Acetylcholine Receptor Binding Antibodies...My husband was tested for Acetylcholine Receptor Binding Antibodies 14 yrs ago and was told he was NEGATIVE! Recently watched a youtube video of MGFA National Patient conference and Myasthenia...Reactions0reactionsComments1 repliesSeronegative
Side effects vs. Symptoms...I'm 74, diagnosed in 2019 did steroids, MESTINON, and CELLCEPT and I find that the side effects of the medications are as bad as the symptoms. I'm presently on ULTOMIRIS...Reactions0reactionsComments1 replies
Ocular to Generalized Myasthenia Gravis...Commonly, the first symptoms of Myasthenia gravis experienced, and possibly the only MG symptoms for years, are double vision or drooping of the eyes, referred to as ocular MG, https://myasthenia-gravis.com/ocular...Reactions0reactionsComments18 repliesOcular MGGeneralized MGNewly Diagnosed
My Experience with Myasthenia Gravis and Cholesterol Medication...In September 2019, I was in the emergency room with extremely high blood pressure. I was started on atorvastatin because of my high cholesterol levels. Atorvastatin is a drug that... By Sally Farrier2 min readBookmark for laterReactions0reactionsComments14 comments
National Awareness Month...Being new to M-G.com (and the Health Union Community) does Myasthenia-Gravis.com do anything each year to give light to one, or more, aspects of Myasthenia-Gravis; either awareness, or healing, or...Reactions0reactionsComments14 replies
How does the heat affect you?...Yesterday I took a walk, the distance I've been able to work up to since starting Mestinon a few weeks ago. Nowhere near how far I could walk a year...Reactions0reactionsComments4 repliesExerciseNewly DiagnosedWeather
Myasthenia Gravis Has Changed How I Approach My Art...I have been a painter since I was young and I have consistently been painting landscapes "en plein air," which is the term for painting outside. Myasthenia gravis (MG) initially... By Jodi Enders3 min readBookmark for laterReactions0reactionsComments11 comments
Here We Go Again...I was diagnosed with MG in March of 2021 but knowing what I know now, I probably had this disease years before. When I was first diagnosed, I had no... By CommunityMember8162 min readBookmark for laterReactions0reactionsComments11 comments
Do You Have a Caregiver?...Do you have a caregiver? Is your caregiver someone you hired or a loved one? What has been your experience? Any advice for someone looking for or considering the assistance...Reactions0reactionsComments20 repliesCaregivingNewly DiagnosedHealthcare Team
FeaturedActive todayHow do you balance exercise and MG?...We all know exercise is a key part of being/getting healthy, but overexertion is also a key part to triggering MG symptoms. Is there any tips or hacks to balancing...Reactions0reactionsComments40 repliesExerciseTriggersTips & Advice
Rheumatologist...In my search for a new Neurologist I have read that a Rheumatologist may be a better choice, if available, to help with MG. Any comments, or clarity, as to...Reactions0reactionsComments8 replies
Huperzine-A...I have found that Huperzine-A (a Chinese herb) was originally found to be of help with Alzheimer, has shown some value with MG as well ... Does anyone have any...Reactions0reactionsComments0 replies
Potassium...My readings tell me that low potassium can affect one’s muscles. Once upon a time I went in for a kidney stone removal. Before they would blast my kidney it...Reactions0reactionsComments8 replies
How Long Have / Did You Experience Discomfort After Thymectomy?...It has been almost 2 years since my transsternal thymectomy. I had a good amount of pain afterward, toward my stomach, sides, and back. At my follow-up appointments, my scans...Reactions0reactionsComments2 repliesThymectomyTreatmentNewly Diagnosed
Juggling Myasthenia Gravis and Other Health Conditions...Traveling the world, mountain and rock climbing, skydiving, deep sea fishing, going to an arts performance, or simply going to a sporting event or tourist trap ... these are all... By Sally Farrier2 min readBookmark for laterReactions0reactionsComments1 comments
Active todayLeg and Foot Cramping and Pain...Many individuals with Myasthenia gravis report having intensive leg/foot cramps and pain, most specifying this occurring predominately at night. Do you experience leg pain? Describe the sensation, and if you...Reactions0reactionsComments426 repliesSleepSide EffectsSymptoms
What 3 Factors Worsen Your MG?...What 3 factors worsen your myasthenia gravis (MG)? I bet we can all answer that question. Here are my 3: fatigue, infection, and stress. When I get very tired, I... By Janice Koehn2 min readBookmark for laterReactions0reactionsComments10 comments
The Eyes Have It...Some years ago I started having a problem seeing. One of my eyes was crossing and I could not focus or see properly. I thought it would correct itself in... By CommunityMember67235981 min readBookmark for laterReactions0reactionsComments3 comments
Thymectomy Surgery 70 Year Old Woman...I’m a woman who was diagnosed with MG in August 2020 at the age of 70. My symptoms then included double vision, droopy eyelids, impaired speech, difficulty swallowing, weak neck...Reactions0reactionsComments3 replies
Working Full-Time...I was diagnosed in November so I am virtually new. I'm on 5mg of prednisolone and pyridostigmine 90mg 4 times a day I get days when I think I've got...Reactions0reactionsComments8 replies
