Mestinon Reverse Effect ...Hello all, I have been taking mestinon for 8 years and was very dependent on it. Just recently I have been having reverse effects from it. It actually causes MG...Reactions0reactionsComments6 repliesAutoimmune Diseases
Helen's Story...I am writing in sadness but with the intent of expressing hope for all those who have been diagnosed with MG. I do not have myasthenia, but I had a...Reactions0reactionsComments8 comments
Did COVID Make You a Germophobe?...I was diagnosed with MG right at the start of covid. I was never one to focus on germs before then. I would wash my hands but never was worried...Reactions0reactionsComments3 repliesTreatmentMental HealthDepression
What Year Were You Diagnosed With Myasthenia Gravis?...What year were you diagnosed with Myasthenia gravis? How long did it take to receive a diagnosis? What treatments were available to you at the time? Have you tried any...Reactions0reactionsComments68 repliesAwarenessDiagnosisTreatment
Refractory Mg-Does Your MG Not Cooperate With Treatment?...Do you have refractory MG? If you are unsure of this term, refractory MG refers to anyone with MG in which: "MG symptoms that do not improve with typical drugs...Reactions0reactionsComments0 repliesRefractory MG
How Do I Get the Latest Updates on Myasthenia-Gravis.com?...The internet is rife with information on myasthenia gravis (MG). Unfortunately, sometimes it can get to be a little too much. Perhaps it leaves you feeling like you are trapped...Reactions0reactionsComments0 comments
How Gardening with MG Is Beneficial to Me...In some of my other articles, I’ve mentioned that my husband and I love to garden. We love growing and preserving our own food. There are several reasons we love...Reactions0reactionsComments2 comments
Do You Suffer From Dysphoria? Feeling Dissatisfied With Life...Do you suffer from dysphoria, meaning feeling depressed, troubled, and unsatisfied with how life is going for you? How much does MG play a role in these feelings? What attempts...Reactions0reactionsComments0 repliesMental HealthCopingDepression
What Main Quality Do You Look For in a Doctor...When aiming to find a doctor that feels like a good fit, we must remember that health professionals are human and not perfect. Some have so much on their plate...Reactions0reactionsComments0 repliesNewly DiagnosedHealthcare TeamTreatment
Acetylcholine Receptor Binding Antibodies...My husband was tested for Acetylcholine Receptor Binding Antibodies 14 yrs ago and was told he was NEGATIVE! Recently watched a youtube video of MGFA National Patient conference and Myasthenia...Reactions0reactionsComments1 repliesSeronegative
Side effects vs. Symptoms...I'm 74, diagnosed in 2019 did steroids, MESTINON, and CELLCEPT and I find that the side effects of the medications are as bad as the symptoms. I'm presently on ULTOMIRIS...Reactions0reactionsComments1 replies
Ocular to Generalized Myasthenia Gravis...Commonly, the first symptoms of Myasthenia gravis experienced, and possibly the only MG symptoms for years, are double vision or drooping of the eyes, referred to as ocular MG, https://myasthenia-gravis.com/ocular...Reactions0reactionsComments18 repliesOcular MGGeneralized MGNewly Diagnosed
My Experience with Myasthenia Gravis and Cholesterol Medication...In September 2019, I was in the emergency room with extremely high blood pressure. I was started on atorvastatin because of my high cholesterol levels. Atorvastatin is a drug that...Reactions0reactionsComments14 comments
National Awareness Month...Being new to M-G.com (and the Health Union Community) does Myasthenia-Gravis.com do anything each year to give light to one, or more, aspects of Myasthenia-Gravis; either awareness, or healing, or...Reactions0reactionsComments14 replies
How does the heat affect you?...Yesterday I took a walk, the distance I've been able to work up to since starting Mestinon a few weeks ago. Nowhere near how far I could walk a year...Reactions0reactionsComments4 repliesExerciseNewly DiagnosedWeather
Myasthenia Gravis Has Changed How I Approach My Art...I have been a painter since I was young and I have consistently been painting landscapes "en plein air," which is the term for painting outside. Myasthenia gravis (MG) initially...Reactions0reactionsComments11 comments
Here We Go Again...I was diagnosed with MG in March of 2021 but knowing what I know now, I probably had this disease years before. When I was first diagnosed, I had no...Reactions0reactionsComments11 comments
Do You Have a Caregiver?...Do you have a caregiver? Is your caregiver someone you hired or a loved one? What has been your experience? Any advice for someone looking for or considering the assistance...Reactions0reactionsComments20 repliesCaregivingNewly DiagnosedHealthcare Team
FeaturedHow do you balance exercise and MG?...We all know exercise is a key part of being/getting healthy, but overexertion is also a key part to triggering MG symptoms. Is there any tips or hacks to balancing...Reactions0reactionsComments41 repliesExerciseTriggersTips & Advice
Rheumatologist...In my search for a new Neurologist I have read that a Rheumatologist may be a better choice, if available, to help with MG. Any comments, or clarity, as to...Reactions0reactionsComments8 replies
