5 Things I Wish I Knew When I Was Diagnosed with MG...This year marks 10 years since myasthenia gravis (MG) began for me. My official 10 year anniversary of living with this disease. Looking back, I had so many thoughts running...Reactions0reactionsComments37 comments
Where Did This Come From?...Hello, my name is Robert and although my MG was confirmed 18 months ago I now realize it had been coming for four or five years. It started with double...Reactions0reactionsComments6 comments
First Crisis...I was a newbie. Just diagnosed in March of 2021. I was put on Mestinon and started my birthday trip to several cities in early July. As it began, my...Reactions0reactionsComments6 comments
40 Years Too Long...I was 28 at the time I started getting weak and falling. All the doctors I saw had no idea of what was wrong. The first doctor I went to...Reactions0reactionsComments2 comments
Conquering My Fear of Swimming After Diagnosis...The first time I went swimming after my myasthenia gravis (MG) diagnosis, I was very anxious. For those who haven’t experienced the ugly symptoms that come with MG, such as...Reactions0reactionsComments10 comments
Tasha White...With more than 30 years of experience as a Myasthenia Gravis patient with a BS in Healthcare Administration, Tasha continues to educate, uplift, and show empathy to the MG community...
3 Tips You Wish You Had When You Were First Diagnosed With Myasthenia Gravis?...Think back to when you were first diagnosed with Myasthenia gravis. What are 3 tips you wish you could go back in time and have given yourself? Mine would be:...Reactions0reactionsComments25 repliesTips & AdviceTreatmentNewly Diagnosed
Myasthenia Gravis and Anticonvulsants (Antiepileptics)...Anticonvulsants (or antiepileptics) are drugs designed to control or treat seizures, nerve pain, and some mood disorders. Some "mood stabilizers come from the anticonvulsant class. Common anticonvulsants include: Depakote® (divalproex...Reactions0reactionsComments0 repliesDepressionTreatmentTriggers
Deep frustration and sadness after finding the love of my life...Hi all, my name is Lucienne, i,m a 57 year old woman from The Netherlands. I,m so depressed and sad that i decided to search for a forum where i...Reactions0reactionsComments6 replies
Immunotherapy (stem cell)...Does anyone have experence treating autoimmune MG with immunotherapy (stem cell) treatments simular to what is used in cancer treatment? I am 41 years old and have been recently diagnosed...Reactions0reactionsComments4 repliesTreatment
What is myasthenia gravis?...What are some tips to help me with myasthenia gravis?...Reactions0reactionsComments1 repliesAwarenessAssistive DevicesGeneralized MG
Flying with Incontinence: Going Through Airport Security...I've flown a few times, and maybe a dozen times before having problems with myasthenia gravis (MG) and incontinence. As we all know, the security check at airports is not...Reactions0reactionsComments2 comments
What Are Prism Glasses and Can They Help People With Myasthenia Gravis?...Weakness of the muscles that control eye movement often causes the first symptoms of myasthenia gravis (MG). While there are therapies available to treat MG, prism glasses are not usually...Reactions0reactionsComments15 comments
Three crisis in 5 months...My Mg manifests itself in my ability to be able to walk along with vision neck muscle and not to much in facial events. It also steals my ability to...Reactions0reactionsComments8 repliesSpeechCopingMuscle Weakness
Hereditary MG...My mother in law told me her mother had MG and she died in late 50s due to complications from the disease. My mother in law was told that the...Reactions0reactionsComments3 replies
Getting Back to a Semi-Normal Life with Myasthenia Gravis...It has been a long road these last 3 years with myasthenia gravis. In just the blink of an eye, I have gone from doing whatever I wanted, when I...Reactions0reactionsComments0 comments
The Wave of It All!...My name is Grady. I was diagnosed with myasthenia gravis four years ago. This past year, 2023, I began noticing that my MG symptoms were becoming worse. My eyes were...Reactions0reactionsComments10 comments
Steroids, Rituximab and summer...I have diagnosed with gMG (seropositive)since Feb 2022. I was on steroids since then. I stared to have issues with my vision. Checked up and diagnosed as a steroids responder...Reactions0reactionsComments11 replies
Not reacting to treatments...Hi there im a caretaker and my spouse has MG 3 weeks ago he was not feeling good since the new IV treatment was not lasting him ( vyvgard) And...Reactions0reactionsComments1 repliesCaregivingAutoimmune DiseasesGeneralized MG
I never heard of myasthenia gravis until the neuroglist said I have it. ...I noticed that I would occasionally have double vision and that my left eye was not behaving. Having had retina problems, I prefer to be checked out by an opthalmologist...Reactions0reactionsComments16 repliesOcular MGSide Effects
