Huperzine-A...I have found that Huperzine-A (a Chinese herb) was originally found to be of help with Alzheimer, has shown some value with MG as well ... Does anyone have any...Reactions0reactionsComments0 replies
Potassium...My readings tell me that low potassium can affect one’s muscles. Once upon a time I went in for a kidney stone removal. Before they would blast my kidney it...Reactions0reactionsComments8 replies
How Long Have / Did You Experience Discomfort After Thymectomy?...It has been almost 2 years since my transsternal thymectomy. I had a good amount of pain afterward, toward my stomach, sides, and back. At my follow-up appointments, my scans...Reactions0reactionsComments2 repliesThymectomyTreatmentNewly Diagnosed
Juggling Myasthenia Gravis and Other Health Conditions...Traveling the world, mountain and rock climbing, skydiving, deep sea fishing, going to an arts performance, or simply going to a sporting event or tourist trap ... these are all...Reactions0reactionsComments1 comments
Active yesterdayLeg and Foot Cramping and Pain...Many individuals with Myasthenia gravis report having intensive leg/foot cramps and pain, most specifying this occurring predominately at night. Do you experience leg pain? Describe the sensation, and if you...Reactions0reactionsComments435 repliesSleepSide EffectsSymptoms
What 3 Factors Worsen Your MG?...What 3 factors worsen your myasthenia gravis (MG)? I bet we can all answer that question. Here are my 3: fatigue, infection, and stress. When I get very tired, I...Reactions0reactionsComments10 comments
The Eyes Have It...Some years ago I started having a problem seeing. One of my eyes was crossing and I could not focus or see properly. I thought it would correct itself in...Reactions0reactionsComments3 comments
Thymectomy Surgery 70 Year Old Woman...I’m a woman who was diagnosed with MG in August 2020 at the age of 70. My symptoms then included double vision, droopy eyelids, impaired speech, difficulty swallowing, weak neck...Reactions0reactionsComments3 replies
Working Full-Time...I was diagnosed in November so I am virtually new. I'm on 5mg of prednisolone and pyridostigmine 90mg 4 times a day I get days when I think I've got...Reactions0reactionsComments8 replies
Muscle Spasms...I was diagnosed in 1995 I had no mobility at all I take mestinon and Prednisone to stay stable. I notice I have very bad muscle spasms and stay tired...Reactions0reactionsComments2 replies
Mg and asthma...I have been treated since2001 for Mg. Briefly prior to that they said I had asthma. Mg was diagnosed and asthma treatment discontinued. I had chest infection over Xmas and...Reactions0reactionsComments10 repliesGeneralized MGHealthcare Team
Seronegative diagnosis and two rare genetic diseases...I’ve tried posting as a status and it it’s won’t go. It’s been a really crappy couple of months. I’m so over wheelmen. My genetic test for mitochondrial myopathy came...Reactions0reactionsComments1 repliesAutoimmune DiseasesCostDiagnosis
Treatment with ULTOMIRIS...Has anyone received ULLTOMIRIS infusions and what were your results?...Reactions0reactionsComments5 replies
Don't Let Urinary Incontinence Put Your Life on Hold...There is limited research on urinary incontinence as a symptom of myasthenia gravis (MG). In my experience, not all doctors will associate bladder problems with MG. Still, researchers and healthcare...Reactions0reactionsComments11 comments
mg and eye surgery...I am scheduled for a vitrectomy eye surgery for a macular hole ,I am very nervous and am wondering if anyone else has ever had this done that I can...Reactions0reactionsComments3 repliesVisionSurgery
Finding a Doctor Who Understands MG...There is a need for better disease management for myasthenia gravis (MG). According to a 2022 report, people with MG had the same number of symptoms after treatment as they...Reactions0reactionsComments26 comments
MG Flare Treatment...My wife suffered an MG Flare one month ago. She went to the hospital and received IVIG. She came home for one week and went back in for plasmapheresis. Today...Reactions0reactionsComments2 replies
MG Flare...Could an MG Flare be caused by surgery of knee replacement two months prior to the Flare?...Reactions0reactionsComments1 repliesSurgery
Brain Fog...I am 6 months into my MG diagnosis. Right now doing OK with Pyridostigmine. Lately, I have been having trouble with brain fog & short term memory loss. I asked...Reactions0reactionsComments31 repliesCopingSymptoms
eye lid surgery...on March 3 I had eye lid surgery. I'm not very happy about the results. At my follow up 10 days ago, my Dr was disappointed as well. I am...Reactions0reactionsComments2 repliesVisionOcular MG
