Not Ready for Summer...Now don't get me wrong, I love summer. Well ... I used to love summer! But the longer I live with myasthenia gravis (MG), the more heat bothers me. Whether... By Sally Farrier2 min readBookmark for laterReactions0reactionsComments11 comments
Gabapentin and Myasthenia Gravis...Gabapentin (Gralise, Horizant, Neuraptine) is deemed cautionary with Myasthenia gravis, as it can potentially worsen symptoms. Gabapentin is used to treat seizure, nerve, and pain conditions. It can be problematic...Reactions0reactionsComments27 repliesTreatmentTriggersNewly Diagnosed
Had You Heard of Myasthenia Gravis Before Your Diagnosis?...When you were diagnosed, or a doctor proposed you could have Myasthenia gravis, had you heard of it before? If yes, from where? I was utterly clueless about what it...Reactions0reactionsComments50 repliesDiagnosisNewly DiagnosedAwareness
Soliris (Eculizumab) Outcome & Side Effects...Eculizumab (Soliris®), https://myasthenia-gravis.com/biologics, is a Myasthenia gravis treatment approved for generalized myasthenia gravis (gMG)(https://myasthenia-gravis.com/generalized) & anti-acetylcholine receptor (AChR) antibody-positive (https://myasthenia-gravis.com/causes). Have you been treated...Reactions0reactionsComments0 repliesTreatmentRefractory MGGeneralized MG
Are You a Diabetic With Myasthenia Gravis?...Do you have diabetes as well as Myasthenia gravis? We would love it if you could share your experience and what your treatment regimen looks like....Reactions0reactionsComments4 repliesHealthcare TeamNewly DiagnosedTreatment
How Do You Cope With Hot Temperatures?...Summer is almost here. Does the heat worsen your Myasthenia gravis symptoms? Which ones? https://myasthenia-gravis.com/living/heat How often are you outdoors in the hot temperatures? When you are outside in the...Reactions0reactionsComments48 repliesWeatherCopingSymptoms
Do You Have MuSK or LRP4 Antibodies?...Do you have MuSK or LRP4 antibodies? "Most people with MG have problems with acetylcholine receptors (AChR). However, other antibodies may cause MG, such as muscle-specific kinase (MuSK) and low-density...Reactions0reactionsComments5 repliesTypesAwarenessDiagnosis
Box Breathing and How It Helps With Stress...Our lives are filled with family obligations, work and school responsibilities, healthcare appointments, and busy schedules. Stress is a normal part of life. But sometimes, stress can get out of... By Editorial Team 2 min readBookmark for laterReactions0reactionsComments7 comments
My Youngest Grandson's Opinion About My MG...Our grandsons were over visiting and they were asking to go outside. What they really wanted to do was ride the dirt bike. They know another adult has to be... By Sally Farrier2 min readBookmark for laterReactions0reactionsComments3 comments
Share some medications that have been proved to be useful for CMS patients....Hii everyone! I have a neurological disorder called congenital myasthenic syndrome (CMS). Despite trying various medications, none of them have been effective. My neurologist has suggested ephedrine treatment, which has...Reactions0reactionsComments1 repliesMuscle Weakness
Blood tests are negative but have symptoms...I have many of the symptoms of MG- loss of muscle strength around my mouth, sometimes trouble chewing/swallowing /drinking water some slurring of words but the blood tests are negative...Reactions0reactionsComments7 replies
Mestinon Reverse Effect ...Hello all, I have been taking mestinon for 8 years and was very dependent on it. Just recently I have been having reverse effects from it. It actually causes MG...Reactions0reactionsComments6 repliesAutoimmune Diseases
Helen's Story...I am writing in sadness but with the intent of expressing hope for all those who have been diagnosed with MG. I do not have myasthenia, but I had a... By CommunityMember4604 min readBookmark for laterReactions0reactionsComments8 comments
Did COVID Make You a Germophobe?...I was diagnosed with MG right at the start of covid. I was never one to focus on germs before then. I would wash my hands but never was worried...Reactions0reactionsComments3 repliesTreatmentMental HealthDepression
What Year Were You Diagnosed With Myasthenia Gravis?...What year were you diagnosed with Myasthenia gravis? How long did it take to receive a diagnosis? What treatments were available to you at the time? Have you tried any...Reactions0reactionsComments68 repliesAwarenessDiagnosisTreatment
Refractory Mg-Does Your MG Not Cooperate With Treatment?...Do you have refractory MG? If you are unsure of this term, refractory MG refers to anyone with MG in which: "MG symptoms that do not improve with typical drugs...Reactions0reactionsComments0 repliesRefractory MG
How Do I Get the Latest Updates on Myasthenia-Gravis.com?...The internet is rife with information on myasthenia gravis (MG). Unfortunately, sometimes it can get to be a little too much. Perhaps it leaves you feeling like you are trapped... By Editorial Team 2 min readBookmark for laterReactions0reactionsComments0 comments
How Gardening with MG Is Beneficial to Me...In some of my other articles, I’ve mentioned that my husband and I love to garden. We love growing and preserving our own food. There are several reasons we love... By Janice Koehn2 min readBookmark for laterReactions0reactionsComments2 comments
Do You Suffer From Dysphoria? Feeling Dissatisfied With Life...Do you suffer from dysphoria, meaning feeling depressed, troubled, and unsatisfied with how life is going for you? How much does MG play a role in these feelings? What attempts...Reactions0reactionsComments0 repliesMental HealthCopingDepression
What Main Quality Do You Look For in a Doctor...When aiming to find a doctor that feels like a good fit, we must remember that health professionals are human and not perfect. Some have so much on their plate...Reactions0reactionsComments0 repliesNewly DiagnosedHealthcare TeamTreatment
