Positive Test Results Only Once...I started having MG symptoms in 2021. However, all my test results were negative for an entire year. Then, in 2022, I tested strongly positive for MuSK. Now, in 2023...reactionsreplies
Decision Fatigue: What It Is and a Few Ways to Get Past It...Editor’s Note: This article originally was written by Leanne Donaldson and shared by our partner site Psoriatic-Arthritis.com. I almost hesitate to bring up the f-word again. No, not that one...reactionscomments
MG Symptoms: I Shouldn't Need to Explain Myself...I have found that when it comes to describing myasthenia gravis (MG), there is no one good explanation for every person. Just like everyone with MG experiences symptoms differently, everyone...reactions3comments
does anyone have fingers that suddenly curl up and hurts when you put them str8?...About 2 weeks ago a finger on my left had would spontaneously curl straightening it out was painful Now it feels something is wrong with the whole hand especially the...reactions11repliesGeneralized MG
Active 4 days agoDoes anyone else have bowel/bladder issues with MG?...Ever since I've been diagnosed with MG, I have developed horrible bowel and bladder issues where nothing seems to want to come out. I've been using catheters on and off...reactions26repliesGeneralized MGMuscle WeaknessSymptoms
Fresnel Prisms - suppliers? (United Kingdom)...In the last week I've had a recurrence of diplopia after over four years of no symptoms. I went to my local eye hospital, where on Friday I was assessed...reactionsrepliesOcular MGAssistive Devices
Medication ...Wondering what form of medication people are on my husband has MG since.he was 23 after thymenocotmy was in remmision till 10 yrs ago hes now 62 back on Pyridostigmine...reactions7repliesTreatment
Beginning to exercise after thymectomy...Beginning to exercise after having a thymectomy can be scary! Exercising with MG already is daunting for many as it means accommodating and figuring out how to adapt, https://myasthenia-gravis.com/living/exercising-again. But...reactionsrepliesThymectomyExerciseMuscle Weakness
The Added Stress of Finding a New Neurologist for MG...Since my husband’s recent fractured ankle and my pacemaker implantation and cardioversion, we have been staying at our youngest son’s home. He has been helping both of us with our...reactionscomments
Were you in remission to then have your MG symptoms return?...Have you been treated for Myasthenia gravis and entered a period of remission, but unfortunately, months or years later, your symptoms returned? How is it impacting your life if you...reactions4repliesRemissionSymptomsTriggers
Myasthenia Gravis Drugs and Low Testosterone...Issues with sexual function are common for men with myasthenia gravis (MG). A common problem is low testosterone levels. MG does not directly cause low testosterone or other related problems...reactionscomments
muscle cramping...with my MG the leg cramps come on early morning and also foot cramps without warning. They seem to be getting more severe lately. my hands have cramps in the...reactions8repliesCoping
Mysthenia with IVIGG...Has anyone receiving ivigg treatments noticed that several weeks later, severe shortness of breath? I have had GMG since 2014. Had malignant thymus gland removed in 2016. Take mestinon and...reactions4replies
I Just Want To Sleep: Insomnia and MG...One of the first symptoms of my myasthenia gravis (MG) was insomnia. The first night it happened, I was not too concerned because anyone can have an occasional night of...reactions24comments
problem with difficulty urinating...good evening, I have been diagnosed with myasthenia gravis since 2009, for the last year I have difficulty urinating and I have a small flow, I am 32 years old...reactions5repliesAutoimmune DiseasesDiagnosisSymptoms
Is MG Causing Fatigue, Pain, and Knots in My Muscles?...After a myasthenia gravis (MG) diagnosis, if not before, many of us experience pain in one way or another. Some experience joint pain, some headaches, and others experience muscle cramps...reactions1comment
Not All MG Support Groups Are Helpful...I want to say how thankful I am for Myasthenia-Gravis.com and the way this community is run. I will admit that at times I have some controversial viewpoints. Sometimes I...reactions1comment
Muscle cramping...I haven't been diagnosed with MG but my doctors and I are believe it is likely causing my symptoms, notably double vision and extreme muscle fatigue that varies throughout the...reactions120repliesDiagnosisGeneralized MGSymptoms
Still no remission 10 months after thymectomy. ...I was told that remission wasn't guaranteed after thymectomy. But I'm still disappointed. I'm restarting IVIG and still battling Mestinon side effects. Does anyone have any encouraging words?...reactions2repliesCoping
Vitamins and Minerals I Prioritize With Myasthenia Gravis...Myasthenia gravis (MG) is not directly affected by diet. Certain foods can help mitigate some side effects from MG treatments, but diet will not cure MG. However, there are vital...reactions8comments
