What are your Goals and/or Challenges ...Join me in an empowering discussion as we discuss our goals and the challenges we face on our journeys. Sharing our aspirations and obstacles can help us to connect as...reactions5repliesCoping
Being new in the community....Hi, my name is Fleur I'm nineteen and I got officially diagnosed around a week ago. I've been really struggling currently and feeling a little lost. I've started mestinon 3...reactions4repliesCopingAutoimmune Diseases
More patient control of Pyridostigmine (Mestinon) dosing?...The acetylcholinesterase-inhibition properties of Pyridostigmine (pyri) only last a handful of hours. The doctor's Rx very specifically regulates the dosing period and amount. For example, a common Rx for pyri...reactions5replies
Can I Prevent Ocular MG From Progressing to Generalized MG?...Ocular myasthenia gravis is a type of myasthenia gravis (MG) that mainly affects the eye and eyelid muscles. If you have ocular MG, you may be concerned about developing generalized...reactions1comment
Juvenile MG recently diagnosed...My 10 year old daughter was diagnosed on October 31 2023. (As she says. A Halloween to remember). My husband and I are overwhelmed by how many symptoms she has...reactions1replyNewly Diagnosed
My Favorite Activities: Trying Not to Let MG Hold Me Back...So many times, we have to give up some things we love or love to do when we are diagnosed with a life-altering disease like myasthenia gravis (MG). Well, I’m...reactions1comment
Choosing Compassion When We Don't Know People’s Intentions...With Thanksgiving approaching, I encourage you to welcome this season as a reevaluation period. Similar to the basics of "treating others how we wish to be treated," we want to...reactions7comments
Reassurance on blood test results...Hello, Just reaching out for some reassurance I've waited 6 months just to get my blood test results and I just want to ask if 8 nmol/L is positive for...reactions1replyDiagnosis
Grocery Shopping Difficulties with MG...Grocery shopping with Myasthenia gravis (MG) necessitates the energy to get up and drive to the store. Even if you plan to use a store mobility scooter, it can still...reactions9repliesTips & AdviceDrivingCoping
How do you cope with flare-ups during the holidays? ...I know many of us love the holiday season, but with much running around some of us can have a difficult time keeping our symptoms at bay. What symptoms do...reactions4repliesCopingTips & Advice
Feeling Better Versus Coping Better: How to Tell the Difference...Editor’s Note: This article originally was written by Leanne Donaldson and shared by our partner site Psoriatic-Arthritis.com. Living with chronic illness, we are often evaluated on how well we are...reactions1comment
Benefit...Can i ask anyone in uk living with myasthenia do or can you claim PIP allowance...reactionsreplies
My Experience with a Modified Barium Swallow...I’ve had chewing and swallowing issues on and off for years. I was prescribed a modified barium swallow study (MBSS) so the doctors could figure out why I was choking...reactions7comments
Ocular MG ...Hi All, 34yo male I have had Ocular MG for about 10 years now. My only symptom is double vision (and its severe). Usually when the bouts of double vision...reactions23repliesOcular MGMuscle WeaknessSeronegative
sore arms...Has anyone with MG have sore arms...below the shoulders..Feels like you were exercising with small weights...reactions6replies
Will My Disability Benefits Change If My Diagnosis Changes?...Getting approved for disability benefits from the US Social Security Administration (SSA) can take a lot of paperwork and patience. But you may be also wondering: What if my diagnosis...reactionscomments
Mindfulness & Myasthenia Gravis: A Forum for Stress Management...Mindfulness & Myasthenia Gravis is an online forum crafted for individuals living with myasthenia gravis, offering a platform to discuss and share insights on how mindfulness can help in managing...reactions13replies
Disability...I am currently on leave from my job for mental health issues. Much of what has led up to that, was my diagnosis in November of '21. I have a...reactions3replies
Symptoms of MG...I was diagnosed after 3 months of seeing Drs any so many tests...I have had MG for 4 months now and i am taking Pyridostigmine and prednisone...I have had all...reactions5repliesSymptoms
