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Not Myasthenia...

In 2016, I began the year with prostate cancer surgery. In June, my father died. In July, I experienced ptosis. An ophthalmologist diagnosed a nerve that would improve. It did.

Seeking a diagnosis

In November, after a long road trip, the ptosis returned, followed by diplopia. I returned to the ophthalmology department and a rather astute resident diagnosed myasthenia gravis. In anticipation of the December appointment, I started combing the Internet and came across the diagnosis.

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When she, validated by the department chair, rendered the diagnosis, I lost my composure. The chair immediately turned to my wife and emphatically told her not to delay any emergency referral if I experienced certain physical symptoms. My wife’s widening eyes are something I can never forget and now provides us with some humor.

MG was confirmed

A rush of bloodwork validated the clinical diagnosis. In January I was seen by Neurology and prescribed Mestinon. It worked… for a year. Then I submitted to a high dose of prednisone, and it worked. I lost weight but not without a lot of discipline (I am retired Army).

My dose is now at 13 mg, on alternate days, and so far managed. I do occasionally feel an ocular tinge familiar to ocular MG patients and remind myself to take things in stride.

I never thought I would get this… who does? In one sense I feel fortunate that I received this diagnosis late in life. My heart goes out to that cohort of MG patients much younger but I also remain optimistic that a cure or treatment will emerge.

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

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