What Time of the Year Is Best and Worst for Your MG?...Myasthenia gravis can be triggered uniquely for each individual that lives with it. The time of the year may affect how many MG symptoms and severeness you must deal with...Reactions0reactionsComments0 repliesTriggersSymptomsWeather
Did Your MG First Symptoms Happen All at Once, a Crisis?...A Myasthenic Crisis is the most severe event Myasthenia gravis can cause. Although it can vary, a crisis typically involves weakening multiple muscles, double vision, unsteady balance, and swallowing difficulties...Reactions0reactionsComments0 repliesNewly DiagnosedCrisisAwareness
Do You Have a Preference of Older or Younger Doctors to Treat MG?...Do you prefer a young or older healthcare professional to treat your MG? Age by no means determines how much knowledge or skill a doctor offers. And an individual could...Reactions0reactionsComments0 repliesHealthcare TeamTreatmentNewly Diagnosed
Myasthenia Gravis and Reducing My Mestinon Dosage...We’ve just passed the 2 year anniversary of my thymectomy, and the results I've seen continue to impress. I'm currently on the lowest dose of Mestinon since I started treatment...Reactions0reactionsComments18 comments
Don’t Waste Energy Stressing Over Things That Didn’t Work in Your Favor...During a recent paddleboarding outing, my boyfriend and I were returning to the boat ramp, only minutes away, when I hit a rapid current that sent me back some 50...Reactions0reactionsComments0 comments
Myasthenia Gravis and Cardiovascular Medication...Myasthenia gravis may pose a risk to patients using cardiovascular medications to treat heart conditions (coronary artery disease, hypertension, high cholesterol, and heart arrhythmias). Beta-blockers, calcium channel blockers, and statins...Reactions0reactionsComments15 repliesTreatmentSymptomsNewly Diagnosed
MG Terminology...I bet we all remember the first few years after being diagnosed with Myasthenia gravis and constantly finding new MG-related terms we were unfamiliar with. Many of us are still...Reactions0reactionsComments2 repliesDiagnosisAwarenessNewly Diagnosed
Neck Pain...Do you have Myasthenia gravis and experience neck pain? https://myasthenia-gravis.com/clinical/pain What does the sensation feel like, and when do you notice it? Have you found any remedies to help? As...Reactions0reactionsComments0 repliesMuscle WeaknessTips & AdviceSymptoms
Not Ready for Summer...Now don't get me wrong, I love summer. Well ... I used to love summer! But the longer I live with myasthenia gravis (MG), the more heat bothers me. Whether...Reactions0reactionsComments11 comments
Gabapentin and Myasthenia Gravis...Gabapentin (Gralise, Horizant, Neuraptine) is deemed cautionary with Myasthenia gravis, as it can potentially worsen symptoms. Gabapentin is used to treat seizure, nerve, and pain conditions. It can be problematic...Reactions0reactionsComments27 repliesTreatmentTriggersNewly Diagnosed
Had You Heard of Myasthenia Gravis Before Your Diagnosis?...When you were diagnosed, or a doctor proposed you could have Myasthenia gravis, had you heard of it before? If yes, from where? I was utterly clueless about what it...Reactions0reactionsComments50 repliesDiagnosisNewly DiagnosedAwareness
Soliris (Eculizumab) Outcome & Side Effects...Eculizumab (Soliris®), https://myasthenia-gravis.com/biologics, is a Myasthenia gravis treatment approved for generalized myasthenia gravis (gMG)(https://myasthenia-gravis.com/generalized) & anti-acetylcholine receptor (AChR) antibody-positive (https://myasthenia-gravis.com/causes). Have you been treated...Reactions0reactionsComments0 repliesTreatmentRefractory MGGeneralized MG
Are You a Diabetic With Myasthenia Gravis?...Do you have diabetes as well as Myasthenia gravis? We would love it if you could share your experience and what your treatment regimen looks like....Reactions0reactionsComments4 repliesHealthcare TeamNewly DiagnosedTreatment
Active yesterdayHow Do You Cope With Hot Temperatures?...Summer is almost here. Does the heat worsen your Myasthenia gravis symptoms? Which ones? https://myasthenia-gravis.com/living/heat How often are you outdoors in the hot temperatures? When you are outside in the...Reactions0reactionsComments48 repliesWeatherCopingSymptoms
Do You Have MuSK or LRP4 Antibodies?...Do you have MuSK or LRP4 antibodies? "Most people with MG have problems with acetylcholine receptors (AChR). However, other antibodies may cause MG, such as muscle-specific kinase (MuSK) and low-density...Reactions0reactionsComments5 repliesTypesAwarenessDiagnosis
Box Breathing and How It Helps With Stress...Our lives are filled with family obligations, work and school responsibilities, healthcare appointments, and busy schedules. Stress is a normal part of life. But sometimes, stress can get out of...Reactions0reactionsComments7 comments
My Youngest Grandson's Opinion About My MG...Our grandsons were over visiting and they were asking to go outside. What they really wanted to do was ride the dirt bike. They know another adult has to be...Reactions0reactionsComments3 comments
Share some medications that have been proved to be useful for CMS patients....Hii everyone! I have a neurological disorder called congenital myasthenic syndrome (CMS). Despite trying various medications, none of them have been effective. My neurologist has suggested ephedrine treatment, which has...Reactions0reactionsComments1 repliesMuscle Weakness
Blood tests are negative but have symptoms...I have many of the symptoms of MG- loss of muscle strength around my mouth, sometimes trouble chewing/swallowing /drinking water some slurring of words but the blood tests are negative...Reactions0reactionsComments7 replies
Mestinon Reverse Effect ...Hello all, I have been taking mestinon for 8 years and was very dependent on it. Just recently I have been having reverse effects from it. It actually causes MG...Reactions0reactionsComments6 repliesAutoimmune Diseases
