmune Diseases...Editor's Note: This article was written by Jessica Hanson and originally appeared on our partner site RareDisease.net. "Oh, you have XYZ disease?...reactions1comment
How do you handle unsolicited advice about MG?...Have you ever received unsolicited advice about your MG? If so, what was the advice and how did you respond?...reactions40repliesCoping
I Wish Society Was More Community Oriented...In the age of technology and capitalism, most adults live independently of each other. Sure, many of us live with others under...reactionscomments
Is the New Year Living up to Your Expectations?...Is the New Year living up to your expectations? Or is it going in a direction you did not wish for? Do...reactionsrepliesCopingDepressionTips & Advice
How can friends and family best support someone with MG?...How can loved ones support and comfort you? What strategies and tips do you have for communicating your needs with family and...reactions19repliesFriends & Family
Pyridostigmine/Mestinon Adverse Reactions...Did you try Pyridostigmine/Mestinon and have adverse reactions causing you to stop taking it? If you are comfortable with sharing, which specific...reactionsrepliesTreatmentSide EffectsAwareness
MG and Diabetes...There is a complex link between myasthenia gravis (MG) and type 2 diabetes. The body’s immune system plays a role in both...reactions4comments
What’s Worse: Drooping Eyelid or Having Eyes Open Thus Blurred/Double Vision More Noticeable?...Common Myasthenia gravis symptoms are the drooping of the eyelids and blurred or double vision, https://myasthenia-gravis.com/symptoms. Have you had treatment improve your...reactionsrepliesOcular MGVisionDriving
My Emotions, Stress, and MG...Recently, I had a health crisis. While I was in the hospital, my husband fell and broke his ankle. During most of...reactions12comments
Active 5 days agoWhat Different Specialists Are In Your Healthcare Team?...What various specialists and doctors make up your healthcare team?...reactions3repliesHealthcare TeamDiagnosisTreatment
