Active 7 days agoMG Flare...What are some ways you get through a Myasthenia flare? It's so disappointing after things have been doing better for a while. I'm reading a lot and thankful that I...Reactions0reactionsComments5 repliesCoping
Coping with Stress When You Have MG...The last few years, I’ve been under a lot of stress. As with anyone, even when we’re happy and feel stress-free, stress is always near. However, there have been several... By Janice Koehn3 min readBookmark for laterReactions0reactionsComments1 comments
Should I Wear a Medical Alert Bracelet for MG?...Myasthenia gravis (MG) is a condition in which the immune system attacks healthy cells in places where the nerves connect to the muscles. Symptoms of MG can change on a... By Editorial Team 3 min readBookmark for laterReactions0reactionsComments7 comments
Medicare supplements/disability...Hello! I will soon be eligible for Medicare for disability. I am fortunate to live in a state where I can purchase supplemental plans under age 65. I expect to...Reactions0reactionsComments2 repliesInsurance & Disability
Travel with refractory MG...Hi friends! I have severe, refractory MG-diagnosed at onset 2 years ago-no other health conditions. I would very much like to travel overseas by plane or boat but am struggling...Reactions0reactionsComments1 replies
Diplopia and prisms?...I was just seen by the optometrist in the ophthalmologist’s office. When I told him that I was still having double vision he put prisms in front of my eyes...Reactions0reactionsComments10 repliesVisionAssistive Devices
I Have Lived with MG Most of My Life...I was diagnosed with MG in 1969 at the age of six. It took forever to figure out what was wrong with me. I would just fall down while I... By jdp5233 min readBookmark for laterReactions0reactionsComments4 comments
My Story Continues......Yes, I was diagnosed last September. I shared my story a few weeks back. As time has gone by I have been getting stronger! I just finished my first four... By CommunityMember2c29f61 min readBookmark for laterReactions0reactionsComments2 comments
Unprofessional/rude healthcare professionals ...I had a neurologist appointment today with a new neurologist I'd not met before and it was such a bad appointment. I'm the kind of person (and I also advocate...Reactions0reactionsComments2 repliesHealthcare TeamCoping
Financial Assistance Available Through The National Organization for Rare Diseases...NORD is a non-profit organization. This is from their website. "We provide patient assistance programs to help individuals living with rare diseases: Obtain medication Receive financial help with insurance premiums...Reactions0reactionsComments2 repliesCostInsurance & DisabilityResearch & Clinical Trials
FeaturedDo You Have Seronegative Myasthenia Gravis? What Treatment Has Improved Your Symptoms Best?...Are you diagnosed with seronegative MG? Which treatments have you been approved for? Which have you tried? Which form of treatment offered you the most improvement, and what doses? -...Reactions0reactionsComments126 repliesSeronegativeTreatmentDiagnosis
Prosthetic Contact Lenses...Have you tried prosthetic contact lenses? Did they improve your Myasthenia gravis eye symptoms and vision? - Jodi, Team Member...Reactions0reactionsComments0 repliesVisionTreatmentCoping
Myasthenia Gravis Does Not Stop Us From Making Memories...Since my myasthenia gravis (MG) diagnosis, I have endured my hands going weak when I use them intensely. I have been on the road towards remission since my diagnosis. Yet... By Jodi Enders2 min readBookmark for laterReactions0reactionsComments3 comments
Managing expectations...Hey folks - I'm pretty new to this, having been diagnosed with antibody positive MG in January. Currently, I am only experiencing ptosis and very occasional diplopia, both of which...Reactions0reactionsComments4 repliesOcular MGSymptomsSurgery
Getting a Second Opinion...A diagnosis that does not feel right or a misdiagnosis can be overwhelming. You may have many questions about your diagnosis. You may also be curious about your treatment options... By Editorial Team 3 min readBookmark for laterReactions0reactionsComments4 comments
Devastating Personal Experience...I had a heart stent implanted. The following day, I could not walk, the pain was too much. My doctor said it was rheumatism. I said I didn’t have rheumatism... By Nicwebid2 min readBookmark for laterReactions0reactionsComments7 comments
Numbness and tingling in limbs...I have recently been diagnosed as having MG with MuSK. About 5 months ago I started feeling pain around my right elbow. My PCP diagnosed it as tennis elbow. About...Reactions0reactionsComments3 replies
Surgery caused an MG crisis and Death (Throat stopped working)...My mom (74 yrs. old) recently passed away after being approved for a surgery to fix her broken arm. The anesthesia and surgery created enough stress that triggered a crisis...Reactions0reactionsComments3 repliesCrisisSurgeryTriggers
Can MGnegative patient take VYTGARD...My doctor subscribed it for me and I am MG negative FDA only approved for MG positive...Reactions0reactionsComments2 repliesGeneralized MG
Spouse has MG and Fibromyalgia ...How are you handling a spouse with MG and Fibro? How are your spirits? I am frustrated and I know she is too. Tips?...Reactions0reactionsComments3 repliesIntimacy & RelationshipsFriends & FamilyCaregiving
