MG in the UK...Just reaching out to those in the UK as the MG support in the UK is pretty limited I find and this seems like the best place for support, which...reactions2repliesFriends & FamilyAwarenessCaregiving
Happy Hypoxia/silent Hypoxia or similar...Just wondered whether anyone has experienced regular low oxygen levels 94% and under without feeling particularly or overly distressed or breathless as can be seen in COPD or similar respiratory...reactionsrepliesSymptomsGeneralized MG
The Challenges of Living Away from Home...I have myasthenia gravis (MG), and even though I’m partially confined to a wheelchair/power chair, I can still walk with the aid of a walker or rollator. I can also...reactions3comments
Plasma Replacement Therapy...Hi everyone Pete from the UK here - 70 years of age. I've had double vision since 2016 but recently developed ptosis. Finally been diagnosed with MG and now have...reactions3repliesGeneralized MGAutoimmune DiseasesNewly Diagnosed
Life Will Never Be the Same...There is no joy left in life for me with myasthenia gravis (MG). I know most people would read that sentence and think, hmm ... depression? No, it's not depression...reactions20comments
For men with MG-Gravis. ...What antidepressants are compatible with Prednisone and mestinon? Any experience would help. Thanks, Mark...reactions4replies
Early Undiagnosed Symptoms?...I am curious to know whether others with MG experienced early symptoms or had a close relative with a neurological illness? Many years ago I was told that I have...reactions3repliesSymptoms
IVIg or SCIg...I was diagnosed with M.G. almost 17 years ago, and since then have been on Mestinon when I take a 180 mg.Slow Release tablet first thing in the morning, and...reactions2repliesTips & Advice
Sleep...I am a 21-year MGer and sleep 4 - 5 hours a night. Even though I use a CPAP, I'm in a real bind. What suggestions do you have?...reactionsrepliesSleep
Emergency room- advocating for your MG and communicating with staff...Have you had an emergency room visit since having MG? If you were unaware, many drugs can trigger or worsen MG symptoms and potentially lead to a crisis. Suppose you...reactions6repliesAwarenessCrisisHealthcare Team
Confidence in your treatment regimen?...How easily or difficult is it for you to have faith and confidence in your treatment regimen? Has this changed over time? Do you doubt faith in doctor decisions or...reactions56repliesTreatmentRemissionHealthcare Team
Muscle Spasms with and without Pyridostigmine (Mestinon)...Have you taken mestinon and experienced muscle spasms? Did your doctor have you suspend the use of the treatment? Have you noticed muscle spasms even without being on mestinon? Muscle...reactions15repliesSymptomsTreatmentTriggers
One word to describe the past month...Describe how you have felt this past month with one word....reactions1replyAwarenessSymptomsFriends & Family
Learning Everything I Can About Myasthenia Gravis...In this guest post, Mike Stabile talks about how he has navigated the past few years since his myasthenia gravis (MG) diagnosis. After vowing to learn everything he could about...reactions36comments
Preparing for Winter Travel with MG...Traveling anytime is trying at best, but winter travel can be quite challenging. I have done a lot of travel before and after my myasthenia gravis (MG) diagnosis. When we...reactions1comment
Droopy Eyelid...Hi All, I am new here but wanted to share this. Also I am not saying it will work for all but it has majorly helped me. My doctor gave...reactions1replyOcular MG
Active todayDo you have problems swallowing?...Myasthenia gravis causes weakness of the swallowing muscles of many individuals, leading to problems involving choking, a terrifying experience, https://myasthenia-gravis.com/living/swallowing-speaking-symptoms, https://myasthenia-gravis.com/diet, and https://myasthenia-gravis.com/living/barium-swallow-experience...reactions127repliesSymptomsDiet & NutritionMuscle Weakness
MG Crisis-What Triggered Yours?...Have you had an MG crisis (https://myasthenia-gravis.com/crisis)? If yes, do you have an idea of what triggered it?...reactions30repliesCrisisTriggersSymptoms
Neuromuscular Blocking Medication Triggered MG Symptoms...Neuromuscular blocking drugs are administered to patients during surgery as muscle relaxants to prevent muscle movement. These medications are scientifically recommended against use in myasthenia gravis patients and, if necessary...reactionsrepliesCrisisSurgeryTriggers
How Do Autoimmune Diseases Affect Cancer Risk?...Our immune system is constantly working to fight foreign or dangerous invaders like viruses, fungi, or bacteria. This helps protect us from things like infections, the flu, and even cancer...reactions1comment
