My Muscles with Myasthenia Gravis...Our muscles are funny things. If we don't use them, we lose them. Our muscles have memory and remember how to do...reactions2comments
Evacuating and Relocating Due to Natural Disasters With MG...Hurricanes, fires, earthquakes, tsunamis, tornados, avalanches, ice storms, sinkholes, eruptions, flooding, blizzards, and landslides. Natural disasters are devastating phenomena entirely out of...reactionscomments
How To Play Doctor ... Or Not...One of the hardest things about advocating for a patient with a rare disease is the uncertainty of the information that we...reactions6comments
What Is the Social Health Network Community?...Like our other Health Union condition communities, the Social Health Network brings people together to drive unique and impactful conversations about health...reactionscomments
Trying to Stay Positive When Living with Myasthenia Gravis...One of the hardest things to do when living with any chronic health condition is trying to stay positive. I was diagnosed...reactionscomments
When Is It Too Much?...Some mornings I wake up and I know right from the start ... today I just need to rest. Now mind you...reactions10comments
Cristiano Del Giacco...Cristiano was previously a pateint leader on Myasthenia-Gravis.com. Cristiano Del Giacco is a marketing professional, Brazilian Jiu Jitsu black belt, and biomedical...
My Unexpected Insurance Company Ally...Myasthenia gravis (MG) can be scary when you are left by yourself to figure out what is going on. Knowing who to...reactionscomments
How to Approach Gardening When You Have Physical Limitations...I have always loved gardening. I guess you could say "it’s in my blood." I’m a farmer’s daughter originally from Kansas. I...reactionscomments
What Qualities Should I Look for in a Doctor?...The path to a myasthenia gravis (MG) diagnosis can be exhausting, but finding the right doctor can make a huge impact. We...reactions13comments
My Journey with Diets and Learning to Enjoy Food Again...When I was first diagnosed with myasthenia gravis (MG), I started researching diets for autoimmune diseases. Due to my upbringing which valued...reactions2comments
What If?...I feel anxious and fearful. What if my symptoms come back? What if the medication stops working? What if I have to...reactions1comment
How I Explain MG to Others...I can start out the day just fine. I'm ready to go as if I didn't have myasthenia gravis (MG), even if...reactions6comments
Trying to Work After Almost Two Years...As we all know, myasthenia gravis (MG) is a roller coaster ride that we didn't voluntarily get on, but we're on the...reactions2comments
A Myasthenia Gravis Diagnosis After the Age of 55...I learned little about myasthenia gravis (MG) when I went through nursing school, graduating in 1972. However, one of the main things...reactions6comments
Struggles with Myasthenia Gravis Fatigue and Pain...I will be doing a series of articles about how to make life a little easier when you have myasthenia gravis (MG)...reactionscomments
My Myasthenia Start...I was an Army Reservist and a nurse. It started in fall 2016 with extreme fatigue, I mean bad, I worked night...reactions3comments
Rare Myasthenic Syndromes...Myasthenic syndromes are conditions that cause problems with the communication between nerves and muscles. These are rare diseases of the neuromuscular junction...
Managing Safety at Home When Diagnosed with MG...A diagnosis of myasthenia gravis (MG) can bring with it a lot of problems. One of those is home safety. There are...reactions2comments
New Drug...I just started the new drug Vyvgart, I am on the fourth dose given over 4 weeks with a break in between...reactions2comments
