Immunotherapy (stem cell)...Does anyone have experence treating autoimmune MG with immunotherapy (stem cell) treatments simular to what is used in cancer treatment? I am 41 years old and have been recently diagnosed...Reactions0reactionsComments4 repliesTreatment
What is myasthenia gravis?...What are some tips to help me with myasthenia gravis?...Reactions0reactionsComments1 repliesAwarenessAssistive DevicesGeneralized MG
Flying with Incontinence: Going Through Airport Security...I've flown a few times, and maybe a dozen times before having problems with myasthenia gravis (MG) and incontinence. As we all know, the security check at airports is not... By Sally Farrier2 min readBookmark for laterReactions0reactionsComments2 comments
What Are Prism Glasses and Can They Help People With Myasthenia Gravis?...Weakness of the muscles that control eye movement often causes the first symptoms of myasthenia gravis (MG). While there are therapies available to treat MG, prism glasses are not usually... By Editorial Team 2 min readBookmark for laterReactions0reactionsComments13 comments
Three crisis in 5 months...My Mg manifests itself in my ability to be able to walk along with vision neck muscle and not to much in facial events. It also steals my ability to...Reactions0reactionsComments8 repliesSpeechCopingMuscle Weakness
Hereditary MG...My mother in law told me her mother had MG and she died in late 50s due to complications from the disease. My mother in law was told that the...Reactions0reactionsComments3 replies
Getting Back to a Semi-Normal Life with Myasthenia Gravis...It has been a long road these last 3 years with myasthenia gravis. In just the blink of an eye, I have gone from doing whatever I wanted, when I... By Sally Farrier2 min readBookmark for laterReactions0reactionsComments0 comments
The Wave of It All!...My name is Grady. I was diagnosed with myasthenia gravis four years ago. This past year, 2023, I began noticing that my MG symptoms were becoming worse. My eyes were... By grady pennington1 min readBookmark for laterReactions0reactionsComments10 comments
Steroids, Rituximab and summer...I have diagnosed with gMG (seropositive)since Feb 2022. I was on steroids since then. I stared to have issues with my vision. Checked up and diagnosed as a steroids responder...Reactions0reactionsComments11 replies
Not reacting to treatments...Hi there im a caretaker and my spouse has MG 3 weeks ago he was not feeling good since the new IV treatment was not lasting him ( vyvgard) And...Reactions0reactionsComments1 repliesCaregivingAutoimmune DiseasesGeneralized MG
I never heard of myasthenia gravis until the neuroglist said I have it. ...I noticed that I would occasionally have double vision and that my left eye was not behaving. Having had retina problems, I prefer to be checked out by an opthalmologist...Reactions0reactionsComments16 repliesOcular MGSide Effects
What Time of the Year Is Best and Worst for Your MG?...Myasthenia gravis can be triggered uniquely for each individual that lives with it. The time of the year may affect how many MG symptoms and severeness you must deal with...Reactions0reactionsComments0 repliesTriggersSymptomsWeather
Did Your MG First Symptoms Happen All at Once, a Crisis?...A Myasthenic Crisis is the most severe event Myasthenia gravis can cause. Although it can vary, a crisis typically involves weakening multiple muscles, double vision, unsteady balance, and swallowing difficulties...Reactions0reactionsComments0 repliesNewly DiagnosedCrisisAwareness
Do You Have a Preference of Older or Younger Doctors to Treat MG?...Do you prefer a young or older healthcare professional to treat your MG? Age by no means determines how much knowledge or skill a doctor offers. And an individual could...Reactions0reactionsComments0 repliesHealthcare TeamTreatmentNewly Diagnosed
Myasthenia Gravis and Reducing My Mestinon Dosage...We’ve just passed the 2 year anniversary of my thymectomy, and the results I've seen continue to impress. I'm currently on the lowest dose of Mestinon since I started treatment... By Shelbie Brown3 min readBookmark for laterReactions0reactionsComments18 comments
Don’t Waste Energy Stressing Over Things That Didn’t Work in Your Favor...During a recent paddleboarding outing, my boyfriend and I were returning to the boat ramp, only minutes away, when I hit a rapid current that sent me back some 50... By Jodi Enders3 min readBookmark for laterReactions0reactionsComments0 comments
Active todayMyasthenia Gravis and Cardiovascular Medication...Myasthenia gravis may pose a risk to patients using cardiovascular medications to treat heart conditions (coronary artery disease, hypertension, high cholesterol, and heart arrhythmias). Beta-blockers, calcium channel blockers, and statins...Reactions0reactionsComments13 repliesTreatmentSymptomsNewly Diagnosed
MG Terminology...I bet we all remember the first few years after being diagnosed with Myasthenia gravis and constantly finding new MG-related terms we were unfamiliar with. Many of us are still...Reactions0reactionsComments2 repliesDiagnosisAwarenessNewly Diagnosed
Neck Pain...Do you have Myasthenia gravis and experience neck pain? https://myasthenia-gravis.com/clinical/pain What does the sensation feel like, and when do you notice it? Have you found any remedies to help? As...Reactions0reactionsComments0 repliesMuscle WeaknessTips & AdviceSymptoms
Not Ready for Summer...Now don't get me wrong, I love summer. Well ... I used to love summer! But the longer I live with myasthenia gravis (MG), the more heat bothers me. Whether... By Sally Farrier2 min readBookmark for laterReactions0reactionsComments11 comments
